-
- Forum
- Last post
-
-
About the Forum - PLEASE READ THIS FIRSTWhat to post where and general usage details, please read before postingTopics: 8, Posts: 10Moderator: Steering Committee
-
Last post
How to create a new post on t…
by MDSUK View the latest post
04 Sep 2022 11:24
-
-
-
Messages and Links From the Support TeamPlease post any useful / relevant links here for possible inclusion on the main websiteTopics: 17, Posts: 39Moderator: Steering Committee
-
Last post
Re: Advice for hosepipe bans …
by Devjon View the latest post
15 Aug 2022 18:58
-
-
-
Introductions and General ChatSay hello, tell us your story or just have a chatTopics: 247, Posts: 1722Moderator: Steering Committee
-
Last post
Re: Introducing Myself
by AEBS37 View the latest post
04 Mar 2024 18:56
-
-
-
Events and FundraisersDetails of upcoming events and fundraisers. Please add your own post - and update us about your great challenges. Thank you!Topics: 41, Posts: 89Moderator: Steering Committee
-
Last post
North Downs Way Ultramarathon…
by MDSUK View the latest post
25 Jul 2023 15:23
-
-
-
Regional Meeting GroupsA place to advertise your regional meetings, get togethers, formal or informal - so that others can find you - and you can post updates.Topics: 46, Posts: 146Moderator: Steering Committee
-
Last post
14 October - Oxford Patient S…
by MDSUK View the latest post
03 Sep 2022 10:56
-
-
-
Childhood MDSMDS can affect children in some very rare cases. Please post here if you are a parent of a child with MDS.Topics: 4, Posts: 43Moderator: Steering Committee
-
Last post
Re: Paediatric MDS & Monsosom…
by mumoffour View the latest post
29 Dec 2017 23:56
-
-
-
CMMLChronic myelomonocytic leukaemia (CMML) is a rare type of blood cancer. In CMML there are too many monocytes in the blood. Monocytes are a type of white blood cell.Topics: 32, Posts: 309Moderator: Steering Committee
-
Last post
Re: I feel a fraud having no …
by chris View the latest post
20 Oct 2023 11:23
-
-
-
COVID-19 topicsHighlight and discuss any ongoing issues regarding COVID-19 topics - vaccines, PCR kits, antib0dy treatments, antibody levels, T-Cell response, SOAP trial, isolation, social distancing, masks, immune-compromised status etc). Don't hesitate to also talk about the emotional, mental, physical or financial impact of COVID-19 for you and your family.Topics: 8, Posts: 24Moderator: Steering Committee
-
Last post
Re: I finally caught Covid ( …
by Devjon View the latest post
03 Nov 2022 17:01
-
-
-
The Diagnosis Process (incl Biopsies; IPSS/Risk groups; Progression of MDS; Mutations)Topics: 10, Posts: 69Moderator: Steering Committee
-
Last post
Re: What next?
by DN123 View the latest post
23 Oct 2023 10:05
-
-
-
Family, Friends and CarersSupport, information and resources for family, friends and carers of those with MDSTopics: 10, Posts: 114Moderator: Steering Committee
-
Last post
Re: Wife newly diagnosed
by chris View the latest post
19 Mar 2024 08:54
-
-
-
Fatigue and MDSFatigue is a common side effect of MDS.Topics: 3, Posts: 19Moderator: Steering Committee
-
Last post
Re: Fatigue
by janetstanford View the latest post
20 Jun 2013 17:12
-
-
-
MDS and Autoimmune ConditionsLooking at the potential link between auto-immune disease and MDS. Post about your personal experience with auto-immune diseases - such as chronic joint inflammation, low platelet counts of unknown cause, blood vessel inflammation, muscle pain in hips or shoulders, artery inflammation, or psoriasis.Topics: 5, Posts: 21Moderator: Steering Committee
-
Last post
Re: Autoimmune and infections
by KRS8 View the latest post
26 Dec 2022 16:10
-
-
-
Last post
Re: Low Risk MDS
by RUSE7 View the latest post
16 Feb 2023 10:12
-
-
Last post
Re: AZACITIDENE TREATMENT
by chris View the latest post
16 Apr 2024 22:12
-
-
Nutrition and General Health SupplementsShare your own personal experience regarding nutrition and the use of different supplements to help with general health.
MDS UK does NOT endorse or recommend any products that may be mentioned here.
MDS UK strongly advises to ALWAYS consult your clinical team before taking ANY supplements.Topics: 4, Posts: 21Moderator: Steering Committee -
Last post
Re: Vitamin C in the treatmen…
by RUSE7 View the latest post
28 Sep 2022 14:42
-
-
-
Last post
Re: Revlimid trial in France
by Bobby Shaw View the latest post
14 Jun 2015 15:17
-
-
Stem Cell TransplantsStem cell transplants (previously known as Bone Marrow Transplants), the decision to have a transplant and info about GVHDTopics: 42, Posts: 456Moderator: Steering Committee
-
Last post
Re: Neutropenic diet factsheet
by JRHA5 View the latest post
31 Mar 2024 21:12
-
-
-
Travel or Health/Life insurance for MDSFor information about insurance companies able to offer coverage to those with pre-existing medical conditions - such as MDS. And new folder about Health or Life Insurance issues.Topics: 19, Posts: 141Moderator: Steering Committee
-
Last post
Re: Travel Insurance - Feb 20…
by Devjon View the latest post
09 Jul 2023 09:26
-
-
-
Problems using the forumPlease post any problems you find in using the forum hereTopics: 10, Posts: 37Moderator: Steering Committee
-
Last post
Re: Test Topic - please respo…
by ChaudianM View the latest post
23 Nov 2023 13:57
-
-
-
Contact requests - members onlyPost here to make contact with others in specific regions of the UK.Topics: 42, Posts: 147Moderator: Steering Committee
-
Last post
Re: Husband just diagnosed
by chris View the latest post
17 Jul 2019 12:50
-
-
-
BereavementIf you would like to share your memories of someone you have lost or need support dealing with a bereavement, please post here.Topics: 0, Posts: 0Moderator: Steering Committee
-
No posts
-
Who is online
In total there are 529 users online :: 6 registered, 0 hidden and 523 guests (based on users active over the past 999 minutes)
Most users ever online was 3889 on 08 Aug 2023 16:24
Registered users: Ahrefs [Bot], Bing [Bot], chris, Google [Bot], Semrush [Bot], Yahoo [Bot]
Legend: Administrators, Global moderators
Statistics
Total posts 3935 • Total topics 629 • Total members 2039 • Our newest member SBE15