BEGIN:VCALENDAR VERSION:2.0 PRODID:-//MDS UK Patient Support Group - ECPv6.14.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://mdspatientsupport.org.uk X-WR-CALDESC:Events for MDS UK Patient Support Group REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20210328T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20211031T010000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=Europe/London:20211221T080000 DTEND;TZID=Europe/London:20211226T170000 DTSTAMP:20260419T210200 CREATED:20211221T142059Z LAST-MODIFIED:20211221T142836Z UID:33151-1640073600-1640538000@mdspatientsupport.org.uk SUMMARY:Tess's 20:20 Culinary Challenge! DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/tesss-2020-culinary-challenge/ LOCATION:Online CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/12/christmas-fruit-cake-g94a0c0b20_1920.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211216T180000 DTEND;TZID=Europe/London:20211216T190000 DTSTAMP:20260419T210200 CREATED:20211123T161754Z LAST-MODIFIED:20211206T142037Z UID:32790-1639677600-1639681200@mdspatientsupport.org.uk SUMMARY:You are invited! Virtual Christmas Dessert Party 16-12-2021 DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/christmas-dessert-party/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/11/chocolate-g910041698_1280.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211214T163000 DTEND;TZID=Europe/London:20211214T183000 DTSTAMP:20260419T210200 CREATED:20211201T145058Z LAST-MODIFIED:20211201T145726Z UID:33074-1639499400-1639506600@mdspatientsupport.org.uk SUMMARY:Nationwide MDS Patient Support Meeting 14/12/2021 DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/nationwide-mds-patient-support-meeting-14-12-2021/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/05/Patient-meetings-e1662291966447.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211208T140000 DTEND;TZID=Europe/London:20211208T160000 DTSTAMP:20260419T210200 CREATED:20211122T154238Z LAST-MODIFIED:20211122T154238Z UID:32925-1638972000-1638979200@mdspatientsupport.org.uk SUMMARY:Scotland Patient Meeting – Online – 8/12/21 DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/scotland-patient-meeting-online-8-12-21/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/05/Patient-meetings-e1662291966447.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211203T130000 DTEND;TZID=Europe/London:20211203T150000 DTSTAMP:20260419T210200 CREATED:20211107T091816Z LAST-MODIFIED:20211107T093128Z UID:32742-1638536400-1638543600@mdspatientsupport.org.uk SUMMARY:MDS UK Annual General Meeting – 3rd December 2021 DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/mds-uk-annual-general-meeting-3rd-december-2021/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/05/Patient-meetings-e1662291966447.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20211113 DTEND;VALUE=DATE:20211114 DTSTAMP:20260419T210200 CREATED:20211027T103917Z LAST-MODIFIED:20211027T104203Z UID:32644-1636761600-1636847999@mdspatientsupport.org.uk SUMMARY:Graham is running 2 marathons in 2 months for MDS UK! DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/graham-2-marathons-2-months-for-mds/ LOCATION:Gower Marathon\, Gower\, Swansea\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/10/47ca2b4c-4f8b-4f55-9dad-57fdcc2138bf.jpeg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211112T140000 DTEND;TZID=Europe/London:20211112T160000 DTSTAMP:20260419T210200 CREATED:20210805T140720Z LAST-MODIFIED:20210908T130216Z UID:31838-1636725600-1636732800@mdspatientsupport.org.uk SUMMARY:Essex\, Kent\, South East and East of England Patient Meeting – Online – 12/11/21 DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/essex-kent-south-east-and-east-of-england-patient-meeting-online-12-11-21/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/05/Patient-meetings-e1662291966447.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211110T110000 DTEND;TZID=Europe/London:20211110T130000 DTSTAMP:20260419T210200 CREATED:20210427T134403Z LAST-MODIFIED:20210630T140618Z UID:31043-1636542000-1636549200@mdspatientsupport.org.uk SUMMARY:Bournemouth & Southampton Local Patient Meeting – Online – 10/11/21 DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/bournemouth-local-patient-meeting-online-10-11-21/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211103T160000 DTEND;TZID=Europe/London:20211103T180000 DTSTAMP:20260419T210200 CREATED:20211026T171031Z LAST-MODIFIED:20211026T171853Z UID:32625-1635955200-1635962400@mdspatientsupport.org.uk SUMMARY:MDS UK Zoom Café 03/11/2021 DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/mds-uk-zoom-cafe-03-11-2021/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/06/MDS-Zoom-Cafe-logo.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211101T080000 DTEND;TZID=Europe/London:20211120T170000 DTSTAMP:20260419T210200 CREATED:20211111T101015Z LAST-MODIFIED:20211114T095326Z UID:32817-1635753600-1637427600@mdspatientsupport.org.uk SUMMARY:Adam's 20 for 20 Challenge for MDS UK DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/adams-20-for-20-challenge-for-mds-uk/ CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/11/Adam-and-Magdalena-Keay.jpeg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211030T170000 DTEND;TZID=Europe/London:20211030T210000 DTSTAMP:20260419T210200 CREATED:20211027T120828Z LAST-MODIFIED:20211027T120829Z UID:32661-1635613200-1635627600@mdspatientsupport.org.uk SUMMARY:Samantha's Halloween DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/samanthas-halloween/ CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/10/halloween-g330629783_1920.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211024T080000 DTEND;TZID=Europe/London:20211024T170000 DTSTAMP:20260419T210200 CREATED:20211031T070142Z LAST-MODIFIED:20211031T070142Z UID:32705-1635062400-1635094800@mdspatientsupport.org.uk SUMMARY:Khirstie Bromage run half a marathon for MDS UK! DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/khirstie-bromage-run-half-a-marathon-for-mds-uk/ LOCATION:Stroud\, GLOUCESTESHIRE\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/10/running-gf0484790c_1920.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20211024 DTEND;VALUE=DATE:20211025 DTSTAMP:20260419T210200 CREATED:20211026T134503Z LAST-MODIFIED:20211026T135252Z UID:32611-1635033600-1635119999@mdspatientsupport.org.uk SUMMARY:Heather Wilson Liverpool Rock 'n' Roll Half Marathon for MDS UK DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/heather-wilson-liverpool-rock-n-roll-half-marathon-for-mds-uk/ LOCATION:Liverpool Rock’n’Rock Half Marathon\, 34 The Colonnades\, Liverpool\, L3 4AA\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/10/Heather-Wilson.jpeg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211020T073000 DTEND;TZID=Europe/London:20211020T173000 DTSTAMP:20260419T210200 CREATED:20211027T111131Z LAST-MODIFIED:20211027T111131Z UID:32656-1634715000-1634751000@mdspatientsupport.org.uk SUMMARY:Caitlin Limmer 10 hours spinathon for MDS UK! DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/caitlin-limmer-10-hours-spinathon/ CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2017/08/Caitlin-Limmer-2_MG_4796.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211017T090000 DTEND;TZID=Europe/London:20211017T233000 DTSTAMP:20260419T210200 CREATED:20210420T120138Z LAST-MODIFIED:20210909T072459Z UID:30942-1634461200-1634513400@mdspatientsupport.org.uk SUMMARY:The Cabbage Patch Returns on October 17! DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/cabbage-patch-october-17/ LOCATION:The Cabbage Patch\, The Cabbage Patch Pub\, 67 London Road\, Twickenham\, TW1 3SZ\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/04/CP_Entries-Open_Entry_Store_2021_800x419px415.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211017T080000 DTEND;TZID=Europe/London:20211017T170000 DTSTAMP:20260419T210200 CREATED:20211031T074454Z LAST-MODIFIED:20211031T074645Z UID:32711-1634457600-1634490000@mdspatientsupport.org.uk SUMMARY:Vanessa Collu run the Cabbage Patch 10 for MDS UK DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/vanessa-collu-cabbage-patch-10/ LOCATION:The Cabbage Patch\, The Cabbage Patch Pub\, 67 London Road\, Twickenham\, TW1 3SZ\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/10/71887913-1d47-4a85-a441-9a45d358fb9d.jpeg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211014T170000 DTEND;TZID=Europe/London:20211014T183000 DTSTAMP:20260419T210200 CREATED:20211011T162827Z LAST-MODIFIED:20211012T112958Z UID:32343-1634230800-1634236200@mdspatientsupport.org.uk SUMMARY:Covid-19 and MDS - SOAP Results: What do these mean for MDS patients? DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/covid-19-and-mds-soap-results-what-do-these-mean-for-mds-patients/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/05/Patient-meetings-e1662291966447.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211008T103000 DTEND;TZID=Europe/London:20211008T120000 DTSTAMP:20260419T210200 CREATED:20211006T160957Z LAST-MODIFIED:20211006T161404Z UID:32294-1633689000-1633694400@mdspatientsupport.org.uk SUMMARY:MDS UK Zoom Cafe - 8/10/2021 DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/mds-uk-zoom-cafe-8-10-2021/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/06/MDS-Zoom-Cafe-logo.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20211005T150000 DTEND;TZID=Europe/London:20211005T170000 DTSTAMP:20260419T210200 CREATED:20210304T121504Z LAST-MODIFIED:20210304T121536Z UID:30548-1633446000-1633453200@mdspatientsupport.org.uk SUMMARY:Ireland and Northern Ireland Regional Patient Meeting – Online – 05/10/21 DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/ireland-and-northern-ireland-regional-patient-meeting-online-05-10-21/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20211003 DTEND;VALUE=DATE:20211004 DTSTAMP:20260419T210200 CREATED:20200301T150254Z LAST-MODIFIED:20210913T134645Z UID:21527-1633219200-1633305599@mdspatientsupport.org.uk SUMMARY:Jacqui Avola is running TWO Marathons in aid of MDS UK! DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/jacqui-avola-london-milton-keynes-marathons/ CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2020/03/Jacqui-Dad-2.jpeg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20211003 DTEND;VALUE=DATE:20211004 DTSTAMP:20260419T210200 CREATED:20210919T141710Z LAST-MODIFIED:20210919T142238Z UID:32165-1633219200-1633305599@mdspatientsupport.org.uk SUMMARY:Tina Deller will run the Virtual London Marathon for MDS UK DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/tina-deller-virtual-london-marathon/ LOCATION:Across the UK\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/09/Tinas-dad.jpeg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20211003 DTEND;VALUE=DATE:20211004 DTSTAMP:20260419T210200 CREATED:20210819T085450Z LAST-MODIFIED:20210913T130213Z UID:31962-1633219200-1633305599@mdspatientsupport.org.uk SUMMARY:Alastair Day and Jacqui Avola are running the London Marathon for MDS UK! DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/alastair-day-and-jacqui-avola-are-running-the-london-marathon-for-mds-uk/ LOCATION:London Marathon\, London\, SE10 8QY\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/08/London_Marathon_-_geograph.org_.uk_-_159377.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210930T170000 DTEND;TZID=Europe/London:20210930T183000 DTSTAMP:20260419T210200 CREATED:20210929T150231Z LAST-MODIFIED:20210929T150611Z UID:32212-1633021200-1633026600@mdspatientsupport.org.uk SUMMARY:Invitation to participate in a meeting with GenoMed4All DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/genomed4all-meeting/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/09/GenoMed4All_Logo.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20210929 DTEND;VALUE=DATE:20211004 DTSTAMP:20260419T210200 CREATED:20211012T122041Z LAST-MODIFIED:20211012T122041Z UID:32352-1632873600-1633305599@mdspatientsupport.org.uk SUMMARY:An MDS Diagnosis won't stop Nick Hall! DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/an-mds-diagnosis-wont-stop-nick-hall/ CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/10/Nick-Hall.jpeg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210920T080000 DTEND;TZID=Europe/London:20211224T170000 DTSTAMP:20260419T210200 CREATED:20210913T132725Z LAST-MODIFIED:20211206T143913Z UID:32100-1632124800-1640365200@mdspatientsupport.org.uk SUMMARY:Get ready for the 20for20 challenge! From 20/09 to 24/12 DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/get-ready-20for20-challenge/ LOCATION:Online CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2020/08/dog-pictures-challenge.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210917T103000 DTEND;TZID=Europe/London:20210917T120000 DTSTAMP:20260419T210200 CREATED:20210916T163156Z LAST-MODIFIED:20231213T131402Z UID:32141-1631874600-1631880000@mdspatientsupport.org.uk SUMMARY:20for20 NATIONWIDE ZOOM CAFÉ - 17 September 2021 DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/20for20-nationwide-zoom-cafe-17-september-2021/ LOCATION:Online CATEGORIES:Fundraising,Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/06/MDS-Zoom-Cafe-logo.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210912T083000 DTEND;TZID=Europe/London:20210912T150000 DTSTAMP:20260419T210200 CREATED:20210827T102507Z LAST-MODIFIED:20210916T160536Z UID:32001-1631435400-1631458800@mdspatientsupport.org.uk SUMMARY:Great North Run on September 12 for MDS UK! DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/great-north-run-on-september-12-for-mds-uk/ LOCATION:Great North Run\, Newcastle\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/08/great-north-run-logo.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20210911 DTEND;VALUE=DATE:20210913 DTSTAMP:20260419T210200 CREATED:20210910T165320Z LAST-MODIFIED:20210915T125929Z UID:32082-1631318400-1631491199@mdspatientsupport.org.uk SUMMARY:Peter Cresswell is taking on the Thames Path Challenge - Ultra 2021\, for MDS UK! DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/peter-cresswell-is-taking-on-the-thames-path-challenge-ultra-2021-for-mds-uk/ CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/09/Peter-Cresswell.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210909T103000 DTEND;TZID=Europe/London:20210909T123000 DTSTAMP:20260419T210200 CREATED:20210805T135230Z LAST-MODIFIED:20210805T140835Z UID:31831-1631183400-1631190600@mdspatientsupport.org.uk SUMMARY:Essex\, Kent\, South East and East of England Patient Meeting – Online – 09/09/21 DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/essex-kent-south-east-and-east-of-england-patient-meeting-online-09-09-21/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/05/Patient-meetings-e1662291966447.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210903T103000 DTEND;TZID=Europe/London:20210903T123000 DTSTAMP:20260419T210200 CREATED:20210803T134750Z LAST-MODIFIED:20210831T213216Z UID:31810-1630665000-1630672200@mdspatientsupport.org.uk SUMMARY:Oxford & Anglia Patient Meeting – Online – 03/09/21 DESCRIPTION:Suzanne McWilliams and her friends and family are doing 20 challenges on 20 different days for MDS UK! \nSuzanne says in her JustGiving Page: \nMDS UK is a great charity and has been a massive support to me since my diagnosis of Myelodysplastic Syndrome (a rare form of blood cancer) Christmas 2014. \nMDS UK is the only charity in the UK providing vital support\, information\, advice and conducting research solely into Myelodysplastic Syndromes (MDS) - a rarer blood cancer where the bone marrow fails to produce healthy blood cells\, which greatly affects quality of life and the ability to carry out day to day tasks. \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n\n\n "Living with MDS is a daily challenge - due to vastly reduced white blood cells\, I have a compromised immune system\, meaning that not only is the COVID vaccine's efficiency greatly reduced (not only for me but for all MDS sufferers)\, but something as simple as an insect bite could lead to sepsis. MDS also affects my red blood cells\, leaving me with a debilitating fatigue which on some days can mean just walking up the stairs can take several attempts so the 20 for 20 challenges are very much a challenge in itself. \nI aim to complete 20 challenges on 20 different days of varying difficulties\, from Hula Hooping\, indoor cycling to walking 5.7 miles (which is a mammoth task in itself for someone with MDS) - I hope you will not only support me with these challenges\, but the wonderful Charity that we are doing it for. \nTogether blood cancers (MDS\, Leukaemia\, Polycythaemia vera\, Myeloma\, Lymphomas etc) are not only the 5th largest group of cancers in the UK\, but the 3rd largest cause of cancer deaths. \nMDS UK is a small charity that needs YOUR support to maintain their services !" \n\n\n\n Thank you so much for your support\, Suzanne! \nWe are so grateful to you and your friends and family for raising important funds and awareness to of MDS. \nYou are making a real difference! All the money we get goes to assist patients and families with information\, support and advice. \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n\n \n \n \n Please donate on Suzanne's JustGiving Page! \n \n \n\n\n \n \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/oxford-anglia-patient-meeting-online-03-09-21/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/05/Patient-meetings-e1662291966447.png END:VEVENT END:VCALENDAR