BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//MDS UK Patient Support Group - ECPv6.14.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:MDS UK Patient Support Group
X-ORIGINAL-URL:https://mdspatientsupport.org.uk
X-WR-CALDESC:Events for MDS UK Patient Support Group
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:Europe/London
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20210328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20211031T010000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211003
DTEND;VALUE=DATE:20211004
DTSTAMP:20260420T002410
CREATED:20210919T141710Z
LAST-MODIFIED:20210919T142238Z
UID:32165-1633219200-1633305599@mdspatientsupport.org.uk
SUMMARY:Tina Deller will run the Virtual London Marathon for MDS UK
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/tina-deller-virtual-london-marathon/
LOCATION:Across the UK\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/09/Tinas-dad.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211003
DTEND;VALUE=DATE:20211004
DTSTAMP:20260420T002410
CREATED:20210819T085450Z
LAST-MODIFIED:20210913T130213Z
UID:31962-1633219200-1633305599@mdspatientsupport.org.uk
SUMMARY:Alastair Day and Jacqui Avola are running the London Marathon for MDS UK!
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/alastair-day-and-jacqui-avola-are-running-the-london-marathon-for-mds-uk/
LOCATION:London Marathon\, London\, SE10 8QY\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/08/London_Marathon_-_geograph.org_.uk_-_159377.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210930T170000
DTEND;TZID=Europe/London:20210930T183000
DTSTAMP:20260420T002410
CREATED:20210929T150231Z
LAST-MODIFIED:20210929T150611Z
UID:32212-1633021200-1633026600@mdspatientsupport.org.uk
SUMMARY:Invitation to participate in a meeting with GenoMed4All
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/genomed4all-meeting/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/09/GenoMed4All_Logo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210929
DTEND;VALUE=DATE:20211004
DTSTAMP:20260420T002411
CREATED:20211012T122041Z
LAST-MODIFIED:20211012T122041Z
UID:32352-1632873600-1633305599@mdspatientsupport.org.uk
SUMMARY:An MDS Diagnosis won't stop Nick Hall!
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/an-mds-diagnosis-wont-stop-nick-hall/
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/10/Nick-Hall.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210920T080000
DTEND;TZID=Europe/London:20211224T170000
DTSTAMP:20260420T002411
CREATED:20210913T132725Z
LAST-MODIFIED:20211206T143913Z
UID:32100-1632124800-1640365200@mdspatientsupport.org.uk
SUMMARY:Get ready for the 20for20 challenge! From 20/09 to 24/12
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/get-ready-20for20-challenge/
LOCATION:Online
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2020/08/dog-pictures-challenge.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210917T103000
DTEND;TZID=Europe/London:20210917T120000
DTSTAMP:20260420T002411
CREATED:20210916T163156Z
LAST-MODIFIED:20231213T131402Z
UID:32141-1631874600-1631880000@mdspatientsupport.org.uk
SUMMARY:20for20 NATIONWIDE ZOOM CAFÉ - 17 September 2021
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/20for20-nationwide-zoom-cafe-17-september-2021/
LOCATION:Online
CATEGORIES:Fundraising,Patient Meetings
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/06/MDS-Zoom-Cafe-logo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210912T083000
DTEND;TZID=Europe/London:20210912T150000
DTSTAMP:20260420T002411
CREATED:20210827T102507Z
LAST-MODIFIED:20210916T160536Z
UID:32001-1631435400-1631458800@mdspatientsupport.org.uk
SUMMARY:Great North Run on September 12 for MDS UK!
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/great-north-run-on-september-12-for-mds-uk/
LOCATION:Great North Run\, Newcastle\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/08/great-north-run-logo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210911
DTEND;VALUE=DATE:20210913
DTSTAMP:20260420T002411
CREATED:20210910T165320Z
LAST-MODIFIED:20210915T125929Z
UID:32082-1631318400-1631491199@mdspatientsupport.org.uk
SUMMARY:Peter Cresswell is taking on the Thames Path Challenge - Ultra 2021\, for MDS UK!
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/peter-cresswell-is-taking-on-the-thames-path-challenge-ultra-2021-for-mds-uk/
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/09/Peter-Cresswell.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210909T103000
DTEND;TZID=Europe/London:20210909T123000
DTSTAMP:20260420T002411
CREATED:20210805T135230Z
LAST-MODIFIED:20210805T140835Z
UID:31831-1631183400-1631190600@mdspatientsupport.org.uk
SUMMARY:Essex\, Kent\, South East and East of England Patient Meeting – Online – 09/09/21
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/essex-kent-south-east-and-east-of-england-patient-meeting-online-09-09-21/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/05/Patient-meetings-e1662291966447.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210903T103000
DTEND;TZID=Europe/London:20210903T123000
DTSTAMP:20260420T002411
CREATED:20210803T134750Z
LAST-MODIFIED:20210831T213216Z
UID:31810-1630665000-1630672200@mdspatientsupport.org.uk
SUMMARY:Oxford & Anglia Patient Meeting – Online – 03/09/21
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/oxford-anglia-patient-meeting-online-03-09-21/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/05/Patient-meetings-e1662291966447.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210827T170000
DTEND;TZID=Europe/London:20210828T170000
DTSTAMP:20260420T002411
CREATED:20210805T143827Z
LAST-MODIFIED:20210815T115208Z
UID:31843-1630083600-1630170000@mdspatientsupport.org.uk
SUMMARY:Matt & friends 24 Hours of Overwatch\, Gaming Livestream for MDS UK
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/24-overwatch-livestream-for-charity/
LOCATION:Online
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/08/223167073_351802809807352_875598791421567315_n-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210820T190000
DTEND;TZID=Europe/London:20210820T220000
DTSTAMP:20260420T002411
CREATED:20211026T051636Z
LAST-MODIFIED:20211026T051636Z
UID:32595-1629486000-1629496800@mdspatientsupport.org.uk
SUMMARY:River Hopkins Entertainment is fundraising for MDS!
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/river-hopkins-entertainment-is-fundraising-for-mds/
LOCATION:Langwith LONG Willows (STUTE)\, Langwith\, Mansfield\, NG20 9BD\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/10/river-hopkins.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210801
DTEND;VALUE=DATE:20210802
DTSTAMP:20260420T002411
CREATED:20211026T045342Z
LAST-MODIFIED:20211026T045746Z
UID:32586-1627776000-1627862399@mdspatientsupport.org.uk
SUMMARY:Julie's Half Marathon Challenge
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/julies-half-marathon-challenge/
LOCATION:London Marathon\, London\, SE10 8QY\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/10/Julie-with-dad.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210731
DTEND;VALUE=DATE:20210811
DTSTAMP:20260420T002411
CREATED:20210728T064050Z
LAST-MODIFIED:20210803T183306Z
UID:31756-1627689600-1628639999@mdspatientsupport.org.uk
SUMMARY:Nick Harpur is crossing Great Britain from South to North for MDS UK!
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/nick-harpur-is-crossing-great-britain-from-south-to-north-for-mds-uk/
LOCATION:Land’s End\, PENZANCE\, TR19\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/07/Nick-harpur-Joan.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210720T110000
DTEND;TZID=Europe/London:20210720T130000
DTSTAMP:20260420T002411
CREATED:20210630T141423Z
LAST-MODIFIED:20210630T141423Z
UID:31508-1626778800-1626786000@mdspatientsupport.org.uk
SUMMARY:Midlands and Yorkshire Local Patient Meeting – Online – 20/07/21
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/midlands-yorkshire-patient-meeting-online-20-07/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/05/Patient-meetings-e1662291966447.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210719T130000
DTEND;TZID=Europe/London:20210719T150000
DTSTAMP:20260420T002411
CREATED:20210525T115931Z
LAST-MODIFIED:20210607T100645Z
UID:31167-1626699600-1626706800@mdspatientsupport.org.uk
SUMMARY:NATIONWIDE MDS ZOOM CAFÉ – 19/07/2021
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/nationwide-mds-zoom-cafe-19-07-2021/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/06/MDS-Zoom-Cafe-logo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210714T110000
DTEND;TZID=Europe/London:20210714T130000
DTSTAMP:20260420T002411
CREATED:20210427T131727Z
LAST-MODIFIED:20210713T132623Z
UID:31033-1626260400-1626267600@mdspatientsupport.org.uk
SUMMARY:UPDATED!! Bournemouth & Southampton Local Patient Meeting – Online – 14/07/21
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/bournemouth-meeting-14-07-21/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210713T150000
DTEND;TZID=Europe/London:20210713T160000
DTSTAMP:20260420T002411
CREATED:20210712T153225Z
LAST-MODIFIED:20210712T160124Z
UID:31590-1626188400-1626192000@mdspatientsupport.org.uk
SUMMARY:ZOE Webinar 13/07/21 - The Delta variant: why is it so dominant?
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/zoe-webinar-13-july-2021-the-delta-variant-why-is-it-so-dominant/
CATEGORIES:Patient Meetings
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210709T130000
DTEND;TZID=Europe/London:20210709T150000
DTSTAMP:20260420T002411
CREATED:20210526T095407Z
LAST-MODIFIED:20210712T174022Z
UID:31180-1625835600-1625842800@mdspatientsupport.org.uk
SUMMARY:NATIONWIDE MDS ZOOM CAFÉ – 09/07/2021
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/nationwide-mds-zoom-cafe-09-07-2021/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/06/MDS-Zoom-Cafe-logo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210628T110000
DTEND;TZID=Europe/London:20210628T130000
DTSTAMP:20260420T002411
CREATED:20210621T150809Z
LAST-MODIFIED:20210622T081757Z
UID:31346-1624878000-1624885200@mdspatientsupport.org.uk
SUMMARY:Exeter and Cornwall Patient Meeting – Online – 28/06/21
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/exeter-cornwall-patient-meeting-online-28-06-21/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/05/Patient-meetings-e1662291966447.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210625T103000
DTEND;TZID=Europe/London:20210625T123000
DTSTAMP:20260420T002411
CREATED:20210525T114705Z
LAST-MODIFIED:20210607T100454Z
UID:31162-1624617000-1624624200@mdspatientsupport.org.uk
SUMMARY:NATIONWIDE MDS ZOOM CAFÉ – 25/06/2021
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/nationwide-mds-zoom-cafe-25-06-2021/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/06/MDS-Zoom-Cafe-logo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210622T110000
DTEND;TZID=Europe/London:20210622T130000
DTSTAMP:20260420T002411
CREATED:20210621T145508Z
LAST-MODIFIED:20210621T145811Z
UID:31337-1624359600-1624366800@mdspatientsupport.org.uk
SUMMARY:Scotland Patient Meeting – Online – 22/06/21
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/scotland-patient-meeting-online-22-06-21/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/05/Patient-meetings-e1662291966447.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210611T103000
DTEND;TZID=Europe/London:20210611T123000
DTSTAMP:20260420T002411
CREATED:20210527T114207Z
LAST-MODIFIED:20210527T114207Z
UID:31192-1623407400-1623414600@mdspatientsupport.org.uk
SUMMARY:Oxford & Anglia Local Patient Meeting - Online - 11/06/21
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/oxford-anglia-local-patient-meeting-online-11-06-21/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/05/Patient-meetings-e1662291966447.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210608T103000
DTEND;TZID=Europe/London:20210608T123000
DTSTAMP:20260420T002411
CREATED:20210304T121005Z
LAST-MODIFIED:20210304T121005Z
UID:30543-1623148200-1623155400@mdspatientsupport.org.uk
SUMMARY:Ireland and Northern Ireland Regional Patient Meeting – Online – 08/06/21
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/ireland-and-northern-ireland-regional-patient-meeting-online-08-06-21/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210607T130000
DTEND;TZID=Europe/London:20210607T150000
DTSTAMP:20260420T002411
CREATED:20210525T114211Z
LAST-MODIFIED:20210607T095645Z
UID:31159-1623070800-1623078000@mdspatientsupport.org.uk
SUMMARY:NATIONWIDE MDS ZOOM CAFÉ – 07/06/2021
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/nationwide-mds-zoom-cafe-07-06-2021/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/06/MDS-Zoom-Cafe-logo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210601T080000
DTEND;TZID=Europe/London:20210606T170000
DTSTAMP:20260420T002411
CREATED:20210603T135455Z
LAST-MODIFIED:20210604T060348Z
UID:31233-1622534400-1622998800@mdspatientsupport.org.uk
SUMMARY:Henry and Brett 3-peaks in 5 days in support of MDS UK!
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/henry-and-brett-3-peaks-5-days/
LOCATION:Ben Nevis\, Fort William PH33 6SQ\, United Kingdom\, PH33 6SQ\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/06/20210601_111152-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210528T130000
DTEND;TZID=Europe/London:20210528T150000
DTSTAMP:20260420T002411
CREATED:20210524T153601Z
LAST-MODIFIED:20210524T153601Z
UID:31153-1622206800-1622214000@mdspatientsupport.org.uk
SUMMARY:NATIONWIDE MDS ZOOM CAFÉ – 28/05/2021
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/nationwide-mds-zoom-cafe-28-05-2021/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/01/Xmas_MDS_ZOOM_CAFE2020-e1670856202551.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210514T110000
DTEND;TZID=Europe/London:20210514T123000
DTSTAMP:20260420T002411
CREATED:20210427T130617Z
LAST-MODIFIED:20210427T131926Z
UID:31026-1620990000-1620995400@mdspatientsupport.org.uk
SUMMARY:Essex\, Kent and Anglia Region Patient Meeting – Online – 14/05/21
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/essex-and-anglia-region-local-patient-meeting-online-14-05-21/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210501T080000
DTEND;TZID=Europe/London:20210531T170000
DTSTAMP:20260420T002411
CREATED:20210421T105317Z
LAST-MODIFIED:20210421T105819Z
UID:30958-1619856000-1622480400@mdspatientsupport.org.uk
SUMMARY:Join 5K May and do your 5K for MDS UK!
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/join-5k-may-and-do-your-5k-for-mds-uk/
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/04/Illustrated-participants-06.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210501
DTEND;VALUE=DATE:20210502
DTSTAMP:20260420T002411
CREATED:20210414T163507Z
LAST-MODIFIED:20210520T154129Z
UID:30896-1619827200-1619913599@mdspatientsupport.org.uk
SUMMARY:After harsh chemo and a stem cell transplant\, Paula walked from Crewe to Nantwich for MDS UK!
DESCRIPTION:We feel so blessed to have two runners on the Virgin London Marathon on Sunday 3 October 2021! \nBoth Alastair and Jacqui are running the actual marathon – not the virtual one\, which is an incredible achievement. It is close to impossible for small charities like us to get new places at the Virgin London Marathon\, hence we need to rely on ballot places. \nAlastair is an unstoppable supporter of MDS UK. He is an MDS patient himself and continued fundraising for us even during the pandemics.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Alastair's JustGiving Page		\n			\n	\n\n\n	Alastair says: \n"Thanks to everybody who supported me in 2020 when we raised over £1\,500 against my running target of 4\,000km.  2020 was disappointing since all events were cancelled... \nI was diagnosed with Myelodysplastic Syndrome in late 2016 and am currently in a low risk category with regular blood checks and luckily no intervention or drugs.  \nSince many patients are far worse off than me\, I am trying to raise more money in 2021 to add to charity funds\, increase awareness and support sufferers of MDS. Now more than ever\, the MDS needs funding since many charity and running events have been cancelled\, so please donate any amount to help the MDS UK Patient Support Group - £2\, £5\, £10" \nJacqui Avola is also an old friend. She was planning to run two full marathons to raise money for our charity when the world was turned upside-down by Covid-19.  \n\n\n\n		\n	\n\n\n			\n		\n			\n			Please Donate on Jacqui Avola's Virgin Money Giving Page		\n			\n	\n\n\n	Jacqui explains the reasons why she choose to fundraise for us: \n\nOn the 2nd July 2014 my Dad was diagnosed with MDS. Myelodysplastic Syndromes (MDS) are a group of cancers in which immature blood cells in the bone marrow do not mature and therefore do not become healthy blood cells. \nOn the 4th October 2015 my Dad was fit and healthy enough to receive a bone marrow transplant. Throughout this period of time I tried to carry on with life and pretend it wasn't happening\, everything with my Dad was a bit of blur and I ended up making some pretty life changing decisions myself\, life is precious and can be too short.  My Dad is my ultimate hero\, he is ALWAYS there for me no matter what and there is NOTHING he wouldn't do for me. \nMDS UK Patient Support Group is a charity based at Kings College in London. They provide networking for people newly diagnosed\, where experiences can be shared with others that are suffering the same illness. A contact line is set up and help is provided\, invaluable for people needing to understand medical terminology and prognosis. \nThey provide national patient and family information meetings on a regional basis\, along with many other amazing things. \nPlease support this fantastic charity and follow me on my journey. \n\nWe are immensely grateful to Jacqui and Alastair for thinking of us\, and to their friends and family for their generosity which will make a great difference to patients.  \n\n\n\n	You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n	\n		\n	Latest News		\n						\n						\n					\n	\n\n\n		\n		\n				\n		\n							\n					\n				\n					\n		\n			\n\n				MDS UK Christmas and holiday opening hours			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				MDS World Awareness Day October 25th – 2025			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Free NHS App for blood transfusion patients			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Understanding stem cell therapy for MDS			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Thanks to our fundraisers\, a new MDS Quality of Life study is possible			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Update: Could Vitamin B5 help alleviate anaemia in MDS patients?			\n		\n	\n		\n		\n							\n					\n				\n					\n		\n			\n\n				Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski
URL:https://mdspatientsupport.org.uk/event/paula-walks-crewe-nantwich/
LOCATION:Crewe\, CW1\, United Kingdom
CATEGORIES:Fundraising
END:VEVENT
END:VCALENDAR