MDS Patients Forum

What to post where and general usage details, please read before posting

Please post any useful / relevant links here for possible inclusion on the main website

Details of upcoming events and fundraisers. Please add your own post - and update us about your great challenges. Thank you!

MDS can affect children in some very rare cases. Please post here if you are a parent of a child with MDS.

Chronic myelomonocytic leukaemia (CMML) is a rare type of blood cancer. In CMML there are too many monocytes in the blood. Monocytes are a type of white blood cell.

Highlight and discuss any ongoing issues regarding COVID-19 topics - vaccines, PCR kits, antib0dy treatments, antibody levels, T-Cell response, SOAP trial, isolation, social distancing, masks, immune-compromised status etc). Don't hesitate to also talk about the emotional, mental, physical or financial impact of COVID-19 for you and your family.

Support, information and resources for family, friends and carers of those with MDS

Fatigue is a common side effect of MDS.

Looking at the potential link between auto-immune disease and MDS. Post about your personal experience with auto-immune diseases - such as chronic joint inflammation, low platelet counts of unknown cause, blood vessel inflammation, muscle pain in hips or shoulders, artery inflammation, or psoriasis.

Share your own personal experience regarding nutrition and the use of different supplements to help with general health.
MDS UK does NOT endorse or recommend any products that may be mentioned here.
MDS UK strongly advises to ALWAYS consult your clinical team before taking ANY supplements.

For information about insurance companies able to offer coverage to those with pre-existing medical conditions - such as MDS. And new folder about Health or Life Insurance issues.

Please post any problems you find in using the forum here

Post here to make contact with others in specific regions of the UK.

If you would like to share your memories of someone you have lost or need support dealing with a bereavement, please post here.