What is the impact of MDS on your family?

A person’s health condition has a huge impact on the quality of life of the person, but also on their partner and family members. This impact has been largely ignored.

Researchers at Cardiff University have created a questionnaire, the Family Reported Outcome Measure (FROM-16), to assess this impact.

This questionnaire needs further testing and this can only be achieved with the help of people such as yourself.

The researchers hope this information will:

  • encourage improved patient and family care
  • help clinicians choose treatments that are better for the needs of the patient and family members.

Please help them by completing this short questionnaire. All answers will be kept anonymous and it only takes 5-minutes to complete!


The survey has two sections:

  • The first part is to be completed by the person living with a health condition.
  • The second part is to be completed by that person’s partner or family member.

It is important that both sections are completed.  Only people aged 18 years or over can take part in this study.

A big thank you from the research team at Cardiff University.

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