BEGIN:VCALENDAR VERSION:2.0 PRODID:-//MDS UK Patient Support Group - ECPv6.14.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:MDS UK Patient Support Group X-ORIGINAL-URL:https://mdspatientsupport.org.uk X-WR-CALDESC:Events for MDS UK Patient Support Group REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20200329T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20201025T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20210328T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20211031T010000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=Europe/London:20210625T103000 DTEND;TZID=Europe/London:20210625T123000 DTSTAMP:20260420T040014 CREATED:20210525T114705Z LAST-MODIFIED:20210607T100454Z UID:31162-1624617000-1624624200@mdspatientsupport.org.uk SUMMARY:NATIONWIDE MDS ZOOM CAFÉ – 25/06/2021 DESCRIPTION:Welcome to our informal online group meeting “MDS Zoom Café”! \nWhen:   Friday\, June 25th\, 10.30 am – 12.30 pm\nWhere:   Virtual Zoom Call \nRegister today for this meeting by clicking on link below:\nhttps://us02web.zoom.us/meeting/register/tZ0vf-6grToiGdQwJxQOqKowRVuoN4Si2Lts\n \nOur Zoom Cafe is split into 2 sections:\n1 – An MDS chat\, with speakers when possible\, and session lasting 45min.\nParticipants are encouraged to talk about MDS issues\, raise questions and share clinical care and treatment experiences.\nFrom 10.30 until 11.15 \n2 – A general chat – to talk about life\, activities\, enjoyable times to lift one’s spirits. Session lasting 90min.\nMDS is the thing everyone has in common and understands\, but it is not the main topic of conversation!\nFrom 11.15 until 12.30 \n\n\n\n\n \n \n \n Register to take part! \n \n \n\n\n\n\n After registering\, you will receive a confirmation email containing information about joining the meeting. \nWe hope to see many of you online!! URL:https://mdspatientsupport.org.uk/event/nationwide-mds-zoom-cafe-25-06-2021/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/06/MDS-Zoom-Cafe-logo.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210622T110000 DTEND;TZID=Europe/London:20210622T130000 DTSTAMP:20260420T040014 CREATED:20210621T145508Z LAST-MODIFIED:20210621T145811Z UID:31337-1624359600-1624366800@mdspatientsupport.org.uk SUMMARY:Scotland Patient Meeting – Online – 22/06/21 DESCRIPTION:SCOTLAND MDS SUPPORT GROUP MEETING\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nYou can also log in to online groups by telephone! Just register online\, and we will email you the login telephone number to call\, and passcode. \nRegister soon please\, as this will be a large meeting and a great opportunity to meet new people. \nWhen:    Tuesday\, 22nd June\, 11am-1pm\nWhere:   Virtual Zoom Call \nRegister in advance for this meeting by clicking on link below:\nhttps://us02web.zoom.us/meeting/register/tZ0vce2sqjMrHNS4Gzn790bVPaGnNnEzLMcn \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \n\n\n\n\n \n \n \n Register to take part in this meeting \n \n \n\n\n\n\nIt doesn’t seem likely that we shall be able to resume face-to-face meetings for a while yet. These Zoom meetings provide you with all the regular news about MDS\, as well as give you an opportunity to connect to one another virtually. We know how important patient to patient contact is for everyone. \nMany patients have already embraced the video meeting call technology Zoom (or something similar) in order to stay in touch with family members during the lockdown. \nIf you are a first time user of video call – please don’t worry. The first 15 minutes of each meeting will be set aside to sort out any technical issues. \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\n\nMDS UK Main Office \n\n\n\n\n\n\n\n\ninfo@mdspatientsupport.org.uk \n\n\n\n\n\n\n\n\n0207 733 7558 URL:https://mdspatientsupport.org.uk/event/scotland-patient-meeting-online-22-06-21/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/05/Patient-meetings-e1662291966447.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210611T103000 DTEND;TZID=Europe/London:20210611T123000 DTSTAMP:20260420T040014 CREATED:20210527T114207Z LAST-MODIFIED:20210527T114207Z UID:31192-1623407400-1623414600@mdspatientsupport.org.uk SUMMARY:Oxford & Anglia Local Patient Meeting - Online - 11/06/21 DESCRIPTION:OXFORD & ANGLIA REGION MDS SUPPORT GROUP MEETING\nAll MDS UK Members nationwide welcome to attend\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nWhen:     Friday\, 11th June 2021\, 10.30 am – 12.30 pm\nWhere:   Virtual Zoom Call \nA meeting for mutual support and discussion on the impact of MDS on our lives\, including a\nPresentation on the outcome of recent Research Priorities workshops with MDS patients \nSpeaker: Dr Catriona Gilmour Hamilton \nHaematology Quality Manager:\nPatient Experience and Engagement\, Oxford Blood Group\nPPI Co-ordinator at the Churchill Hospital \nRegister in advance for this meeting by clicking on link below:\nhttps://us02web.zoom.us/meeting/register/tZYscu-hrj4jG9OVNeOrHjoejiOz2mx5SkK5\n \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \n\n\n\n\n \n \n \n Register to take part in the Oxford & Anglia Local Patient Meeting \n \n \n\n\n\n\nIt doesn’t seem likely that we shall be able to resume face-to-face meetings for a while yet. \nWe still want to maintain our services to you\, and provide you with all the regular news about MDS\, as well as giving you an opportunity to connect to one another virtually. We know how important patient to patient contact is for everyone. \nWhatever happens during and after the COVID-19 pandemic\, we aim to maintain some virtual meetings\, as it has attracted new members\, who had not attending face to face meetings previously. \nMany patients have already embraced the video meeting call technology Zoom (or something similar) in order to stay in touch with family members during the lockdown. \nIf you haven’t\, please contact us. Please also see our guidance on how to use Zoom. If you are a first time user of video call – please don’t worry. The first 15 minutes of each meeting will be set aside to sort out any technical issues. \n\n\n\n\n\n\nIf you have never contacted MDS UK\, please contact us to receive a full Patient Information Pack\n\n\n\n\nOxford Group \n\n\nMDS UK Main Office \n\n\n\n\noxfordgroup@mdspatientsupport.org.uk \n\n\nadmin1@mdspatientsupport.org.uk \n\n\n\n\n\n\n\n0207 733 7558 \n\n\n\n\n  \n  URL:https://mdspatientsupport.org.uk/event/oxford-anglia-local-patient-meeting-online-11-06-21/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/05/Patient-meetings-e1662291966447.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210608T103000 DTEND;TZID=Europe/London:20210608T123000 DTSTAMP:20260420T040014 CREATED:20210304T121005Z LAST-MODIFIED:20210304T121005Z UID:30543-1623148200-1623155400@mdspatientsupport.org.uk SUMMARY:Ireland and Northern Ireland Regional Patient Meeting – Online – 08/06/21 DESCRIPTION:IRELAND & NORTHERN IRELAND MDS SUPPORT GROUP MEETING\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nYou can also log in to online groups by telephone! Just register online\, and we will email you the login telephone number to call\, and passcode. \nRegister soon please\, as this will be a large meeting and a great opportunity to meet new people. \nWhen:     Wednesday\, Tuesday 8th June 10.30-12.30pm\nWhere:   Virtual Zoom Call \nAgenda: \n\nTo be confirmed\n\nRegister in advance for this meeting by clicking on link below:\nhttps://us02web.zoom.us/meeting/register/tZUkcuyvrTwsE9GN5gcA8S9itZoEVENlXidv\nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \n\n\n\n\n \n \n \n Register to take part in this meeting \n \n \n\n\n\n\n It doesn’t seem likely that we shall be able to resume face-to-face meetings for a while yet. These Zoom meetings provide you with all the regular news about MDS\, as well as give you an opportunity to connect to one another virtually. We know how important patient to patient contact is for everyone. \nMany patients have already embraced the video meeting call technology Zoom (or something similar) in order to stay in touch with family members during the lockdown. \nIf you are a first time user of video call – please don’t worry. The first 15 minutes of each meeting will be set aside to sort out any technical issues. \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\n\nMDS UK Main Office \n\n\n\n\n\n\n\n\ninfo@mdspatientsupport.org.uk \n\n\n\n\n\n\n\n\n0207 733 7558 URL:https://mdspatientsupport.org.uk/event/ireland-and-northern-ireland-regional-patient-meeting-online-08-06-21/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210607T130000 DTEND;TZID=Europe/London:20210607T150000 DTSTAMP:20260420T040014 CREATED:20210525T114211Z LAST-MODIFIED:20210607T095645Z UID:31159-1623070800-1623078000@mdspatientsupport.org.uk SUMMARY:NATIONWIDE MDS ZOOM CAFÉ – 07/06/2021 DESCRIPTION:Welcome to our informal online group meeting “MDS Zoom Café”! \nWhen:   Monday\, June 7th\, 13.00 pm – 15.00 pm\nWhere:   Virtual Zoom Call \nRegister today for this meeting by clicking on link below:\nhttps://us02web.zoom.us/meeting/register/tZMocOCrqjojE9A49F5CrFsQjDUkFLLhKFfB\n \nOur Zoom Cafe is split into 2 sections:\n1 – An MDS chat\, with speakers when possible\, and session lasting 45min.\nParticipants are encouraged to talk about MDS issues\, raise questions and share clinical care and treatment experiences.\nFrom 13.00 until 13.45 \n2 – A general chat – to talk about life\, activities\, enjoyable times to lift one’s spirits. Session lasting 90min.\nMDS is the thing everyone has in common and understands\, but it is not the main topic of conversation!\nFrom 13.45 until 15.00 \n\n\n\n\n \n \n \n Register to take part! \n \n \n\n\n\n\n After registering\, you will receive a confirmation email containing information about joining the meeting. \nWe hope to see many of you online!! URL:https://mdspatientsupport.org.uk/event/nationwide-mds-zoom-cafe-07-06-2021/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/06/MDS-Zoom-Cafe-logo.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210601T080000 DTEND;TZID=Europe/London:20210606T170000 DTSTAMP:20260420T040014 CREATED:20210603T135455Z LAST-MODIFIED:20210604T060348Z UID:31233-1622534400-1622998800@mdspatientsupport.org.uk SUMMARY:Henry and Brett 3-peaks in 5 days in support of MDS UK! DESCRIPTION:UPDATED 04-06-2021: BREAKING NEWS: HENRY AND BRETT GOT TO THE TOP OF BEN NEVIS!\nBrett sent to us yesterday night this moving message: \nJust finished Ben Nevis\, here are some pics.\nWe’ve hit £1000\, which is amazing. \nSUPPORT HENRY AND BRETT TODAY! PLEASE DONATE ON THIS JUSTGIVING PAGE \nHenry and Brett are climbing the 3 tallest peaks in the UK over 5 days\, starting with Snowdon before travelling onto Scafell Pike and finishing with Ben Nevis\, climbing over 11\,000 feet in the process.. \nBoth climbers were dear friends of Gavin Hepburn\, who passed away from MDS 5 years ago. \nFor those of you who did not know Gavin\, follow this link to read Gavin and his family story. \nWe thank Henry and Brett profusely for remembering Gavin this way and for never stopping to raise awareness and funds for MDS. \nGood luck to both! \nMDS UK \n\n\n\n\n\n\n\n\n \n \n\n\n\n\n \n \n\n\n\n\n\n\n \n \n\n\n\n\n \n \n\n\n\n\n\n\n\n \n \n \n Support Henry and Brett and help them raise funds for MDS UK! \n \n \n\n\n\n\n Brett says: \nHenry and I are climbing the 3 tallest peaks in the UK over 5 days\, starting with Snowdon before travelling onto Scafell Pike  and finishing with Ben Nevis\, climbing over 11\,000 feet in the process. \nWe’ve been training by traipsing up and down the largest hills in Surrey and Sussex over the last year (when Covid restrictions have allowed us) which has given us plenty of time to discuss which charity we would like to support. \nIn truth it took us only minutes to decide we wanted to support the MDS UK patient support group. A little over 5 years ago we lost our dear friend Gavin Hepburn to MDS\, a tragic loss that impacted us both. \nHere are some pics from Scarfell Pike\, top middle. Fundraising is going really well\, and lots of people are asking us about the charity! \nI’ll mail you again with (hopefully!) some pics from Ben Nevis!! \n\n\n\n\n\n\n\n\n\n \n \n\n\n\n\n \n \n\n\n\n\n\n\n \n \n\n\n\n\n \n \n\n\n\n\n\n\n\n \n \n \n Support Henry and Brett and help them raise funds for MDS UK! \n \n \n\n\n\n\n A BIG THANK YOU to Henry and Brett for putting such brilliant efforts to raise funds and awareness of MDS. \nToday\, more than ever\, we need generous people like them\, to help us assist future MDS patients and their families. URL:https://mdspatientsupport.org.uk/event/henry-and-brett-3-peaks-5-days/ LOCATION:Ben Nevis\, Fort William PH33 6SQ\, United Kingdom\, PH33 6SQ\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/06/20210601_111152-1.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210528T130000 DTEND;TZID=Europe/London:20210528T150000 DTSTAMP:20260420T040014 CREATED:20210524T153601Z LAST-MODIFIED:20210524T153601Z UID:31153-1622206800-1622214000@mdspatientsupport.org.uk SUMMARY:NATIONWIDE MDS ZOOM CAFÉ – 28/05/2021 DESCRIPTION:Welcome to our informal online group meeting “MDS Zoom Café”! \nWhen:    Friday 28th May  13.00 pm – 15.00 pm\nWhere:   Virtual Zoom Call \nRegister today for this meeting by clicking on link below:\nhttps://us02web.zoom.us/meeting/register/tZ0pd-ugrj0qGdS3D2gGNPn1DCzE8q7dAnGa\n \nOur Zoom Cafe is split into 2 sections:\n1 – An MDS chat\, with speakers when possible\, and session lasting 45min.\nParticipants are encouraged to talk about MDS issues\, raise questions and share clinical care and treatment experiences.\nFrom 13.00 until 13.45 \n2 – A general chat – to talk about life\, activities\, enjoyable times to lift one’s spirits. Session lasting 90min.\nMDS is the thing everyone has in common and understands\, but it is not the main topic of conversation!\nFrom 13.45 until 15.00 \n\n\n\n\n \n \n \n Register to take part! \n \n \n\n\n\n\n After registering\, you will receive a confirmation email containing information about joining the meeting. \nWe hope to see many of you online!! URL:https://mdspatientsupport.org.uk/event/nationwide-mds-zoom-cafe-28-05-2021/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/01/Xmas_MDS_ZOOM_CAFE2020-e1670856202551.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210514T110000 DTEND;TZID=Europe/London:20210514T123000 DTSTAMP:20260420T040014 CREATED:20210427T130617Z LAST-MODIFIED:20210427T131926Z UID:31026-1620990000-1620995400@mdspatientsupport.org.uk SUMMARY:Essex\, Kent and Anglia Region Patient Meeting – Online – 14/05/21 DESCRIPTION:ESSEX\, KENT AND ANGLIA REGION MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nWhen:     Friday\, 14th May 2021\, 11.00 am – 12.30 pm\nWhere:   Virtual Zoom Call \nWe welcome MDS patients and their caregivers to this meeting. People from outside of these areas are also welcome to join us and especially any new members who have been recently diagnosed with MDS. \nThe meeting is for mutual support and discussion on the impact of MDS on our lives. \nRegister in advance for this meeting by clicking on link below:\nhttps://us02web.zoom.us/meeting/register/tZEudu6pqz4vEtY70vLdoBJMJqT11GAfpzn5 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \n\n\n\n \n \n \n Register to take part in the Essex\, Kent and Anglia Region Local Patient Meeting \n \n \n\n\n\n\nIt doesn’t seem likely that we shall be able to resume face-to-face meetings for a while yet. \nWe still want to maintain our services to you\, and provide you with all the regular news about MDS\, as well as giving you an opportunity to connect to one another virtually. We know how important patient to patient contact is for everyone. \nWhatever happens during and after the COVID-19 pandemic\, we aim to maintain some virtual meetings\, as it has attracted new members\, who had not attending face to face meetings previously. \nMany patients have already embraced the video meeting call technology Zoom (or something similar) in order to stay in touch with family members during the lockdown. \nIf you haven’t\, please contact us. Please also see our guidance on how to use Zoom. If you are a first time user of video call – please don’t worry. The first 15 minutes of each meeting will be set aside to sort out any technical issues. \n\n\n\n\n\n\n\n\n\n\n MDS UK Main Office\n0207 733 7558\ninfo@mdspatientsupport.org.uk\n\n\n\n\n\n\n\n\n Christine Dugmore\n01702 478244\nessexgroup@mdspatientsupport.org.uk URL:https://mdspatientsupport.org.uk/event/essex-and-anglia-region-local-patient-meeting-online-14-05-21/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210501T080000 DTEND;TZID=Europe/London:20210531T170000 DTSTAMP:20260420T040014 CREATED:20210421T105317Z LAST-MODIFIED:20210421T105819Z UID:30958-1619856000-1622480400@mdspatientsupport.org.uk SUMMARY:Join 5K May and do your 5K for MDS UK! DESCRIPTION:WHAT IS 5K MAY? \nOne month of coming together for better! \nYou can do your 5K anywhere\, anytime with anyone. You can run\, roll\, walk\, cycle or even swim if you want to… It’s about getting out and feeling good while doing it. \nHOW TO TAKE PART? \nThis month we’ve teamed up with Run For Heroes\, to bring you #5kMay! \nParticipate in a 5k during May and donate £5 to us! \n\nAnytime between 1st – 31st May\, participate in a 5k (run\, roll\, walk\, cycle\, hop\, socially distanced of course!)\nDonate £5 to MDS UK on our 5k JustGivingPage\nNominate 5 of your friends to take part too\, remembering to tag us so we can share!\nOnce you’ve donated £5 you’ll unlock a goodie bag packed full of rewards and treats from some epic brands!\nGet involved as a team!\n\nWhy not mobilise your school\, colleagues or sports club to get involved too? It’s the perfect opportunity to get a group together (virtually of course) and encourage them to take part in a 5k too! \nIf you’d like to get involved in 5kMay\, either by yourself or with a team\, please sign up for the event on our 5k JustGivingPage \nThanks so much for your support\, \nMDS UK \n\n\n\n\n \n \n \n Join our JustGiving 5K May Campaign! \n \n \n\n\n\n\n\n\n\n \n \n\n\n\n\n\n\n \n \n\n\n\n\n\n\n\n \n \n \n Join our JustGiving 5K May Campaign! URL:https://mdspatientsupport.org.uk/event/join-5k-may-and-do-your-5k-for-mds-uk/ CATEGORIES:Fundraising ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/04/Illustrated-participants-06.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20210501 DTEND;VALUE=DATE:20210502 DTSTAMP:20260420T040014 CREATED:20210414T163507Z LAST-MODIFIED:20210520T154129Z UID:30896-1619827200-1619913599@mdspatientsupport.org.uk SUMMARY:After harsh chemo and a stem cell transplant\, Paula walked from Crewe to Nantwich for MDS UK! DESCRIPTION:Paula Taylor\, a brave MDS patient\, walked from Crewe to Nantwich with her family and friends to raise vital funds for MDS UK! Paula told us: \nIt took us around 6 hours. We did stop a few times though and celebrated with Prosecco and strawberries. \nPaula has surpassed her target and has raised £610 so far! You can still go to Paula JustGiving page and donate: \n\n\n\n\n \n \n \n Please Donate on Paula's JustGiving Page \n \n \n\n\n\n\nSOME HIGHLIGHTS OF THE LOVELY WALK: \n\n\n\n\n\n\n\n\n\n \n \n\n\n\n\n\n\n \n \n\n\n\n\n\n\n \n \n\n\n\n\n\n\n\n\n\n Paula is a school teacher. She was diagnosed with MDS in August 2019 after collapsing in school. After many blood transfusions\, the hospital told her the best treatment would be a stem cell transplant. \nPaula told us: \n \n“I was diagnosed with MDS in August 2019 and had a stem cell transplant in December. \nI was so scared\, I had never heard of it before and didn’t know what would happen to me and I feared for my family. \nI underwent harsh chemo and my body was prepped to receive new stem cells from a young man in Germany…my hero! \nI’m lucky\, I was given the all clear in March 2020 and my bone marrow is now being used for research purposes. \nAnyway\, after being a total nightmare and being at an all time low\, I have decided to pick myself up\, dust myself off and do something to help other people out.” \n \n\n\n\n\n\n\n\n\n\n \n \n\n\n\n\n\n\n\n“I’ve had a dreadful couple of years as I had to isolate after my transplant and didn’t know if I’d be home for Christmas with my family. Then the pandemic started. \n“The one thing that struck me was how little everyone was aware of MDS\, so there wasn’t much help available. The hospital recommended MDS UK\, so I recently joined the Facebook group. \n“It’s amazing how it feels like such a community. I felt less lonely when talking to others with the disease and knew they felt supported and comforted when hearing my story. \n“I had the all clear in March but have seen first-hand how MDS UK helps. \nI hope to raise as much money as possible through my stroll so the charity can continue to help people.” \n\n\n\n\n\n\n\n\n \n \n \n Please Donate on Paula's JustGiving Page \n \n \n\n\n\n\nThank you so much Paula for deciding to help us in this way! You’re amazing! \nEvents like this are essential at a time where most of our fundraising events have been cancelled due to Covid19. \nIf you have a similar fundraising idea and would like to discuss it\, please contact us fundraising@mdspatientsupport.org.uk. \nTHIS IS JOSH\, PAULA’S LITTLE BOY\, IN HIS MDS T-SHIRT\, READY FOR THEIR WALK ON MAY 1ST!  URL:https://mdspatientsupport.org.uk/event/paula-walks-crewe-nantwich/ LOCATION:Crewe\, CW1\, United Kingdom CATEGORIES:Fundraising END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20210402 DTEND;VALUE=DATE:20210407 DTSTAMP:20260420T040014 CREATED:20210401T125703Z LAST-MODIFIED:20210401T151412Z UID:30784-1617321600-1617753599@mdspatientsupport.org.uk SUMMARY:MDS UK’s Easter Eggstravaganza DESCRIPTION:This past year has been particularly difficult for everyone involved with MDS UK\, as normal life has been put on pause while the country struggles with the pandemic. \nEaster is traditionally a great time to raise funds for charity as Winter comes to an end and jolly moods prevail following chocolate treats. \nLockdown is starting to ease for many people\, the weather is warming up\, and optimism is creeping back into our lives which for so long have been filled with hard news. \nThis year\, to replace the usual sporty big fundraising events\, we came up with a simple and friendly way to raise some funds and awareness for MDS UK\, while having fun with your friends and family for the first time in over a year! \n\n\n\n\n \n \n \n Donate or Fundraise on our JustGiving MDS UK's Easter Eggtravaganza Page \n \n \n\n\n\n \n \n\n\n\n\n\n There are 2 ways to get involved:\n1) An Easter egg hunt \n\nAn Easter egg hunt with your loved ones and ask for a £5 – £10 donation per participant.\nSend photos / videos to Jan at fundraising@mdspatientsupport.org.uk so he can upload them to this page.\nPost your pictures / videos onto our Facebook groups with a link to this page and ask people to sponsor you £5 – £10.\nDonate any cash donations from your Easter egg hunt onto the JustGiving page.\n\n2) An Easter selfie \n\nTake a selfie of yourself wearing your best / funniest Easter costume and post onto our Facebook page with the link to this page.\nOn the post\, ask people to donate £5 – £10 onto this page to support you.\nNominate a friend / family member to dress up in their costume and pay £1 per nomination onto this page.\nChange your Whatsapp / Facebook photo to your Easter picture. This will be sure to get you more supporters!\n\nThere will be a small prize for the best picture and best Easter egg hunt! \nMore details on both options is on the campaign our JustGiving Page\nBoth are accessible\, fun and sure to bring some laughter to you and your loved ones this Easter! \nIf you have any questions\, please contact Jan on fundraising@mdspatientsupport.org.uk \nWe hope to see as many of you taking part as possible! URL:https://mdspatientsupport.org.uk/event/mds-uks-easter-eggstravaganza/ LOCATION:Online CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/04/MDS-UKs-Easter-Eggtravaganza.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210401T080000 DTEND;TZID=Europe/London:20210430T170000 DTSTAMP:20260420T040014 CREATED:20210422T140146Z LAST-MODIFIED:20210422T140418Z UID:30976-1617264000-1619802000@mdspatientsupport.org.uk SUMMARY:Hannah Russell is running 75km in memory of her dear Gaga DESCRIPTION:I decided to run 75km in the month of April for my gorgeous Gaga’s 75th birthday (which was on the 2nd April!) to raise money and awareness for MDS\, Dementia and Macmillan. \nMy Gaga was diagnosed with MDS (a type of blood cancer) five years ago and has had blood transfusions every 3-4 weeks since. At the end of 2020\, after a year of poor health\, she was also diagnosed with Vascular Dementia and Alzheimers. \nUnfortunately\, she was admitted to hospital at the beginning of February and sadly she passed away on the 7th April\, just 5 days after her birthday. \n\n\n\n \n \n \n Support Hannah and help her raise funds for MDS UK! \n \n \n\n\n\n\nHanna says: \n\nMy Gaga has been a huge part of my brother and I’s lives. She was the kindest person I have EVER met and deserved so much more than these cruel illnesses. She loved nothing more than being with her family and never shied away from telling us how proud she was of us. \nI know Dementia and Alzheimers affect so many people\, and MDS is a horrible disease with little research so I would be grateful for any and all donations ? \n\n\n\n\n\n \n \n \n Support Hannah and help her raise funds for MDS UK! \n \n \n\n\n\n\n\n\n\n\n A BIG THANK YOU to Hannah for putting such brilliant efforts into this fundraiser that is benefitting MDS UK\, as well as another 2 charities. \nWe thank her not only for the fundraising\, but also the fabulous awareness of MDS it is generating. \nMore than ever\, due to Covid – we need generous people like Hannah\, to help us assist future MDS patients and their families. URL:https://mdspatientsupport.org.uk/event/hannah-russell-is-running-75km/ CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/04/Gray-and-White-Simple-Wedding-Thank-You-Card.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210401T080000 DTEND;TZID=Europe/London:20210430T170000 DTSTAMP:20260420T040014 CREATED:20210408T170458Z LAST-MODIFIED:20210408T170733Z UID:30806-1617264000-1619802000@mdspatientsupport.org.uk SUMMARY:Patsy\, Carmel and Jacquie One Million Step Challenge in April for MDS UK DESCRIPTION:Patsy\, Carmel\, Jacquie are planning to walk *One Million Steps* in April for MDS UK. It is a huge task. But\, Patsy and her friends are determined to complete it! They can do it!\n\n\n\n \n \n \n Support Patsy\, Carmel and Jacquie and help them raise funds for MDS UK! \n \n \n\n\n\n\nPatsy says: “We are raising awareness for MDS UK because the charity needs support & recognition worldwide” \nFollow Patsy’s daily walks on Strava: https://www.strava.com/activities/5079349176 \n\n\n\n\n\n\n\n\n\n\n To donate to Patsy\, Carmel and Jacquie visit their JustGiving page on: https://www.justgiving.com/fundraising/patsy-shorter1. Please support with as much as you can! \nMDS UK would like to say a huge thank you to these team of amazing generous people and everyone who supports them! These events are crucial to us in these challenging times. URL:https://mdspatientsupport.org.uk/event/patsy-carmel-jacquie-one-million-step-for-mds-uk/ LOCATION:UK\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/04/Patsy.jpeg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210325T150000 DTEND;TZID=Europe/London:20210325T170000 DTSTAMP:20260420T040014 CREATED:20210304T120421Z LAST-MODIFIED:20210318T223413Z UID:30540-1616684400-1616691600@mdspatientsupport.org.uk SUMMARY:Nationwide Patient Meeting – Online – 25/03/21 DESCRIPTION:NATIONWIDE MDS SUPPORT GROUP MEETING\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nYou can also log in to online groups by telephone! Just register online\, and we will email you the login telephone number to call\, and passcode. \nRegister soon please\, as this will be a large meeting and a great opportunity to meet new people. \nWhen:     Wednesday\, Thursday 25th March 3-5pm 2021\, 15.00 pm – 17.00 pm\nWhere:   Virtual Zoom Call \nAgenda: \n\nTopic: Update on the PhD research project in MDS – funded by MDS UK\nSpeaker: Prof Ken Mills\, from Queen’s University of Belfast \nNote – This research project is of prime importance\, as it looks at using specific drugs on certain types of MDS who have a “DNA repair deficient MDS”. \nA highly interesting but complex topic\, which Prof Mills will aim to explain. \n\n\nRegister in advance for this meeting by clicking on link below:\nhttps://us02web.zoom.us/meeting/register/tZwuf-6tpzwqHdUU-2Fyhz5HLONZ5_kk6bhA\nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \n\n\n\n\n \n \n \n Register to take part in this meeting \n \n \n\n\n\n\n It doesn’t seem likely that we shall be able to resume face-to-face meetings for a while yet. These Zoom meetings provide you with all the regular news about MDS\, as well as give you an opportunity to connect to one another virtually. We know how important patient to patient contact is for everyone. \nMany patients have already embraced the video meeting call technology Zoom (or something similar) in order to stay in touch with family members during the lockdown. \nIf you are a first time user of video call – please don’t worry. The first 15 minutes of each meeting will be set aside to sort out any technical issues. \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\n\nMDS UK Main Office \n\n\n\n\n\n\n\n\ninfo@mdspatientsupport.org.uk \n\n\n\n\n\n\n\n\n0207 733 7558 URL:https://mdspatientsupport.org.uk/event/nationwide-patient-meeting-online-25-03-21/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210324T160000 DTEND;TZID=Europe/London:20210324T180000 DTSTAMP:20260420T040014 CREATED:20210317T100139Z LAST-MODIFIED:20210317T100233Z UID:30672-1616601600-1616608800@mdspatientsupport.org.uk SUMMARY:Cornwall\, Devon & Exeter MDS Patient Meeting – Online – 24/03/21 (open Nationwide) DESCRIPTION:CORNWALL\, DEVON & EXETER MDS SUPPORT GROUP MEETING- OPEN NATIONWIDE\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nJust register online\, and we will email you the login telephone number to call\, and passcode. Register soon please\, as this will be a big meeting and an opportunity to meet new people. \nWhen:     Wednesday\, 24th March 2021\, 16.00 pm – 18.00 pm\nWhere:   Virtual Zoom Call\nGuest Speaker: Dr Tom Coats\, Haematology Consultant at the Royal Devon & Exeter NHS Foundation Trust \nRegister in advance for this meeting by clicking on link below:\nhttps://us02web.zoom.us/meeting/register/tZwsfuqqpzsoGdDM-BArx2z1yddGXF3cUYDy \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.\n\n\n\n\n \n \n \n Register to take part in this Patient Meeting \n \n \n\n\n\n\n These Zoom meetings provide you with all the regular news about MDS\, as well as give you an opportunity to connect to one another virtually. We know how important patient to patient contact is for everyone. \nMany patients have already embraced the video meeting call technology Zoom (or something similar) in order to stay in touch with family members during the lockdown. \nIf you haven’t\, please contact us. Please also see our guidance on how to use Zoom. If you are a first time user of video call – please don’t worry. The first 15 minutes of each meeting will be set aside to sort out any technical issues. \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \nMDS UK Main Office – 0207 733 7558 – info@mdspatientsupport.org.uk URL:https://mdspatientsupport.org.uk/event/cornwal-devon-exeter-meeting-24-03/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210320T160000 DTEND;TZID=Europe/London:20210320T173000 DTSTAMP:20260420T040014 CREATED:20210225T094301Z LAST-MODIFIED:20210225T094301Z UID:30487-1616256000-1616261400@mdspatientsupport.org.uk SUMMARY:MDS & COVID-19 Vaccines - Online Webinar - 20 March 2021 DESCRIPTION:Our colleagues from the MDS Foundation are offering an online Webinar for MDS Patients & Caregivers on MDS & COVID-19 Vaccines\, to take place on Saturday March 20\, 2021 at 16:00 UK Time. \nThis webinar will provide an overview of COVID-19 and myelodysplastic syndromes including frequently asked questions. The latest COVID-19 vaccines and what they mean for those with bone marrow failure disorders will be discussed. \nGUEST SPEAKERS: Peter T. Curtin\, MD and Randy A. Taplitz\, MD; City of Hope Medical Center\n\n\n\n\n \n \n \n Register to take part in this webinar \n \n \n\n\n\n\nAgenda:\n– Welcome and introductions\n– Presentations\n– Live Q&A with Peter T. Curtin\, MD\, and Randy A. Taplitz\, MD\, City of Hope Comprehensive Cancer Center URL:https://mdspatientsupport.org.uk/event/mds-covid-online-webinar-20-03/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/02/mds-foundation-logo.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210319T150000 DTEND;TZID=Europe/London:20210319T170000 DTSTAMP:20260420T040014 CREATED:20210128T132443Z LAST-MODIFIED:20210318T222353Z UID:30317-1616166000-1616173200@mdspatientsupport.org.uk SUMMARY:Nationwide MDS Patient Support Meeting 19/03/2021 DESCRIPTION:NATIONWIDE MDS SUPPORT GROUP MEETING\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nWhen:     Friday 19th March 2021 – 15.00 am – 17.00 pm\nWhere:   Virtual Zoom Call \nAgenda: \n\n1 – Efficacy of Covid-19 vaccines in blood cancer\, including MDS\nSpeaker – Dr Austin Kulasekararaj\, Consultant Haematologist at King’s College Hospital\, London \n\nDe-Iron Clinical Trial – Recruitment challenges and patient engagement. A trial about iron chelation in transfusion dependant MDS patients.\nDate of next meeting\n\nGuest Speaker:\nHelen Chantal Coulthard – Trial Coordinator – Cancer Research UK Clinical Trials Unit – University of Birmingham \nRegister in advance for this meeting by clicking on link below:\n \nhttps://us02web.zoom.us/meeting/register/tZYofu6trDgsGtaBWz3QyhPZ15GcUWf9L24F \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \n\n\n\n\n \n \n \n Register to take part in this London Support Meeting \n \n \n\n\n\n\n\nFURTHER INFORMATION \nMDS UK Main Office – 0207 733 7558\nadmin1@mdspatientsupport.org.uk – info@mdspatientsupport.org.uk URL:https://mdspatientsupport.org.uk/event/nationwide-mds-patient-support-meeting-19-03-2021/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210315T140000 DTEND;TZID=Europe/London:20210315T163000 DTSTAMP:20260420T040014 CREATED:20210225T104132Z LAST-MODIFIED:20210225T104132Z UID:30493-1615816800-1615825800@mdspatientsupport.org.uk SUMMARY:MDS Research: What are your priorities? Take part in an online event DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n\n\n \n \n \n Please contact Dr Catriona Gilmour for more information \n \n \n\n\n\n\nHOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you’d like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited. URL:https://mdspatientsupport.org.uk/event/mds-research-what-are-your-priorities-take-part-in-an-online-event/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/02/Priority-Setting-MDS-flyer.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210311T190000 DTEND;TZID=Europe/London:20210311T190000 DTSTAMP:20260420T040014 CREATED:20210217T135736Z LAST-MODIFIED:20210310T130110Z UID:30440-1615489200-1615489200@mdspatientsupport.org.uk SUMMARY:Twice a refugee\, by Ron Holder - Book Club Evening - 11/03 - 19:00pm DESCRIPTION:IF YOU ENJOY BOOKS ON LIFE EVENTS\, SOCIAL HISTORY\, TRAVELLING – THIS IS FOR YOU\nOur charity\, MDS UK Patient Support Group\, is delighted to host a unique evening dedicated to author Ron Holder’s book ‘Twice a Refugee’\, which he finished writing before sadly passing away from a rarer form of blood cancer. \nAll audiences welcome\, not just those connected to MDS. \n\n\n\n\n \n \n \n Register to take part in this very special Book Club evening \n \n \n\n\n\n\n\n\n\n \n \n\n\n\n\n\n\n \n \n\n\n\n\n\n\n\n\nListen to these two excerpts of Ron Holder's "Twice a Refugee"\n\nThis 1st reading from Ron’s book describes his elation on the last day of his school life\, after being in a boarding school since the age of 4 ½ years of age. \nThis 2nd reading is a very powerful account of just one of the atrocities that Ron witnessed during his escape from the Belgium Congo on his Lambretta. It also details that he could not save others\, and was fearful for his own life. It was down to his prowess in Swahili and the local dialect of Kebembi which no doubt saved his life. \n\n\n\n\n\n\n\n\nhttps://mdspatientsupport.org.uk/wp-content/uploads/2021/02/Sophie-first-extract.mp3\n\n\nhttps://mdspatientsupport.org.uk/wp-content/uploads/2021/02/Sophie-extract-2.mp3\n\n\n\n\n\n\n\nChris Lawrence\, who was instrumental in encouraging Ron to write his life story\, will be presenting the book\, and talking about Ron’s incredible journey through life. \nChris Lawrence is a personal friend of Ron and Lin Holder. She was privileged to read the very first draft of Ron’s amazing story some years ago. \nThis real ‘life story’ is now captured for us all to enjoy in Twice a Refugee. \nChris was involved in proof reading and editing the book with Ron and Lin and is very enthusiastic about sharing Ron’s work\, and legacy for MDS UK\, with a much wider audience. \nChris is a Teacher Educator at Canterbury Christ Church University working with trainee teachers in special education in schools and colleges. \nA very unique opportunity\, which will hopefully entice many future readers. \n\n\n\n\n \n \n \n Register to take part in this very special Book Club evening \n \n \n\n\n\n\nMDS UK is the charity supporting patients and families diagnosed with the blood cancer Myelodysplastic Syndromes. As per Ron’s wishes and his wife Lin’s\, the sale of every book will benefit the charity. \nWe hope you’ll enjoy the evening\, buy the book\, and recommend it to many others. \nWhen:    Thursday Mar 11\, 19:00 pm\nWhere:   Virtual Zoom Call. Please register in advance: https://us02web.zoom.us/meeting/register/tZAkdO-vqzsoHtP6NgMAsMn1OLEC1V2NO9Hm \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. Any queries about the evening\, or to order the book\, please email kentgroup@mdspatientsupport.org.uk \nPLEASE SHARE THIS EVENT WIDELY AMONGST FRIENDS\, COLLEAGUES\, NEIGHBOURS\, WORLDWIDE \nThank you so much\, MDS UK \n\n\n\n\n\n\n\n“Twice A Refugee”\, an extraordinary book by Ron Holder\, tells his gripping\, factual account of being a refugee twice in his life. \nRon was born to devout Christian missionary parents in China during WWII. The family fled the advancing Japanese army\, arriving in India as refugees. Placed in a boarding school at age just 4 1/2 so his parents could continue their missionary work in China\, his childhood became one of bitterness and resentment. \nAt just 15\, Ron was taken to The Belgian Congo following his parents’ religious devotion and commitment. 4 years of adventure\, which culminated in The Congo’s Independence and its descent into civil war\, resulted in Ron becoming a refugee again. \n\n\n\n\n\n\n\n\n\n\n\n  \n\n\n\nMDS UK Patient Support Group Main Office\n\n\nadmin1@mdspatientsupport.org.uk / info@mdspatientsupport.org.uk\n\n\n\n0207 733 7558 URL:https://mdspatientsupport.org.uk/event/twice-a-refugee-book-club/ LOCATION:Online CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/01/IMG-20190915-WA0001.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210308T103000 DTEND;TZID=Europe/London:20210308T123000 DTSTAMP:20260420T040014 CREATED:20210120T125806Z LAST-MODIFIED:20210217T090425Z UID:30270-1615199400-1615206600@mdspatientsupport.org.uk SUMMARY:Scotland Patient Meeting – Online – 08/03/21 DESCRIPTION:SCOTLAND MDS SUPPORT GROUP MEETING\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nYou can also log in to online groups by telephone! Just register online\, and we will email you the login telephone number to call\, and passcode. \nRegister soon please\, as this will be a large meeting and a great opportunity to meet new people. \nWhen:     Monday\, 8th March 2021\, 10.30 am – 12.30 pm\nWhere:   Virtual Zoom Call \nRegister in advance for this meeting by clicking on link below:\nhttps://us02web.zoom.us/meeting/register/tZElcOmvqzgoGdZJRQ60iRsHBJf551o0O9ZF \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \n\n\n\n\n \n \n \n Register to take part in this meeting \n \n \n\n\n\n\n It doesn’t seem likely that we shall be able to resume face-to-face meetings for a while yet. These Zoom meetings provide you with all the regular news about MDS\, as well as give you an opportunity to connect to one another virtually. We know how important patient to patient contact is for everyone. \nMany patients have already embraced the video meeting call technology Zoom (or something similar) in order to stay in touch with family members during the lockdown. \nIf you are a first time user of video call – please don’t worry. The first 15 minutes of each meeting will be set aside to sort out any technical issues. \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\n\nMDS UK Main Office \n\n\n\n\n\n\n\n\ninfo@mdspatientsupport.org.uk \n\n\n\n\n\n\n\n\n0207 733 7558 URL:https://mdspatientsupport.org.uk/event/scotland-patient-meeting-online-08-03-21/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210305T103000 DTEND;TZID=Europe/London:20210305T123000 DTSTAMP:20260420T040014 CREATED:20210120T154302Z LAST-MODIFIED:20210223T123518Z UID:30279-1614940200-1614947400@mdspatientsupport.org.uk SUMMARY:Oxford Region & Nationwide MDS Support Group Meeting – 05/03/2021 DESCRIPTION:OXFORD & ANGLIA REGION AND NATIONWIDE MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nWhen:    Friday\, 5th March 2021 – 10.30 am – 12.30 pm\nWhere:   Virtual Zoom Call\nGuest Speaker: Professor Paresh Vyas and CNS Kirsty Crozier \nAgenda:\n• Initial Meeting introductions\n• Q&A session\n• Group discussion\n• Date of next meeting \nFor more information or to confirm your attendance please contact Claudia Richards\, Group Co-ordinator (07979 250563). \nRegister in advance for this meeting by clicking on link below:\nhttps://us02web.zoom.us/meeting/register/tZwkde2rqDsqHdS8KlYHYNcg77VVSU-cQcBa\nAfter registering\, you will receive a confirmation email containing information about joining the meeting.\n\n\n\n \n \n \n Click here to register and take part in this Online Meeting \n \n \n\n\n\n\nIt doesn’t seem likely that we shall be able to resume face-to-face meetings for a while yet. \nWe still want to maintain our services to you\, and provide you with all the regular news about MDS\, as well as giving you an opportunity to connect to one another virtually. We know how important patient to patient contact is for everyone. \nWhatever happens during and after the COVID-19 pandemic\, we aim to maintain some virtual meetings\, as it has attracted new members\, who had not attending face to face meetings previously. \nMany patients have already embraced the video meeting call technology Zoom (or something similar) in order to stay in touch with family members during the lockdown. \nIf you haven’t\, please contact us. If you are a first time user of video call – please don’t worry. The first 15 minutes of each meeting will be set aside to sort out any technical issues. \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\n\nClaudia Richards \n\n\nMDS UK Main Office \n\n\n\n\noxfordgroup@mdspatientsupport.org.uk \n\n\nadmin1@mdspatientsupport.org.uk \n\n\n\n\n07979 250563 \n\n\n0207 733 7558 URL:https://mdspatientsupport.org.uk/event/oxford-anglia-region-mds-support-group-meeting-05-03-2021/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210301T080000 DTEND;TZID=Europe/London:20210401T170000 DTSTAMP:20260420T040014 CREATED:20210301T155235Z LAST-MODIFIED:20210301T155751Z UID:30509-1614585600-1617296400@mdspatientsupport.org.uk SUMMARY:Christine is selling cards to raise money for MDS UK DESCRIPTION:Our dear Committee Member and MDS UK Essex Regional Support group coordinator Chris Dugmore is “selling” cards to raise funds to MDS UK. \nChris said to us: \nI have been given these cards to sell by a friend whose wife\, Lynn Tait\, a successful and well-loved local businesswoman\, sadly died a few years ago of myeloma\, a bone marrow cancer. Her business closed and her family kindly donated the remaining stock of cards to support charities. \nThe cards are 16 cm (just over 6″) square and printed on high quality card\, with envelopes. The subjects include landscapes\, floral close-ups\, painted scenes of a local fishing village and garden scenes featuring small children. Some of the photographs are by Lynn herself and some by Charlie Waite\, a renowned landscape photographer who worked closely with Lynn to produce these beautiful cards. \n\n\n\n\n\n\n\n\n\n \n \n\n\n\n\n\n\n \n \n\n\n\n\n\n\n\n\n\nMost of the cards are blank inside so can be used as greeting cards or notecards – though a few are birthday cards. I am selling them in “pot luck” mixed packs of 10 cards for £10 plus around £1.60 for 2nd class UK postage and packing. Cards of this quality for that price are hard to find in the shops! Some examples of the 40 different cards are posted in the gallery. \nBefore donating\, please contact me first at essexgroup@mdspatientsupport.org.uk to give me your contact details and I will send you clear instructions on how to donate. \nPlease use this page to make your minimum donation of £11.60 but feel free to round up the donation to benefit MDS UK! \n\n\n\n\n \n \n \n Please get in touch with Chris and click here to donate on her JustGiving page URL:https://mdspatientsupport.org.uk/event/chris-cards-to-raise-money/ LOCATION:Online CATEGORIES:Fundraising ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/03/boat_landscape.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210223T110000 DTEND;TZID=Europe/London:20210223T130000 DTSTAMP:20260420T040014 CREATED:20210217T084856Z LAST-MODIFIED:20210217T085442Z UID:30424-1614078000-1614085200@mdspatientsupport.org.uk SUMMARY:Wales Patient Meeting – Online – 23/02/21 DESCRIPTION:WALES MDS SUPPORT GROUP MEETING\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nYou can also log in to online groups by telephone! Just register online\, and we will email you the login telephone number to call\, and passcode. \nRegister soon please\, as this will be a large meeting and a great opportunity to meet new people. \nWhen:    Tuesday\, 23rd February 2021\, 11.00 am – 13.00 pm\nWhere:   Virtual Zoom Call\nAgenda: \n• Initial Meeting introductions\n• Q&A session\n• Group discussion\n• Date of next meeting \nRegister in advance for this meeting by clicking on link below:\nhttps://us02web.zoom.us/meeting/register/tZ0pdempqD8rHdcPE0OIiEeZm6Zhq6NbvS0p \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.\n\n\n\n \n \n \n Register to take part in this meeting \n \n \n\n\n\n\nIt doesn’t seem likely that we shall be able to resume face-to-face meetings for a while yet. These Zoom meetings provide you with all the regular news about MDS\, as well as give you an opportunity to connect to one another virtually. We know how important patient to patient contact is for everyone. \nMany patients have already embraced the video meeting call technology Zoom (or something similar) in order to stay in touch with family members during the lockdown. \nIf you are a first time user of video call – please don’t worry. The first 15 minutes of each meeting will be set aside to sort out any technical issues. \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\nUK Main Office\n\n\nadmin1@mdspatientsupport.org.uk / info@mdspatientsupport.org.uk\n\n\n\n0207 733 7558 URL:https://mdspatientsupport.org.uk/event/wales-patient-meeting-online-23-02-21/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210211T130000 DTEND;TZID=Europe/London:20210211T140000 DTSTAMP:20260420T040014 CREATED:20210203T165308Z LAST-MODIFIED:20210203T165308Z UID:30366-1613048400-1613052000@mdspatientsupport.org.uk SUMMARY:What does Brexit mean for cancer research? Online event 11/02/2021 DESCRIPTION:The National Cancer Research Institute is offering a free virtual event on Thursday\,  11 February 2021 from 1:00 pm to 2:00 pm on the impact of the Brexit deal on cancer research and innovation. \n\nChair: Professor Pamela Kearns\, The University of Birmingham\, UK\nSpeaker(s): Dr Sheuli Porkess\, Professor Richard Sullivan\, Mr Emlyn Samuel and Mr Jim Elliott\n\n\n\nHaving left the EU during a global pandemic with a deal\, the research and innovation landscape in the UK is set to change. \nSpeakers will address challenges and opportunities and suggest what needs to happen to allow the UK to remain at the forefront of cancer research. \nParticipants will get a better understanding of the current situation with regards to EU funding\, grants and alternative research funding schemes. They will hear about current challenges and opportunities and learn what can be done to address them. \nFollowing the session\, participants will have a clearer understanding of the changes and the choices to make to continue to attract funding and be successful in international collaborations. \n\n\n\n\n\n\n \n \n \n Register to take part in the online event \n \n \n\n\n\n\nThe following speakers will address challenges and opportunities\, and suggest what needs to happen to allow the UK to remain at the forefront of cancer research: \n\nDr Sheuli Porkess – Association of the British Pharmaceutical Industry\nProfessor Richard Sullivan – King’s College London\nMr Emlyn Samuel – Cancer Research UK\nMr Jim Elliott – NCRI Consumer Forum URL:https://mdspatientsupport.org.uk/event/what-does-brexit-mean-for-cancer-research-online-event-11-02-2021/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/02/Brexit-and-Cancer-Research.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210210T100000 DTEND;TZID=Europe/London:20210210T120000 DTSTAMP:20260420T040014 CREATED:20210114T062228Z LAST-MODIFIED:20210114T062229Z UID:30206-1612951200-1612958400@mdspatientsupport.org.uk SUMMARY:Southampton & Isle Of Wight Regional Patient Meeting – Online – 10/02/21 DESCRIPTION:SOUTHAMPTON & ISLE Of WIGHT MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nThis group meeting is open to the whole stretch of the South Coast: Bournemouth\, Portsmouth\, Southampton\, Brighton\, Worthing\, Eastbourne\, Isle of Wight\, etc. As with all our virtual meetings – if you are very keen to join\, but outside these areas – please know you will still be very welcome. And don’t forget – you can join via telephone landlines too. MDS patients\, their relatives and friends are welcome to join us! \nRegister soon please\, as this will be a big meeting and an opportunity to meet new people! \nWhen:     Wednesday 10th February 2021\, 10:00am-12:00pm\nWhere:   Virtual Zoom Call \nRegister in advance for this meeting by clicking on link below:\nhttps://us02web.zoom.us/meeting/register/tZApd-2urj0rGtaSu4xMYDppXXFVzriqgyMb\nAfter registering\, you will receive a confirmation email containing information about joining the meeting.\n\n\n\n\n \n \n \n Register to take part in this Group Patient Meeting \n \n \n\n\n\n \n \n\n\n\n\n\n It doesn’t seem likely that we shall be able to resume face-to-face meetings for a while yet. These Zoom meetings provide you with all the regular news about MDS\, as well as give you an opportunity to connect to one another virtually. We know how important patient to patient contact is for everyone. \nMany patients have already embraced the video meeting call technology Zoom (or something similar) in order to stay in touch with family members during the lockdown. \nIf you haven’t\, please contact us. Please also see our guidance on how to use Zoom. If you are a first time user of video call – please don’t worry. The first 15 minutes of each meeting will be set aside to sort out any technical issues. \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\nPhilip Dinn: Group Co-ordinator: southampton@mdspatientsupport.org.uk\nMDS UK Main Office – 0207 733 7558 admin1@mdspatientsupport.org.uk  URL:https://mdspatientsupport.org.uk/event/southampton-isle-of-wight-regional-patient-meeting-online-10-02-21/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210125T110000 DTEND;TZID=Europe/London:20210125T130000 DTSTAMP:20260420T040014 CREATED:20210120T121853Z LAST-MODIFIED:20210120T121853Z UID:30260-1611572400-1611579600@mdspatientsupport.org.uk SUMMARY:NATIONWIDE MDS ZOOM CAFÉ - 25/01/2021 DESCRIPTION:Welcome to our informal online group meeting “MDS Zoom Café”! \nWhen:    Monday 25th January  11.00 am – 13.00 pm\nWhere:   Virtual Zoom Call \nRegister today for this meeting by clicking on link below:\nhttps://us02web.zoom.us/meeting/register/tZUpf-6rrDMjE9S6Kegv0RDeDltw93PL8YbY\n \nOur Café is open to anyone wishing to connect to other patients\, families or friends engaged with MDS UK. It is an opportunity for warm social contact during lockdown (and beyond!) and discuss ideas\, updates\, events\, information\, actions\, feedback or NHS experiences (good or bad). \nMaybe also touch on MDS research topics\, as we work with a lot of researchers requiring patient feedback. \nWe don’t have a specific agenda\, but just allow everyone to get to know each other! \n\n\n\n\n \n \n \n Register to take part! \n \n \n\n\n\n\n After registering\, you will receive a confirmation email containing information about joining the meeting. \nWe hope to see many of you online. URL:https://mdspatientsupport.org.uk/event/nationwide-mds-zoom-cafe-25-01-2021/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/01/Xmas_MDS_ZOOM_CAFE2020-e1670856202551.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20201216T160000 DTEND;TZID=Europe/London:20201216T180000 DTSTAMP:20260420T040014 CREATED:20201202T094258Z LAST-MODIFIED:20201214T102019Z UID:29884-1608134400-1608141600@mdspatientsupport.org.uk SUMMARY:MDS XMAS Zoom Cafe – Online – 16/12/2020 DESCRIPTION:Following on from the wonderful connections between people on our Zoom meetings we decided to create an informal online group entitled “MDS Zoom Café”. \n\nAs a pre-xmas event – we plan to go properly Santa silly – with Donna showing us the way!\nOn the must have list are silly hats\, silly jumpers\, mince pies\, mulled wine\, hot choc\, xmas jokes.\nRecommendations for best xmas film\, favourite Kate poem\, or Becky painting.\nOr more creations of poems\, paintings\, singing\, pampering\, bed decorating and all forms of cream tea! Photos welcome too!\nVirtual Meeting etiquette: No etiquette this time !!! Just fun\, laughter\, TLC amongst lovely people.\n\n\n\n\n\n\n\n\n\n\n \n \n\n\n\n\n\n \n \n \n Register to take part! \n \n \n\n\n\n\n\n\n\n\nWhen:     Wednesday 16th December 2020 16.00 pm – 18.00 pm\nWhere:   Virtual Zoom Call \nRegister in advance for this meeting by clicking on link below:\nhttps://us02web.zoom.us/meeting/register/tZcscumupzItE9EhCtBbptyFznyCjOKAmMdr\n \nThis is open to anyone wishing to connect to other patients\, families or friends engaged with MDS UK. It will be an opportunity for a welcoming and warm social contact during this coming lockdown (and beyond). We invite you to register right now – so we can gauge early on how many of you would like to join. \n\n\n\n\n\n\n\n\n\n \n \n\n\n\n\n\n \n \n \n Register to take part! URL:https://mdspatientsupport.org.uk/event/mds-xmas-zoom-cafe-online-16-12-2020/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Staff-lockdown.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20201209T183000 DTEND;TZID=Europe/London:20201209T200000 DTSTAMP:20260420T040014 CREATED:20201202T093028Z LAST-MODIFIED:20201202T093029Z UID:29880-1607538600-1607544000@mdspatientsupport.org.uk SUMMARY:Midlands and Yorkshire Virtual Christmas Chat & Quiz – Online – 9/12/2020 DESCRIPTION:MIDLANDS and YORKSHIRE MDS PATIENT GROUP MEETING\nAll Members and their families are welcome to join! \nRegister soon please\, as this will be a large meeting and a great opportunity to socialize. \nWhen:    Wednesday 9th December 6.30-8pm\nWhere:   Virtual Zoom Call\nAgenda: **Christmas chat and quiz**\nFun Fun Fun \nRegister in advance for this meeting by clicking on the link below:\nhttps://us02web.zoom.us/meeting/register/tZYsc-6srTkjGdSc3NKndZrcvqEEi0xh7l9r\nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \n\n\n\n\n \n \n \n Register to take part in the Midlands and Yorkshire Fun Meeting \n \n \n\n\n\n\n If you are a first time user of video call – please don’t worry. The first 15 minutes of each meeting will be set aside to sort out any technical issues. \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \nMDS UK Main Office – 0207 733 7558 – info@mdspatientsupport.org.uk URL:https://mdspatientsupport.org.uk/event/midlands-and-yorkshire-virtual-christmas-chat-quiz-online-9-12-2020/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20201209T103000 DTEND;TZID=Europe/London:20201209T123000 DTSTAMP:20260420T040014 CREATED:20201202T091451Z LAST-MODIFIED:20201202T091909Z UID:29872-1607509800-1607517000@mdspatientsupport.org.uk SUMMARY:Ireland and Northern Ireland Regional Patient Meeting – Online – 09/12/20 DESCRIPTION:IRELAND & NORTHERN IRELAND MDS SUPPORT GROUP MEETING\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nYou can also log in to online groups by telephone! Just register online\, and we will email you the login telephone number to call\, and passcode. \nRegister soon please\, as this will be a large meeting and a great opportunity to meet new people. \nWhen:     Wednesday\, 9nd December 2020\, 10.30 am – 12.30 pm\nWhere:   Virtual Zoom Call \nAgenda: \n\nMDS UK – activities and connections with Ireland and Northern Ireland (Sophie – 10min)\nPhD project on carers and introductions to CNS (Orlaith – 20min + 10min Q&A)\nA patient and/or carer presenting themselves (20min)\nBrief introduction by all participants – and group discussion incl clinical assistance from CNS’s (60min)\nDate of next potential meeting\n\nRegister in advance for this meeting by clicking on link below:\n https://us02web.zoom.us/meeting/register/tZ0ucOCsrTwpHt0DHrcMdYan0xyNhJkeMyR4\nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \n\n\n\n\n \n \n \n Register to take part in this meeting \n \n \n\n\n\n\n It doesn’t seem likely that we shall be able to resume face-to-face meetings for a while yet. These Zoom meetings provide you with all the regular news about MDS\, as well as give you an opportunity to connect to one another virtually. We know how important patient to patient contact is for everyone. \nMany patients have already embraced the video meeting call technology Zoom (or something similar) in order to stay in touch with family members during the lockdown. \nIf you are a first time user of video call – please don’t worry. The first 15 minutes of each meeting will be set aside to sort out any technical issues. \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\n\nMDS UK Main Office \n\n\n\n\n\n\n\n\ninfo@mdspatientsupport.org.uk \n\n\n\n\n\n\n\n\n0207 733 7558 URL:https://mdspatientsupport.org.uk/event/ireland-and-northern-ireland-regional-patient-meeting-online-09-12-20/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20201204T170000 DTEND;TZID=Europe/London:20201204T200000 DTSTAMP:20260420T040014 CREATED:20201129T160409Z LAST-MODIFIED:20201129T160638Z UID:29836-1607101200-1607112000@mdspatientsupport.org.uk SUMMARY:For Clinicians: The MDS Foundation's Annual Symposium - Online DESCRIPTION:Our colleagues from the MDS Foundation have announced a virtual edition of The Annual Friday Satellite Symposium\, taking place this Friday\, December 4th\, 2020 at 17:00 to 20:00 UK time. \n\n\n\n\n \n \n \n Register to take part in the symposium \n \n \n\n\n\n\n Virtual Agenda \n 7:00 – 7:05 am Welcome – About the MDS Foundation\, Inc. Stephen Nimer\, MD \n 7:05 – 7:15 am Program Overview and Objective Mario Cazzola\, MD \n 7:15 – 7:45 am Challenges in MDS Diagnosis Rafael Bejar\, MD\, PhD \n 7:45 – 8:15 am Managing MDS in the Wake of a Global Pandemic Amy DeZern\, MD \n 8:15 – 8:45 am Venetoclax in Higher-Risk MDS/AML Katharina S. Götze\, MD \n 8:45 – 9:15 am Role of CAR-T Cells in Myeloid Malignancies: Lessons Learned from Lymphoid Malignancies Saar Gill\, MD\, PhD \n 9:15 – 9:45 am Targeted Therapies (enasidenib\, ivosidenib\, APR-246) Stéphane de Botton\, MD\, PhD \n 9:45 – 10:00 am Conclusions & Perspectives Jane Churpek\, MD \nPlease feel free to share this invitation with your colleagues interested in MDS\, AML or related myeloid neoplasms.\nIf you have any questions\, please contact Lea Harrison via email at lharrison@mds-foundation.org.\n\n\n\nA message from Symposium Chairs Professor Mario Cazzola & Doctor Jane Churpek! URL:https://mdspatientsupport.org.uk/event/for-clinicians-the-mds-foundations-annual-symposium-online/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2020/11/MDS-management-online.jpg END:VEVENT END:VCALENDAR