BEGIN:VCALENDAR VERSION:2.0 PRODID:-//MDS UK Patient Support Group - ECPv6.14.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://mdspatientsupport.org.uk X-WR-CALDESC:Events for MDS UK Patient Support Group REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20190331T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20191027T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20200329T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20201025T010000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=Europe/London:20200727T143000 DTEND;TZID=Europe/London:20200727T160000 DTSTAMP:20260422T203716 CREATED:20200721T120515Z LAST-MODIFIED:20230522T092125Z UID:26889-1595860200-1595865600@mdspatientsupport.org.uk SUMMARY:Apps & Technology in MDS: Devon/Cornwall MDS Support Meeting - Online DESCRIPTION:DEVON AND CORNWALL MDS SUPPORT GROUP MEETING\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nWhen:     Monday\, 27th July 2020\, 14.30 am – 16.00 pm\nWhere:   Virtual Zoom Call \nThis meeting is open mainly to Devon and Cornwall MDS patients and their carers\, as well as people in the adjacent areas. MDS patients\, their relatives and friends are welcome to join this new MDS Support Group Meeting \nTopic:\nPart 1 – Apps and technology in MDS\nPart 2 – Start of a Devon/Cornwall MDS Group \nGuest speakers: Dr Tom Coates\, Haematology Consultant at the Royal Devon & Exeter Hospital\nAgenda: \n\n\n\nWelcome\nApps and technology in MDS\nQ&A session with Dr Coates\nStart of a Devon/Cornwall MDS Patient Group – with assistance of Dr Tom Coates\nDiscussion group\n\n\n\nRegister in advance for this meeting by clicking on link below:\nhttps://us02web.zoom.us/meeting/register/tZ0qc-quqDkpE9yqi6ztlAFEWF9rbpVy1-Io \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \n\n\n\n\n \n \n \n Register to take part in this Devon & Cornwall Patient Meeting on Apps and technology in MDS \n \n \n\n\n\n\n MDS UK Main Office – 0207 733 7558 – info@mdspatientsupport.org.uk\n\n\n\n\n \n \n \n Download a poster for your clinic URL:https://mdspatientsupport.org.uk/event/apps-mds-devon-cornwall-local-meeeting/ LOCATION:Online CATEGORIES:Patient Meetings END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200724T103000 DTEND;TZID=Europe/London:20200724T123000 DTSTAMP:20260422T203716 CREATED:20200716T115940Z LAST-MODIFIED:20200721T123210Z UID:26726-1595586600-1595593800@mdspatientsupport.org.uk SUMMARY:Oxford MDS UK Local Patient Meeting - Online - 24/07/20 DESCRIPTION:OXFORD REGION MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nWhen:     Friday\, 24th July 2020\, 10.30 am – 12.30 pm\nWhere:   Virtual Zoom Call \nMeeting Agenda:  \n\nWelcome and registration\nGuest Speaker – Kirsty Crozier\nDiscussion group\n\nFor more information or to confirm your attendance please contact Claudia Richards\, Group Co-ordinator (07979 250563). \nRegister in advance for this meeting by clicking on link below:\n https://us02web.zoom.us/meeting/register/tZErduyrqDwrGNU3I42iy_eyqZfEQw8yxYsF \nAfter registering\, you will receive a confirmation email containing information about joining the meeting.\n\n\n\n\n \n \n \n Register to take part in Oxford Local Group Patient Meeting \n \n \n\n\n\n\nIt doesn’t seem likely that we shall be able to resume face-to-face meetings for a while yet. \nWe still want to maintain our services to you\, and provide you with all the regular news about MDS\, as well as giving you an opportunity to connect to one another virtually. We know how important patient to patient contact is for everyone. \nWe’ve held 2 online/virtual Zoom meetings – one for MDS Patients only and one for MDS Patients and their caregivers/supporters – in order “to test the waters”. Feedback has been very positive\, and patients who had not been able to attend face-to-face meetings for various reasons were able to participate. Hence\, we are now offering online meetings open to all members and carers. \nWhatever happens during and after the COVID-19 pandemic\, we aim to maintain some virtual meetings\, as it has attracted new members\, who had not attending face to face meetings previously. \nWe may\, in time\, turn those into regional groups too – if they attract sufficient participants. So – if in hope for a proper in person meeting soon\, please join the virtual ones for now – and get to know other MDS UK members. \nThis current meeting is open mainly to all Oxford local members and their carers\, as well as people in the wider Oxfordshire area. \nWe are also planning to provide nationwide meetings with particular topics which you may find of interest. Please let us know if you have any topic in mind. \nMany patients have already embraced the video meeting call technology Zoom (or something similar) in order to stay in touch with family members during the lockdown. \nIf you haven’t\, please contact us. Please also see our guidance on how to use Zoom. If you are a first time user of video call – please don’t worry. The first 15 minutes of each meeting will be set aside to sort out any technical issues. \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\n\nClaudia Richards \n\n\nMDS UK Main Office \n\n\n\n\noxfordgroup@mdspatientsupport.org.uk \n\n\nadmin1@mdspatientsupport.org.uk \n\n\n\n\n07979 250563 \n\n\n0207 733 7558 \n\n\n\n\n\n\n\n\n \n \n \n Download a poster for your clinic URL:https://mdspatientsupport.org.uk/event/oxford-patient-meeting-online-24-07/ LOCATION:Online CATEGORIES:Patient Meetings END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200722T170000 DTEND;TZID=Europe/London:20200722T180000 DTSTAMP:20260422T203716 CREATED:20200720T152220Z LAST-MODIFIED:20230504T125522Z UID:26860-1595437200-1595440800@mdspatientsupport.org.uk SUMMARY:Clinical Trials and Research in MDS & AML: Nationwide MDS Support Meeting - Online DESCRIPTION:NATIONWIDE MDS SUPPORT GROUP MEETING\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nWhen:     Wednesday\, 22nd July 2020\, 17.00 am – 18.00 pm\nWhere:   Virtual Zoom Call \nAll MDS patients\, their relatives and friends are welcome to join this Nationwide MDS Support Group Meeting \nTopic: CLINICAL TRIALS & RESEARCH IN MDS & AML \n \nAgenda: \n\nGuest Speaker – Dr Austin Kulasekararaj\nClinical trials in MDS – Current trials\, and promising compounds on\nthe horizon \n\nGlimpse into new AML drugs coming up.\n\nRegister in advance for this meeting by clicking on link below:\nhttps://us02web.zoom.us/meeting/register/tZ0pcu6rpzMtHdIHKnOpPieCc-BNXJJgXTVG \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \n\n\n\n\n \n \n \n Register to take part in this Nationwide Patient Meeting on CLINICAL TRIALS & RESEARCH IN MDS & AML \n \n \n\n\n\n\n MDS UK Main Office – 0207 733 7558 – info@mdspatientsupport.org.uk\n\n\n\n\n\n\n\n\n \n \n \n Download a poster for your clinic URL:https://mdspatientsupport.org.uk/event/clinical-trials-research-in-mds-aml-meeting/ LOCATION:Online CATEGORIES:Patient Meetings END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200721T110000 DTEND;TZID=Europe/London:20200721T130000 DTSTAMP:20260422T203716 CREATED:20200716T125603Z LAST-MODIFIED:20230504T125506Z UID:26739-1595329200-1595336400@mdspatientsupport.org.uk SUMMARY:Essex and Anglia Region Local Patient Meeting - Online - 21/07/20 DESCRIPTION:ESSEX AND ANGLIA REGION MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nWhen:     Tuesday\, 21st July 2020\, 11.00 am – 13.00 pm\nWhere:   Virtual Zoom Call \nMeeting Agenda:  \n\nWelcome\nMDS care during lockdown\nEmerging from lockdown? How do you feel?\n\nRegister in advance for this meeting by clicking on link below:\nhttps://us02web.zoom.us/meeting/register/tZwvcu2vrjkrHtJp-o9C1GSd_IZQU82NCK93 \nAfter registering\, you will receive a confirmation email containing information about joining the meeting. \n\n\n\n \n \n \n Register to take part in the Essex and Anglia Region Local Patient Meeting \n \n \n\n\n\n\nIt doesn’t seem likely that we shall be able to resume face-to-face meetings for a while yet. \nWe still want to maintain our services to you\, and provide you with all the regular news about MDS\, as well as giving you an opportunity to connect to one another virtually. We know how important patient to patient contact is for everyone. \nWe’ve held 2 online/virtual Zoom meetings – one for MDS Patients only and one for MDS Patients and their caregivers/supporters – in order “to test the waters”. Feedback has been very positive\, and patients who had not been able to attend face-to-face meetings for various reasons were able to participate. Hence\, we are now offering online meetings open to all members and carers. \nWhatever happens during and after the COVID-19 pandemic\, we aim to maintain some virtual meetings\, as it has attracted new members\, who had not attending face to face meetings previously. \nWe may\, in time\, turn those into regional groups too – if they attract sufficient participants. So – if in hope for a proper in person meeting soon\, please join the virtual ones for now – and get to know other MDS UK members. \nThis current meeting is open mainly to all Essex and Anglia local members and their carers\, as well as people in the adjacent areas. \nWe are also planning to provide nationwide meetings with particular topics which you may find of interest. Please let us know if you have any topic in mind. \nMany patients have already embraced the video meeting call technology Zoom (or something similar) in order to stay in touch with family members during the lockdown. \nIf you haven’t\, please contact us. Please also see our guidance on how to use Zoom. If you are a first time user of video call – please don’t worry. The first 15 minutes of each meeting will be set aside to sort out any technical issues. \n\n\n\n\n\n\n\n\n\n\n MDS UK Main Office\n0207 733 7558\ninfo@mdspatientsupport.org.uk\n\n\n\n\n\n\n\n\n Christine Dugmore\n01702 478244\nessexgroup@mdspatientsupport.org.uk\n\n\n\n\n\n\n\n\n \n \n \n Download a poster for your clinic URL:https://mdspatientsupport.org.uk/event/essex-anglia-online-patient-meeting-21-07/ LOCATION:Online CATEGORIES:Patient Meetings END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200715T103000 DTEND;TZID=Europe/London:20200715T130000 DTSTAMP:20260422T203716 CREATED:20190714T114439Z LAST-MODIFIED:20200602T125914Z UID:19978-1594809000-1594818000@mdspatientsupport.org.uk SUMMARY:MEETING CANCELLED: Bournemouth MDS UK Local Patient Meeting – 15/07/20 DESCRIPTION:BOURNEMOUTH MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nMEETINGS EVERY 4 MONTHS FOR COFFEE AND A CHAT\nCome and join this growing and energetic group in this region. All local patients are welcome to attend\, as are relatives and friends.\nThis is an opportunity to get to know one another\, share experiences and increase the support network in the area. \nThis is also an important opportunity for newly-diagnosed patients to meet others who have been living with MDS for a while.\nThank you for making everyone welcome. \nTime:              10.30 am – 1 pm – Tea and coffee will be served from 10.00\nLocation:       The Grove Hotel\, 2 Grove Road\, East Cliff\, Bournemouth\, Dorset\, BH1 3AU\nParking:         If the Grove Hotel parking is full\, please ask the Grove Hotel reception if you can have a permit to park at the Miramar Hotel (Opposite the Grove Hotel) \nAgenda 15th July \n\n10.00am arrival for start at 10.30am Coffee/Tea\n10.30 – 11.20 Discussion – Patients and carers share their experience in dealing with the disease\n11.20 – 11.45 Coffee/Tea\n11.45 – 12.45 TBC\n12.45 – 13.00 wrap up\n\nPlease feel free to suggest topics and themes that you would like to hear about – or speakers you have found helpful.\nPlease also consider giving a brief informal chat yourself about how you are dealing with MDS – what you have learnt\, what has been helpful\, what has been good to avoid as well.  This is incredibly useful information to share with others. \nCarers/relatives/friends also particularly welcome to share their experience.  As an observer\, you see things differently\, you will contribute immensely to such a group meeting. You also have tips and advice – for patients\, but also for fellow carers.\nYou need support too – it is sometimes not so easy.  Come and share what is helping you – and what’s not so helpful. \n\n\n\n\n\n\n\nPatients in the Wessex region can also benefit from additional complementary treatments and services\, provided free of charge by the Wessex Cancer Trust. \nWe encourage you to check their website: \nwww.wessexcancer.org.uk/Pages/Category/centres At all of our free Cancer Support Centres\, clients are welcomed by our volunteer befrienders who are equipped to provide information\, support and a listening ear. \nOur team of specialist counsellors are there to help deal with the emotional impact of cancer and our complementary therapists aim to improve well-being\, help with pain management and increase self-confidence. \n\n\n\n\n\n\n\nIf you have never contacted MDS UK\, please contact us for a full Patient Information Pack before attending the Bournemouth Support Group.\nBournemouth Group Page \nIf you can\, please tell us if you are coming – this will help us to plan refreshments \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\n\nBournemouth Group \n\n\nMDS UK Main Office \n\n\n\n\nbournemouthgroup@mdspatientsupport.org.uk \n\n\nadmin1@mdspatientsupport.org.uk \n\n\n\n\n\n\n\n0207 733 7558 \n\n\n\n\nGetting to the hotel: \nArriving by Car:\nOn the Wessex Way (A35 or A338) when you approach the main roundabout\, turn into St. Paul’s Road (Asda will be on your left). At the next roundabout turn right into Holdenhurst Road which is the B3066. At the next roundabout\, which is the Lansdowne roundabout\, take the third exit into Bath Road. Follow this road until the next roundabout (on your left is a petrol station) go onto the roundabout and take the second exit. Just before you take the exit you should see The Grove from the road. You are now on Grove road. The first turning on your left is our entrance to the car park. \nArriving by Coach or Train:\nThe main Bournemouth train and coach stations are both situated less than a mile from the Grove. Taxis are always available at the station. \nArriving by Air:\nBournemouth International Airport is 7 miles away from the Grove. URL:https://mdspatientsupport.org.uk/event/bournemouth-mds-uk-local-patient-meeting-15-07-20/ LOCATION:Bournemouth MDS UK Local Group\, The Grove Hotel\, 2 Grove Road\, East Cliff\,\, Bounemouth\, Dorset\, BH1 3AU\, United Kingdom CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2016/06/events-bournemouth-mds-group.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200708T153000 DTEND;TZID=Europe/London:20200708T183000 DTSTAMP:20260422T203716 CREATED:20200207T163932Z LAST-MODIFIED:20200602T125931Z UID:21275-1594222200-1594233000@mdspatientsupport.org.uk SUMMARY:MEETING CANCELLED: Greater London Support Group Meeting MDS-AA–AML 8/07/2020 DESCRIPTION:GREATER LONDON SUPPORT GROUP MEETINGS\nPATIENTS & FAMILIES LOCAL SUPPORT GROUP MEETINGS FOR THOSE AFFECTED BY MDS-AA–AML\nPatients and families are invited to attend the Myelodysplastic Syndromes & Aplastic Anaemia & Acute Myeloid Leukaemia local support group meetings for the London area at King’s College Hospital London. \nThis is a greater London specific meeting. You do not need to be a King’s patient to attend. \nCome and talk to other patients and clinical staff\, get new information or help. \nMeetings are held after KCH clinics. \nTime: Monday 8th July 3.30-6.30\nLocation: King’s College Hospital\, Weston Education Centre \nThe group is supported and attended by AA & MDS Clinical Nurse Specialists: Geke Ong (MDS) & Janet Hayden (MDS). \nIf you can\, please tell us if you are coming – this will help us to plan refreshments. \nSuggestions for talk topics welcome – this is YOUR group! \nLiving somewhere else? Have a look at all MDS UK local groups \nMDS UK Main Office:\n0207 733 7558\nadmin1@mdspatientsupport.org.uk URL:https://mdspatientsupport.org.uk/event/greater-london-support-group-meeting-mds-aa-aml-8-07-2020/ LOCATION:Kings College Hospital – Weston Education Centre\, King's College Hospital\, Weston Education Centre\, Cutcombe Road\, London\, SE5 9RJ\, United Kingdom CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2020/02/MDS-Support-Group-meeting-London-2020.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200612T103000 DTEND;TZID=Europe/London:20200612T123000 DTSTAMP:20260422T203716 CREATED:20200217T144401Z LAST-MODIFIED:20200602T130027Z UID:21365-1591957800-1591965000@mdspatientsupport.org.uk SUMMARY:MEETING CANCELLED: Oxford MDS UK Local Patient Meeting – 12/06/2020 DESCRIPTION:Meeting potentially cancelled – pending coronavirus status – please keep checking our website \n\n\n\n\n\n\n\nOXFORD REGION MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT\nFOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nWhen:      Friday\, 12th June: 10.30 am – 12.30 pm\nWhere:     The Maggie’s Centre\, Churchill Hospital\, Old Road\, OX3 7LE \nMeeting Agenda:  \n\nWelcome and registration\nSpeakers\nDiscussion group\n\nFor more information or to confirm your attendance please contact Claudia Richards\, Group Co-ordinator (07979 250563). \nIf you intend to come by car\, please park in one of the Churchill Hospital car parks\, and not the one beside the Maggie’s Centre\, which belongs to the neighbouring Nursery. \n\n\n\n\n\n\n If you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\n\nClaudia Richards \n\n\nMDS UK Main Office \n\n\n\n\noxfordgroup@mdspatientsupport.org.uk \n\n\nadmin1@mdspatientsupport.org.uk \n\n\n\n\n07979 250563 \n\n\n0207 733 7558 URL:https://mdspatientsupport.org.uk/event/oxford-mds-uk-local-patient-meeting-12-06-2020/ LOCATION:Oxford MDS UK Local Group\, Maggie's Oxford Centre\, Churchill Hospital\, Old Road\, Oxford\, OX3 7LE\, United Kingdom CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2020/02/Oxford-Group-2019.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200602T160000 DTEND;TZID=Europe/London:20200602T173000 DTSTAMP:20260422T203716 CREATED:20200602T054103Z LAST-MODIFIED:20200602T054104Z UID:25626-1591113600-1591119000@mdspatientsupport.org.uk SUMMARY:Free Webinar: Latest Research on MDS DESCRIPTION:Our colleagues from EHOG & MDS Foundation are offering a free webinar on Friday\, June 02nd\, 2020 at 16:00 UK time on the latest research on Myelodysplastic Symptoms (MDS) \n\n\n\n\n \n \n \n Register to take part in the webinar \n \n \n\n\n\n\nProf. Dr. Stephen D. Nimer:  Precision Medicine Approaches to MDS\nChairman of the MDS Foundation; Director\, Sylvester Comprehensive Cancer Center; Professor of Medicine\, Biochemistry & Molecular Biology\, University of Miami Miller School of Medicine\, Miami\, FL USA \nProf. Dr. Moshe Mittelman:  MDS Treatment Today and Tomorrow\nDept. of Hematology Chair at Tel-Aviv Sourasky Medical Center\, Tel-Aviv\, Israel and Professor of Medicine at Sackler School of Medicine \nProf. Dr. Mustafa Cetiner:  ICUS CCUS Chip Basics and Beyond\nDept. of Hematology\, Acibadem Maslak Hospital\, Istanbul\, Turkey \nThe speakers will also answer questions from webinar participants during the Q & A session! URL:https://mdspatientsupport.org.uk/event/free-webinar-latest-research-on-mds/ LOCATION:WEBINAR CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2020/06/precision-medicine.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200522T150000 DTEND;TZID=Europe/London:20200522T160000 DTSTAMP:20260422T203716 CREATED:20200519T135318Z LAST-MODIFIED:20200519T135318Z UID:24840-1590159600-1590163200@mdspatientsupport.org.uk SUMMARY:Webinar: May 22nd at 15:00 - Covid and Patient Care DESCRIPTION:Our colleagues in the USA are offering a free webinar on Friday\, May 22nd\, 2020 at 15:00 UK time on the impact of COVID-19 on the care of bone marrow failure patients. \n\n\n\n\n \n \n \n Register to take part in the webinar \n \n \n\n\n\n\nMikkael Sekeres\, MD\, MS will discuss issues related to the impact of COVID-19 on the care of bone marrow failure patients including the importance of patients remaining at home even as more areas reduce restrictions\, adapting to telemedicine\, and resuming treatments that may have been delayed. \nThe speaker will also answer questions from webinar participants during the Q & A session! \nMikkael Sekeres\, MD\, MS is Professor of Medicine and Director of the Leukemia Program at the Cleveland Clinic Taussig Cancer Institute. He is a global expert on bone marrow failure diseases and an active researcher in the area of MDS and AML. Prof Sekeres recently published a book about his experience as a haematologist/oncologist entitled “When Blood Breaks Down:  Life Lessons from Leukemia”. URL:https://mdspatientsupport.org.uk/event/webinar-may-22nd-at-1500-covid-and-patient-care/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2020/05/Mikkaelsekkeres.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200428T180000 DTEND;TZID=Europe/London:20200428T200000 DTSTAMP:20260422T203716 CREATED:20200428T113027Z LAST-MODIFIED:20200428T113028Z UID:23411-1588096800-1588104000@mdspatientsupport.org.uk SUMMARY:The COVID-19 pandemic emergency and haematology - A psychologist perspective DESCRIPTION:The International Academy for Clinical Haematology (IACH) runs a series of webinars dedicated to the COVID-19 pandemic \nOn the 28-04 the webinar will focus on the psychological aspects of the pandemic. \nSpeakers: Yolande Arnault Mohamad Mohty Please note\, this webinar is in French\, but English subtitles will be available. \nYolande Arnault is a clinical psychologist and practitioner. \nShe is part of the Department of Clinical Psychology at the Paoli-Calmettes Institute. She is also the author of several collective works dealing with the psychological impact of cancer and is editor-in-chief of the journal “Cancer (s) & psy (s)”. \nMohamad Mohty is Professor of Hematology and head of the Hematology and Cellular Therapy Department at the Saint-Antoine Hospital at University Pierre & Marie Curie\, Paris\, France. \nHe also serves as editor in chief of Bone Marrow Transplantation\, and an Associate Editor for Leukemia\, European Journal of Haematology and Blood Cancer Journal\, as a member of the editorial board of Haematologica\, and as a regular reviewer in different immunology\, hematology\, and cancer journals. \n\n\n\n\n \n \n \n Register to take part in the webinar \n \n \n\n\n\n\n\n\n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/covid-19-psychologist-perspective/ LOCATION:Online CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/04/webinar-organisers.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200414T190000 DTEND;TZID=Europe/London:20200414T203000 DTSTAMP:20260422T203716 CREATED:20200413T152232Z LAST-MODIFIED:20200413T152232Z UID:23034-1586890800-1586896200@mdspatientsupport.org.uk SUMMARY:COVID-19: Focus on Mental Health - Webinar DESCRIPTION:Self-care and wellbeing strategies for patients\, families and caregivers\n\nOur colleagues in the USA are offering a free webinar on Tuesday\, April 14th\, 2020 at 19:00 UK time about the emergency of COVID-19 and how to deal with its impact on mental health. \n\n\n\n\n \n \n \n Register to take part in the webinar \n \n \n\n\n\n\nThe COVID-19 pandemic has brought many changes to how  we live our lives\,. It has brought uncertainty\, altered daily routines\, financial pressures\, and social isolation. \nIn this webinar\, Dr. Timothy Pearman from Northwestern University Feinberg School of Medicine and Jenny Finkel from Jenny Finkel Yoga will discuss self-care strategies for patients\, families and caregivers which can improve emotional health and wellness and empower participants during this difficult time. Jenny and Dr. Pearman will also demonstrate accessible yoga practices which you can do at home to help keeping you moving and help relieve stress. \nTimothy Pearman\, PhD\, ABPP\, is a Professor in the departments of Medical Social Sciences and Psychiatry & Behavioral Sciences at the Northwestern University Feinberg School of Medicine. He is a board certified clinical health psychologist\, a Fellow of the American Academy of Clinical Health Psychology (ACHP) and Director of the Supportive Oncology program at the Robert H. Lurie Comprehensive Cancer Center. \nJenny Finkel is a certified yoga instructor and trainer. She has earned a 200 hour certificate from YogaWorks\,  Barre and Core Fusion certifications\, AFAA group fitness certification and 500 hour yoga teaching certificate. \nThe speakers will also answer questions from webinar participants during the Q & A session! \n\n\n\n\n\n\n\n\n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS UK Christmas and holiday opening hours \n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski URL:https://mdspatientsupport.org.uk/event/covid-19-mental-health-webinar/ LOCATION:WEBINAR CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/04/covid-mental-health-webinar.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200316T153000 DTEND;TZID=Europe/London:20200316T183000 DTSTAMP:20260422T203716 CREATED:20200207T163351Z LAST-MODIFIED:20200311T135515Z UID:21265-1584372600-1584383400@mdspatientsupport.org.uk SUMMARY:THIS MEETING HAS BEEN CANCELLED: Greater London Support Group Meeting MDS-AA–AML 16/03/2020 DESCRIPTION:IMPORTANT NOTE: THIS MEETING HAS BEEN CANCELLED DUE TO CORONAVIRUS PRECAUTIONS \n\n\n\n\n\n\n\nGREATER LONDON SUPPORT GROUP MEETINGS\nPATIENTS & FAMILIES LOCAL SUPPORT GROUP MEETINGS FOR THOSE AFFECTED BY MDS-AA–AML\nPatients and families are invited to attend the Myelodysplastic Syndromes & Aplastic Anaemia & Acute Myeloid Leukaemia local support group meetings for the London area at King’s College Hospital London. \nThis is a greater London specific meeting. You do not need to be a King’s patient to attend. \nCome and talk to other patients and clinical staff\, get new information or help. \nMeetings are held after KCH clinics. \nTime: Monday 16th March 3.30-6.30\nLocation: Denmark Place Baptist Church – 47a Coldharbour Lane – SE5 9NR Click here to download and print the location\nThe group is supported and attended by AA & MDS Clinical Nurse Specialists: Geke Ong (MDS) & Janet Hayden (MDS). \nIf you can\, please tell us if you are coming – this will help us to plan refreshments. \nSuggestions for talk topics welcome – this is YOUR group! \nLiving somewhere else? Have a look at all MDS UK local groups \nMDS UK Main Office:\n0207 733 7558\nadmin1@mdspatientsupport.org.uk URL:https://mdspatientsupport.org.uk/event/greater-london-support-group-meeting-mds-aa-aml-16-03-20/ LOCATION:Denmark Place Baptist Church\, 47a Coldharbour Lane\, SE5 9NR CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2020/02/1024px-Denmark_Place_Baptist_Church.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200313T100000 DTEND;TZID=Europe/London:20200313T130000 DTSTAMP:20260422T203716 CREATED:20200129T080735Z LAST-MODIFIED:20200311T135023Z UID:21221-1584093600-1584104400@mdspatientsupport.org.uk SUMMARY:THIS MEETING HAS BEEN CANCELLED: Midlands MDS UK Local Patient Meeting – 13/03/2020 DESCRIPTION:IMPORTANT NOTE: THIS MEETING HAS BEEN CANCELLED DUE TO CORONAVIRUS PRECAUTIONS \n\n\n\n\n\n\n\nMIDLANDS REGION MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nA MEETING FOR COFFEE AND A CHAT\nCome and join this newly created group in the Midlands region. All local patients are welcome to attend\, as are relatives and friends.\nThis is an opportunity to get to know one another\, share experiences and increase the support network in the area. \nThis is also an important opportunity for newly-diagnosed patients to meet others who have been living with MDS for a while. \nDate:              13th March 2020\nTime:              10.30 am – 12:30 pm – Tea and coffee will be served from 11:00 am\nLocation:       Seminar room 1 – Education Centre\n Queen Elizabeth Hospital Birmingham\n Mindelsohn Way\, Edgbaston\, Birmingham\, B15 2GW \nAgenda: \n\nInitial Meeting Introductions\nQ & A Session\nQuality of Life Discussion – Patients and carers share their experience in dealing with the disease\nDate of Next Meeting\n\nPlease feel free to suggest topics and themes that you would like to hear about – or speakers you have found helpful.\nPlease also consider giving a brief informal chat yourself about how you are dealing with MDS – what you have learnt\, what has been helpful\, what has been good to avoid as well. This is incredibly useful information to share with others. \nA few words from Sophia\, Midlands Group Coordinator:\n“I started to learn more about MDS following my Grandad’s diagnosis back in 2017.\nLooking back on this period I recall the uncertainty and isolation that followed the knowledge that this was a ‘rare’ cancer. Having heard of the success of the other regional support groups\, I was determined to bring this initiative to the inevitably large patient and relative population of the Midlands region. I appreciate the potential for such a group to provide that unique degree of comfort that is necessary alongside the standard medical care.\nHaving completed my Medical Sciences degree I am now spending the year working in research at the Queen Elizabeth before returning to university to begin my medicine degree. My mum has also worked within the trust for the past 20 years. Together\, we are both very familiar with the hospital and its welcoming environment. Looking back to the time when I knew very little about MDS\, it is incredible to now be able to set up the very first Midlands Region Support group. I hope these meetings provide a friendly platform to gain the necessary knowledge\, guidance and support that remains individual to every person living with MDS and their loved ones. I look forward to meeting many of you!” URL:https://mdspatientsupport.org.uk/event/midlands-mds-uk-local-patient-meeting-13-03-2020/ LOCATION:Midlands Support Group\, Queen Elizabeth Hospital Birmingham\, Birmingham\, Birmingham\, B15 2GW\, United Kingdom CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2020/01/Sophie-Sophia-Midlandsgroup1.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200312T100000 DTEND;TZID=Europe/London:20200312T123000 DTSTAMP:20260422T203716 CREATED:20200129T073634Z LAST-MODIFIED:20200311T134838Z UID:21158-1584007200-1584016200@mdspatientsupport.org.uk SUMMARY:THIS MEETING HAS BEEN CANCELLED: Essex MDS UK Local Patient Meeting – 12/03/20 DESCRIPTION:IMPORTANT NOTE: THIS MEETING HAS BEEN CANCELLED DUE TO CORONAVIRUS PRECAUTIONS \n\n\n\n\n\n\n\nESSEX REGION MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES \nInformal meetings every few months for tea / coffee\, biscuits and mutual support \nWhen: Thursday\, 12th March\, 10.00 – 12.30 pm\nWhere: Broomfield Village Hall\, (Small Hall)\, 158 Main Road\, Broomfield\, Chelmsford\, CM1 7AH \nOn the meeting there will be an hour of informal time to chat while having tea\, coffee and biscuits.  \nFrom 11.00\,  we’ll split into smaller groups to share issues we have in common – for example\,  CMML\, del 5q\, blood transfusions\, Azacitidine\, etc. \nPlease be aware that we ask you not to attend this meeting if you have a current infection less than a week old or if you have a sore throat\, symptoms of stomach bug etc. This is to protect the health of any members who have low white cells or who are having chemotherapy or other treatments which make them more vulnerable to infection. \nMeeting is free to MDS patients and their family members or caregivers. \nTea/coffee/biscuits served. \nIf you have never contacted MDS UK\, please call the main office for a full Patient Information Pack before attending the Essex Region Support Group. \nBefore attending\, please contact Christine Dugmore at the Essex Region Support Group directly or call MDS UK Main Office \n\n\n\n\n\n\n\n\n\n\n MDS UK Main Office\n0207 733 7558\ninfo@mdspatientsupport.org.uk\n\n\n\n\n\n\n\n\n Christine Dugmore\n01702 478244\nessexgroup@mdspatientsupport.org.uk URL:https://mdspatientsupport.org.uk/event/essex-mds-uk-local-patient-meeting-12-03-20/ LOCATION:Essex Local Group\, Broomfield Village Hall\, 158 Main Road\, Broomfield\, Chelmsford\, CM1 7AH\, United Kingdom CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2016/05/Essex-Group.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200311T103000 DTEND;TZID=Europe/London:20200311T130000 DTSTAMP:20260422T203716 CREATED:20190714T114102Z LAST-MODIFIED:20200310T211120Z UID:19976-1583922600-1583931600@mdspatientsupport.org.uk SUMMARY:THIS MEETING HAS BEEN CANCELLED: Bournemouth MDS UK Local Patient Meeting – 11/03/20 DESCRIPTION:IMPORTANT NOTE: THIS MEETING HAS BEEN CANCELLED \n\n\n\n\n\n\n\nBOURNEMOUTH MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nMEETINGS EVERY 4 MONTHS FOR COFFEE AND A CHAT\nCome and join this growing and energetic group in this region. All local patients are welcome to attend\, as are relatives and friends.\nThis is an opportunity to get to know one another\, share experiences and increase the support network in the area. \nThis is also an important opportunity for newly-diagnosed patients to meet others who have been living with MDS for a while.\nThank you for making everyone welcome. \nTime:              10.30 am – 1 pm – Tea and coffee will be served from 10.00\nLocation:       The Grove Hotel\, 2 Grove Road\, East Cliff\, Bournemouth\, Dorset\, BH1 3AU\nParking:         If the Grove Hotel parking is full\, please ask the Grove Hotel reception if you can have a permit to park at the Miramar Hotel (Opposite the Grove Hotel) \nAgenda 11th March \n\n10.00am arrival for start at 10.30am Coffee/Tea\n10.30 – 11.20 Discussion – Patients and carers share their experience in dealing with the disease\n11.20 – 11.45 Coffee/Tea\n11.45 – 12.45 TBC\n12.45 – 13.00 wrap up\n\nPlease feel free to suggest topics and themes that you would like to hear about – or speakers you have found helpful.\nPlease also consider giving a brief informal chat yourself about how you are dealing with MDS – what you have learnt\, what has been helpful\, what has been good to avoid as well.  This is incredibly useful information to share with others. \nCarers/relatives/friends also particularly welcome to share their experience.  As an observer\, you see things differently\, you will contribute immensely to such a group meeting. You also have tips and advice – for patients\, but also for fellow carers.\nYou need support too – it is sometimes not so easy.  Come and share what is helping you – and what’s not so helpful. \n\n\n\n\n\n\n\nPatients in the Wessex region can also benefit from additional complementary treatments and services\, provided free of charge by the Wessex Cancer Trust. \nWe encourage you to check their website: \nwww.wessexcancer.org.uk/Pages/Category/centres At all of our free Cancer Support Centres\, clients are welcomed by our volunteer befrienders who are equipped to provide information\, support and a listening ear. \nOur team of specialist counsellors are there to help deal with the emotional impact of cancer and our complementary therapists aim to improve well-being\, help with pain management and increase self-confidence. \n\n\n\n\n\n\n\nIf you have never contacted MDS UK\, please contact us for a full Patient Information Pack before attending the Bournemouth Support Group.\nBournemouth Group Page \nIf you can\, please tell us if you are coming – this will help us to plan refreshments \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\n\nBournemouth Group \n\n\nMDS UK Main Office \n\n\n\n\nbournemouthgroup@mdspatientsupport.org.uk \n\n\nadmin1@mdspatientsupport.org.uk \n\n\n\n\n\n\n\n0207 733 7558 \n\n\n\n\nGetting to the hotel: \nArriving by Car:\nOn the Wessex Way (A35 or A338) when you approach the main roundabout\, turn into St. Paul’s Road (Asda will be on your left). At the next roundabout turn right into Holdenhurst Road which is the B3066. At the next roundabout\, which is the Lansdowne roundabout\, take the third exit into Bath Road. Follow this road until the next roundabout (on your left is a petrol station) go onto the roundabout and take the second exit. Just before you take the exit you should see The Grove from the road. You are now on Grove road. The first turning on your left is our entrance to the car park. \nArriving by Coach or Train:\nThe main Bournemouth train and coach stations are both situated less than a mile from the Grove. Taxis are always available at the station. \nArriving by Air:\nBournemouth International Airport is 7 miles away from the Grove. URL:https://mdspatientsupport.org.uk/event/bournemouth-mds-uk-local-patient-meeting-11-03-20/ LOCATION:Bournemouth MDS UK Local Group\, The Grove Hotel\, 2 Grove Road\, East Cliff\,\, Bounemouth\, Dorset\, BH1 3AU\, United Kingdom CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2016/06/events-bournemouth-mds-group.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200309T103000 DTEND;TZID=Europe/London:20200309T120000 DTSTAMP:20260422T203716 CREATED:20191210T164457Z LAST-MODIFIED:20191210T164457Z UID:20865-1583749800-1583755200@mdspatientsupport.org.uk SUMMARY:Anglia MDS UK Local Patient Meeting – 09/03/2020 DESCRIPTION:ANGLIA REGION MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT\nFOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nMEETING ON A 6 – 8 WEEK BASIS FOR COFFEE AND A CHAT WITH FELLOW PATIENTS\, FRIENDS AND CARERS. \nWhen:      Monday\, 9th March 2020: 10.30 am – 12.00 pm\n \nWhere:     Cambridge Cancer Help Centre\, Scotsdales Garden Centre\, 120 Cambridge Road\, Great Shelford\, Cambridge CB22 5JT \nAgenda: Andrea Chupacova will tell us about Maggie’s Cancer Caring Centres Trust \nLooking forward to meeting more new people. Please feel free to drop in between the stated times if you can\, we will look forward to seeing you. \nPlease contact the local organiser for details of speakers or special topics. \nLet us know what you would like to have speakers talk about and we will try and set something up for a future meeting.\n\nPlease also tell your local staff about this local group and encourage other MDS patients\, their friends and relatives to attend. \n\n\n\n\n\n\nIf you have never contacted MDS UK\, please contact us for a full Patient Information Pack before attending the Anglia Support Group.\nIf you can\, please tell us if you are coming – this will help us to plan refreshments \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\n\nNew Coordinator Required \n\n\nMDS UK Main Office \n\n\n\n\nangliagroup@mdspatientsupport.org.uk \n\n\nadmin1@mdspatientsupport.org.uk \n\n\n\n\n0207 733 7558 \n\n\n0207 733 7558 URL:https://mdspatientsupport.org.uk/event/anglia-mds-uk-local-patient-meeting-09-03-2020/ LOCATION:Anglia MDS UK Local Patient Group\, Cambridge Cancer Help Centre\, Scotsdales Garden Centre\,\, 120 Cambridge Road\, Cambridge\, CB22 5JT\, United Kingdom CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2016/04/anglia-info-day-7.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200228T103000 DTEND;TZID=Europe/London:20200228T123000 DTSTAMP:20260422T203716 CREATED:20200207T180739Z LAST-MODIFIED:20200217T225202Z UID:21293-1582885800-1582893000@mdspatientsupport.org.uk SUMMARY:Oxford MDS UK Local Patient Meeting 28/02/2020 DESCRIPTION:OXFORD REGION MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT\nFOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nWhen:      Friday\, 28th February 2020: 10.30 am – 12.30 pm\n \nWhere:     The Maggie’s Centre\, Churchill Hospital\, Old Road\, OX3 7LE \nThe meeting will be co-ordinated by Kirsty Crozier\, our Clinical Nurse Specialist\, and further details will be published as soon as possible. \nIf you intend to come by car\, please park in one of the Churchill Hospital car parks\, and not the one beside the Maggie’s Centre\, which belongs to the neighbouring Nursery. \nFor more information or to confirm your attendance please contact Claudia Richards (07979 250563) \nDates of remaining 2020 meetings:  12th June\, 11th September\, 27th November  \n  \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\n\nClaudia Richards \n\n\nMDS UK Main Office \n\n\n\n\noxfordgroup@mdspatientsupport.org.uk \n\n\nadmin1@mdspatientsupport.org.uk \n\n\n\n\n07979 250563 \n\n\n0207 733 7558 URL:https://mdspatientsupport.org.uk/event/oxford-mds-uk-local-patient-meeting/ LOCATION:Oxford MDS UK Local Group\, Maggie's Oxford Centre\, Churchill Hospital\, Old Road\, Oxford\, OX3 7LE\, United Kingdom CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2020/02/Oxford-Group-2019.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200226T140000 DTEND;TZID=Europe/London:20200226T170000 DTSTAMP:20260422T203716 CREATED:20191122T182504Z LAST-MODIFIED:20191122T183120Z UID:20822-1582725600-1582736400@mdspatientsupport.org.uk SUMMARY:Yorkshire MDS UK Local Patient Meeting – 26/02/20 DESCRIPTION:YORKSHIRE REGION MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nA MEETING FOR COFFEE AND A CHAT\nCome and join this growing and energetic group in this region. All local patients are welcome to attend\, as are relatives and friends.\nThis is an opportunity to get to know one another\, share experiences and increase the support network in the area. \nThis is also an important opportunity for newly-diagnosed patients to meet others who have been living with MDS for a while.\nThank you for making everyone welcome. \nDate:              Wednesday 26th February\nTime:              2.00 pm – 5.00 pm\nLocation:       The Old Fire Station\, Jimi’s Community Room\, Gipton Approach\, Gipton Leeds LS9 6NL \nAgenda: \n\nInitial Meeting Introductions\nQ & A Session\nQuality of Life Discussion – Patients and carers share their experience in dealing with the disease\nDate of Next Meeting\n\nPlease feel free to suggest topics and themes that you would like to hear about – or speakers you have found helpful.\nPlease also consider giving a brief informal chat yourself about how you are dealing with MDS – what you have learnt\, what has been helpful\, what has been good to avoid as well.  This is incredibly useful information to share with others. \nCarers/relatives/friends also welcome to share their experience.\n\n\n\n\n\nIf you have never contacted MDS UK\, please contact the main office for a full Patient Information Pack before attending the Yorkshire Support Group.\nIf you can\, please tell us if you are coming – this will help us to plan refreshments \n\n\n\n\nMDS UK Main Office \n\n\n\n\nadmin1@mdspatientsupport.org.uk \n\n\n\n\n0207 733 7558 \n\n\n\n\n  URL:https://mdspatientsupport.org.uk/event/yorkshire-mds-uk-local-patient-meeting-26-02-20/ LOCATION:Yorkshire MDS UK Local Group\, The Old Fire Station\, Jimi's Community Room\, Gipton Approach\, Leeds\, LS9 6NL\, United Kingdom CATEGORIES:Patient Meetings END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200226T100000 DTEND;TZID=Europe/London:20200226T130000 DTSTAMP:20260422T203716 CREATED:20191031T125933Z LAST-MODIFIED:20200107T141132Z UID:20714-1582711200-1582722000@mdspatientsupport.org.uk SUMMARY:Southampton Region MDS Support Group Meeting 26/02/20 DESCRIPTION:SOUTHAMPTON REGION MDS SUPPORT GROUP MEETINGS\nPATIENTS-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MDS\nMEETING ON A REGULAR BASIS FOR COFFEE AND A CHAT WITH FELLOW PATIENTS\, FRIENDS AND CARERS. \nWhen:      Wednesday\, 26th February 2020  10.00 am – 13.00 pm\nWhere:    Ibis Southampton Centre Hotel\, Lymington Suite\, 9 W Quay Rd\, Southampton SO15 1RA. Tel. 02380634463 \nLooking forward to meeting more new people. Please feel free to drop in between the stated times if you can\, we will look forward to seeing you. \nPlease contact the local organiser for details of speakers or special topics. \nLet us know what you would like to have speakers talk about and we will try and set something up for a future meeting. \nPlease also tell your local clinical staff about this local group and encourage other MDS patients\, their friends and relatives to attend. \nAgenda \n\nUpdate from the Southampton haematologists + Q&A\nCNS Dawn Cousins – Q&A\nQuality of Life group discussion\nDate of next meeting\n\n\n\n\n\n\n\nIf you can\, please tell us if you are coming – this will help us to plan refreshments \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\n\nSouthampton Region Support Group \n\n\nMDS UK Main Office \n\n\n\n\nsouthamptongroup@mdspatientsupport.org.uk \n\n\nadmin1@mdspatientsupport.org.uk \n\n\n\n\nPhilip Dinn & Andrew Scott \n\n\n0207 733 7558 URL:https://mdspatientsupport.org.uk/event/southampton-mds-meeting-26-02-20/ LOCATION:Southampton Local Group\, Ibis Southampton Centre Hotel\, Suite\, 9 W Quay Rd\, Southampton\, Lymington\, SO15 1RA\, United Kingdom CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2017/09/20181010_130423.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200106T103000 DTEND;TZID=Europe/London:20200106T120000 DTSTAMP:20260422T203716 CREATED:20191210T164021Z LAST-MODIFIED:20191210T164022Z UID:20861-1578306600-1578312000@mdspatientsupport.org.uk SUMMARY:Anglia MDS UK Local Patient Meeting – 06/01/2020 DESCRIPTION:ANGLIA REGION MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT\nFOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nMEETING ON A 6 – 8 WEEK BASIS FOR COFFEE AND A CHAT WITH FELLOW PATIENTS\, FRIENDS AND CARERS. \nWhen:      Monday\, 6th January 2020: 10.30 am – 12.00 pm\n \nWhere:     Cambridge Cancer Help Centre\, Scotsdales Garden Centre\, 120 Cambridge Road\, Great Shelford\, Cambridge CB22 5JT \nAgenda:  Azra Krsic is due to give us an overview of the Cambridge Cancer Help Centre \nLooking forward to meeting more new people. Please feel free to drop in between the stated times if you can\, we will look forward to seeing you. \nPlease contact the local organiser for details of speakers or special topics. \nLet us know what you would like to have speakers talk about and we will try and set something up for a future meeting.\n\nPlease also tell your local staff about this local group and encourage other MDS patients\, their friends and relatives to attend. \n\n\n\n\n\n\nIf you have never contacted MDS UK\, please contact us for a full Patient Information Pack before attending the Anglia Support Group.\nIf you can\, please tell us if you are coming – this will help us to plan refreshments \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\n\nNew Coordinator Required \n\n\nMDS UK Main Office \n\n\n\n\nangliagroup@mdspatientsupport.org.uk \n\n\nadmin1@mdspatientsupport.org.uk \n\n\n\n\n0207 733 7558 \n\n\n0207 733 7558 URL:https://mdspatientsupport.org.uk/event/anglia-mds-uk-local-patient-meeting-06-01-2020/ LOCATION:Anglia MDS UK Local Patient Group\, Cambridge Cancer Help Centre\, Scotsdales Garden Centre\,\, 120 Cambridge Road\, Cambridge\, CB22 5JT\, United Kingdom CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2016/04/anglia-info-day-7.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20191213T140000 DTEND;TZID=Europe/London:20191213T163000 DTSTAMP:20260422T203716 CREATED:20191115T105031Z LAST-MODIFIED:20191115T105303Z UID:20754-1576245600-1576254600@mdspatientsupport.org.uk SUMMARY:Essex MDS UK Local Patient Meeting – 13/12/19 DESCRIPTION:ESSEX REGION MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES \nInformal meetings every few months for tea / coffee\, biscuits and mutual support \nWhen: Friday\, 13th December from 14:00 to 16:30 pm – Please note different day and start and end times!\nWhere: Broomfield Village Hall\, (Small Hall)\, 158 Main Road\, Broomfield\, Chelmsford\, CM1 7AH \nFor this meeting\, we are very pleased to be able to welcome Dr Pavel Kotoucek\, FRC Path\, Haematology Consultant at Broomfield Hospital\, Chelmsford. \nDr Pavel is a long-term supporter of our local Essex MDS group and has referred many of his MDS patients to the national MDS UK Patient Support Group for information and support. He will be giving an informal presentation\, sharing general information and a patient’s role in the management of MDS. \nThis is a rare opportunity to have a clinical haematologist as a speaker\, so please make every effort to attend! \nPlease be aware that\, for professional reasons\, Dr Kotoucek will not be able to answer questions about your personal clinical situation but can address general issues and queries. \nMeeting is free to MDS patients and their family members or caregivers. \nTea/coffee/biscuits served. \nIf you have never contacted MDS UK\, please call the main office for a full Patient Information Pack before attending the Essex Region Support Group. \nBefore attending\, please contact Christine Dugmore at the Essex Region Support Group directly or call MDS UK Main Office\n\n\n\n\n\n\n\n\n\n MDS UK Main Office\n0207 733 7558\ninfo@mdspatientsupport.org.uk\n\n\n\n\n\n\n\n\n Christine Dugmore\n01702 478244\nessexgroup@mdspatientsupport.org.uk URL:https://mdspatientsupport.org.uk/event/essex-mds-uk-local-patient-meeting-13-12-19/ LOCATION:Essex Local Group\, Broomfield Village Hall\, 158 Main Road\, Broomfield\, Chelmsford\, CM1 7AH\, United Kingdom CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2016/05/Essex-Group.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20191206T103000 DTEND;TZID=Europe/London:20191206T123000 DTSTAMP:20260422T203716 CREATED:20181030T143132Z LAST-MODIFIED:20181030T143133Z UID:16126-1575628200-1575635400@mdspatientsupport.org.uk SUMMARY:Oxford MDS UK Local Patient Meeting – 06/12/19 DESCRIPTION:OXFORD REGION MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT\nFOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nWhen:      Friday\, 6th December: 10.30 am – 12.30 pm\nWhere:     The Maggie’s Centre\, Churchill Hospital\, Old Road\, OX3 7LE \nThe meeting will be co-ordinated by Kirsty Crozier\, our Clinical Nurse Specialist\, and further details will be published close to the meeting date. \nIf you intend to come by car\, please park in one of the Churchill Hospital car parks\, and not the one beside the Maggie’s Centre\, which belongs to the neighbouring Nursery. \nFor more information or to confirm your attendance please contact Claudia Richards (07979 250563) \n\n\n\n\n\n If you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\n\nClaudia Richards \n\n\nMDS UK Main Office \n\n\n\n\noxfordgroup@mdspatientsupport.org.uk \n\n\nadmin1@mdspatientsupport.org.uk \n\n\n\n\n07979 250563 \n\n\n0207 733 7558 URL:https://mdspatientsupport.org.uk/event/oxford-mds-uk-local-patient-meeting-06-12-19/ LOCATION:Oxford MDS UK Local Group\, Maggie's Oxford Centre\, Churchill Hospital\, Old Road\, Oxford\, OX3 7LE\, United Kingdom CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2017/01/Oxford-MDS-UK-Group.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20191122T103000 DTEND;TZID=Europe/London:20191122T123000 DTSTAMP:20260422T203716 CREATED:20191002T075425Z LAST-MODIFIED:20191121T063316Z UID:20508-1574418600-1574425800@mdspatientsupport.org.uk SUMMARY:Join the very first meeting of our new Midlands Local Group on the 22nd November DESCRIPTION:MIDLANDS REGION MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nA MEETING FOR COFFEE AND A CHAT\nCome and join this brand new group in the Midlands region. All local patients are welcome to attend\, as are relatives and friends.\nThis is an opportunity to get to know one another\, share experiences and increase the support network in the area. \nThis is also an important opportunity for newly-diagnosed patients to meet others who have been living with MDS for a while. \nDate:              22nd of November\nTime:              10.30 am – 12:30 pm – Tea and coffee will be served from 11:00 am\nLocation:       Seminar room 1 – Education Centre\n Queen Elizabeth Hospital Birmingham\n Mindelsohn Way\, Edgbaston\, Birmingham\, B15 2GW \nAgenda: \n\nInitial Meeting Introductions\nQ & A Session\nQuality of Life Discussion – Patients and carers share their experience in dealing with the disease\nDate of Next Meeting\n\nPlease feel free to suggest topics and themes that you would like to hear about – or speakers you have found helpful.\nPlease also consider giving a brief informal chat yourself about how you are dealing with MDS – what you have learnt\, what has been helpful\, what has been good to avoid as well.  This is incredibly useful information to share with others. \n\n\n\n\n\n\nIf you have never contacted MDS UK\, please contact the main office for a full Patient Information Pack before attending the Midlands Support Group.\nIf you can\, please tell us if you are coming – this will help us to plan refreshments \n\n\n\n\nSophia Taylor: coordinator \n\n\n\nMDS UK Main Office \n\n\n\n\nmidlandsgroup@mdspatientsupport.org.uk \n\n\nadmin1@mdspatientsupport.org.uk \n\n\n\n\n\n\n\n0207 733 7558 \n\n\n\n\n  URL:https://mdspatientsupport.org.uk/event/meeting-midlands-local-group-22nd-november/ LOCATION:Midlands Support Group\, Queen Elizabeth Hospital Birmingham\, Birmingham\, Birmingham\, B15 2GW\, United Kingdom CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2019/10/Queen_Elizabeth_Hospital_Birmingham_Edgbaston_Birmingham_England-7March2011.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20191118T153000 DTEND;TZID=Europe/London:20191118T183000 DTSTAMP:20260422T203716 CREATED:20190210T131721Z LAST-MODIFIED:20190210T132541Z UID:17132-1574091000-1574101800@mdspatientsupport.org.uk SUMMARY:Greater London Support Group Meeting MDS-AA–AML 18/11/2019 DESCRIPTION:GREATER LONDON SUPPORT GROUP MEETINGS\nPATIENTS & FAMILIES LOCAL SUPPORT GROUP MEETINGS FOR THOSE AFFECTED BY MDS-AA–AML\nPatients and families are invited to attend the Myelodysplastic Syndromes & Aplastic Anaemia & Acute Myeloid Leukaemia local support group meetings for the London area at King’s College Hospital London. \nThis is a greater London specific meeting. You do not need to be a King’s patient to attend. \nCome and talk to other patients and clinical staff\, get new information or help. \nMeetings are held after KCH clinics. \nTime: Monday 18th of November 3.30-6.30\nLocation: King’s College Hospital\, Weston Education Centre \nThe group is supported and attended by AA & MDS Clinical Nurse Specialists: Simon Slade (AA)\, Geke Ong (MDS) & Janet Hayden (MDS). \nIf you can\, please tell us if you are coming – this will help us to plan refreshments. \nSuggestions for talk topics welcome – this is YOUR group! \nLiving somewhere else? Have a look at all MDS UK local groups \nMDS UK Main Office:\n0207 733 7558\nadmin1@mdspatientsupport.org.uk URL:https://mdspatientsupport.org.uk/event/greater-london-support-group-meeting-mds-aa-aml-18-11-2019/ LOCATION:Kings College Hospital – Weston Education Centre\, King's College Hospital\, Weston Education Centre\, Cutcombe Road\, London\, SE5 9RJ\, United Kingdom CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2019/02/weston-education-centre.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20191112T103000 DTEND;TZID=Europe/London:20191112T130000 DTSTAMP:20260422T203716 CREATED:20190604T082906Z LAST-MODIFIED:20190604T082908Z UID:19371-1573554600-1573563600@mdspatientsupport.org.uk SUMMARY:Bournemouth MDS UK Local Patient Meeting – 12/11/19 DESCRIPTION:BOURNEMOUTH MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nMEETINGS EVERY 4 MONTHS FOR COFFEE AND A CHAT\nCome and join this growing and energetic group in this region. All local patients are welcome to attend\, as are relatives and friends.\nThis is an opportunity to get to know one another\, share experiences and increase the support network in the area. \nThis is also an important opportunity for newly-diagnosed patients to meet others who have been living with MDS for a while.\nThank you for making everyone welcome. \nTime:              10.30 am – 1 pm – Tea and coffee will be served from 10.00\nLocation:       The Grove Hotel\, 2 Grove Road\, East Cliff\, Bournemouth\, Dorset\, BH1 3AU\nParking:         If the Grove Hotel parking is full\, please ask the Grove Hotel reception if you can have a permit to park at the Miramar Hotel (Opposite the Grove Hotel) \nAgenda: \nAgenda 12th November  \n\n10.00am arrival for start at 10.30am Coffee/Tea\n10.30 – 11.20 Discussion – Patients and carers share their experience in dealing with the disease\n11.20 – 11.45 Coffee/Tea\n11.45 – 12.45 TBC\n12.45 – 13.00 wrap up\n\nPlease feel free to suggest topics and themes that you would like to hear about – or speakers you have found helpful.\nPlease also consider giving a brief informal chat yourself about how you are dealing with MDS – what you have learnt\, what has been helpful\, what has been good to avoid as well.  This is incredibly useful information to share with others. \nCarers/relatives/friends also particularly welcome to share their experience.  As an observer\, you see things differently\, you will contribute immensely to such a group meeting. You also have tips and advice – for patients\, but also for fellow carers.\nYou need support too – it is sometimes not so easy.  Come and share what is helping you – and what’s not so helpful. \n\n\n\n\n\n\n\nPatients in the Wessex region can also benefit from additional complementary treatments and services\, provided free of charge by the Wessex Cancer Trust. \nWe encourage you to check their website: \nwww.wessexcancer.org.uk/Pages/Category/centres At all of our free Cancer Support Centres\, clients are welcomed by our volunteer befrienders who are equipped to provide information\, support and a listening ear. \nOur team of specialist counsellors are there to help deal with the emotional impact of cancer and our complementary therapists aim to improve well-being\, help with pain management and increase self-confidence. \n\n\n\n\n\n\n\nIf you have never contacted MDS UK\, please contact us for a full Patient Information Pack before attending the Bournemouth Support Group.\nBournemouth Group Page \nIf you can\, please tell us if you are coming – this will help us to plan refreshments \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\n\nBournemouth Group \n\n\nMDS UK Main Office \n\n\n\n\nbournemouthgroup@mdspatientsupport.org.uk \n\n\nadmin1@mdspatientsupport.org.uk \n\n\n\n\n\n\n\n0207 733 7558 \n\n\n\n\nGetting to the hotel: \nArriving by Car:\nOn the Wessex Way (A35 or A338) when you approach the main roundabout\, turn into St. Paul’s Road (Asda will be on your left). At the next roundabout turn right into Holdenhurst Road which is the B3066. At the next roundabout\, which is the Lansdowne roundabout\, take the third exit into Bath Road. Follow this road until the next roundabout (on your left is a petrol station) go onto the roundabout and take the second exit. Just before you take the exit you should see The Grove from the road. You are now on Grove road. The first turning on your left is our entrance to the car park. \nArriving by Coach or Train:\nThe main Bournemouth train and coach stations are both situated less than a mile from the Grove. Taxis are always available at the station. \nArriving by Air:\nBournemouth International Airport is 7 miles away from the Grove. URL:https://mdspatientsupport.org.uk/event/bournemouth-mds-uk-local-patient-meeting-12-11-19/ LOCATION:Bournemouth MDS UK Local Group\, The Grove Hotel\, 2 Grove Road\, East Cliff\,\, Bounemouth\, Dorset\, BH1 3AU\, United Kingdom CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2016/06/events-bournemouth-mds-group.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20191111T103000 DTEND;TZID=Europe/London:20191111T120000 DTSTAMP:20260422T203716 CREATED:20181030T144800Z LAST-MODIFIED:20190715T084825Z UID:16141-1573468200-1573473600@mdspatientsupport.org.uk SUMMARY:Anglia MDS UK Local Patient Meeting – 11/11/2019 DESCRIPTION:ANGLIA REGION MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT\nFOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nMEETING ON A 6 – 8 WEEK BASIS FOR COFFEE AND A CHAT WITH FELLOW PATIENTS\, FRIENDS AND CARERS. \nWhen:      Monday\, 11th November 2019: 10.30 am – 12.00 pm\n \nWhere:     Cambridge Cancer Help Centre\, Scotsdales Garden Centre\, 120 Cambridge Road\, Great Shelford\, Cambridge CB22 5JT \nAgenda:   TBC \nLooking forward to meeting more new people. Please feel free to drop in between the stated times if you can\, we will look forward to seeing you. \nPlease contact the local organiser for details of speakers or special topics. \nLet us know what you would like to have speakers talk about and we will try and set something up for a future meeting.\n\nPlease also tell your local staff about this local group and encourage other MDS patients\, their friends and relatives to attend. \n\n\n\n\n\n\nIf you have never contacted MDS UK\, please contact us for a full Patient Information Pack before attending the Anglia Support Group.\nIf you can\, please tell us if you are coming – this will help us to plan refreshments \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\n\nAnglia Support Group \n\n\nMDS UK Main Office \n\n\n\n\nangliagroup@mdspatientsupport.org.uk \n\n\nadmin1@mdspatientsupport.org.uk \n\n\n\n\n01223 560497 \n\n\n0207 733 7558 URL:https://mdspatientsupport.org.uk/event/anglia-mds-uk-local-patient-meeting-11-11-2019/ LOCATION:Anglia MDS UK Local Patient Group\, Cambridge Cancer Help Centre\, Scotsdales Garden Centre\,\, 120 Cambridge Road\, Cambridge\, CB22 5JT\, United Kingdom CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2016/06/events-anglia-mds-group.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20191023T100000 DTEND;TZID=Europe/London:20191023T130000 DTSTAMP:20260422T203716 CREATED:20190924T154336Z LAST-MODIFIED:20190924T154336Z UID:20470-1571824800-1571835600@mdspatientsupport.org.uk SUMMARY:Southampton Region MDS Support Group Meeting 23/10/19 DESCRIPTION:SOUTHAMPTON REGION MDS SUPPORT GROUP MEETINGS\nPATIENTS-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MDS\nMEETING ON A REGULAR BASIS FOR COFFEE AND A CHAT WITH FELLOW PATIENTS\, FRIENDS AND CARERS. \nWhen:      Wednesday\, 23rd October 2019  10.00 am – 13.00 pm\nWhere:    Ibis Southampton Centre Hotel\, Lymington Suite\, 9 W Quay Rd\, Southampton SO15 1RA. Tel. 02380634463 \nLooking forward to meeting more new people. Please feel free to drop in between the stated times if you can\, we will look forward to seeing you. \nPlease contact the local organiser for details of speakers or special topics. \nLet us know what you would like to have speakers talk about and we will try and set something up for a future meeting. \nPlease also tell your local clinical staff about this local group and encourage other MDS patients\, their friends and relatives to attend. \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \nIf you have contacted MDS UK before\, please email the Southampton Region Support Group directly. \nAgenda\nUpdate from the Southampton haematologists + Q&A\nCNS Dawn Cousins – Q&A\nQuality of Life group discussion\nDate of next meeting \n\n\n\n\n\n\nIf you have never contacted MDS UK\, please contact us for a full Patient Information Pack before attending the Southampton Support Group.\nIf you can\, please tell us if you are coming – this will help us to plan refreshments \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\n\nSouthampton Region Support Group \n\n\nMDS UK Main Office \n\n\n\n\nsouthamptongroup@mdspatientsupport.org.uk \n\n\nadmin1@mdspatientsupport.org.uk \n\n\n\n\nPhilip Dinn & Andrew Scott \n\n\n0207 733 7558 URL:https://mdspatientsupport.org.uk/event/southampton-region-mds-support-group-meeting-23-10-19/ LOCATION:Southampton Local Group\, Ibis Southampton Centre Hotel\, Suite\, 9 W Quay Rd\, Southampton\, Lymington\, SO15 1RA\, United Kingdom CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2019/09/Southampton-Support-Group-Meeting-October-2019.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20190913T103000 DTEND;TZID=Europe/London:20190913T123000 DTSTAMP:20260422T203716 CREATED:20181030T142906Z LAST-MODIFIED:20181030T143253Z UID:16124-1568370600-1568377800@mdspatientsupport.org.uk SUMMARY:Oxford MDS UK Local Patient Meeting – 13/09/19 DESCRIPTION:OXFORD REGION MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT\nFOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nWhen:      Friday\, 13th September: 10.30 am – 12.30 pm\nWhere:     The Maggie’s Centre\, Churchill Hospital\, Old Road\, OX3 7LE \nThe meeting will be co-ordinated by Kirsty Crozier\, our Clinical Nurse Specialist\, and further details will be published close to the meeting date. \nIf you intend to come by car\, please park in one of the Churchill Hospital car parks\, and not the one beside the Maggie’s Centre\, which belongs to the neighbouring Nursery. \nFor more information or to confirm your attendance please contact Claudia Richards (07979 250563) \n\n\n\n\n\n If you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\n\nClaudia Richards \n\n\nMDS UK Main Office \n\n\n\n\noxfordgroup@mdspatientsupport.org.uk \n\n\nadmin1@mdspatientsupport.org.uk \n\n\n\n\n07979 250563 \n\n\n0207 733 7558 URL:https://mdspatientsupport.org.uk/event/oxford-mds-uk-local-patient-meeting-13-09-19/ LOCATION:Oxford MDS UK Local Group\, Maggie's Oxford Centre\, Churchill Hospital\, Old Road\, Oxford\, OX3 7LE\, United Kingdom CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2017/01/Oxford-MDS-UK-Group.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20190909T103000 DTEND;TZID=Europe/London:20190909T120000 DTSTAMP:20260422T203716 CREATED:20181030T144535Z LAST-MODIFIED:20181030T144956Z UID:16139-1568025000-1568030400@mdspatientsupport.org.uk SUMMARY:Anglia MDS UK Local Patient Meeting – 09/09/2019 DESCRIPTION:ANGLIA REGION MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT\nFOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES\nMEETING ON A 6 – 8 WEEK BASIS FOR COFFEE AND A CHAT WITH FELLOW PATIENTS\, FRIENDS AND CARERS. \nWhen:      Monday\, 9th September 2019: 10.30 am – 12.00 pm\n \nWhere:     Cambridge Cancer Help Centre\, Scotsdales Garden Centre\, 120 Cambridge Road\, Great Shelford\, Cambridge CB22 5JT \nAgenda:   TBC \nLooking forward to meeting more new people. Please feel free to drop in between the stated times if you can\, we will look forward to seeing you. \nPlease contact the local organiser for details of speakers or special topics. \nLet us know what you would like to have speakers talk about and we will try and set something up for a future meeting.\n\nPlease also tell your local staff about this local group and encourage other MDS patients\, their friends and relatives to attend. \n\n\n\n\n\n\nIf you have never contacted MDS UK\, please contact us for a full Patient Information Pack before attending the Anglia Support Group.\nIf you can\, please tell us if you are coming – this will help us to plan refreshments \nIf you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack\, please contact our Main Office. \n\n\n\n\nJohn Heywood \n\n\nMDS UK Main Office \n\n\n\n\nangliagroup@mdspatientsupport.org.uk \n\n\nadmin1@mdspatientsupport.org.uk \n\n\n\n\n01223 560497 \n\n\n0207 733 7558 URL:https://mdspatientsupport.org.uk/event/anglia-mds-uk-local-patient-meeting-09-09-2019/ LOCATION:Anglia MDS UK Local Patient Group\, Cambridge Cancer Help Centre\, Scotsdales Garden Centre\,\, 120 Cambridge Road\, Cambridge\, CB22 5JT\, United Kingdom CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2016/06/events-anglia-mds-group.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20190903T104500 DTEND;TZID=Europe/London:20190903T131500 DTSTAMP:20260422T203716 CREATED:20190724T145311Z LAST-MODIFIED:20190724T145745Z UID:20079-1567507500-1567516500@mdspatientsupport.org.uk SUMMARY:Essex MDS UK Local Patient Meeting – 03/09/19 DESCRIPTION:ESSEX REGION MDS SUPPORT GROUP MEETINGS\nPATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES \nInformal meetings every few months for tea / coffee\, biscuits and mutual support \nWhen: Tuesday\, 3rd September 2019\, from 10.45 -1.15 pm\nWhere: Broomfield Village Hall\, (Small Hall)\, 158 Main Road\, Broomfield\, Chelmsford\, CM1 7AH \nTopic for discussion: TBC \nMeeting is free to MDS patients and their family members or caregivers. \nTea/coffee/biscuits served. \nIf you have never contacted MDS UK\, please call the main office for a full Patient Information Pack before attending the Essex Region Support Group. \nBefore attending\, please contact Christine Dugmore at the Essex Region Support Group directly or call MDS UK Main Office \n\n\n\n\n\n\n\n\n\n\n MDS UK Main Office\n0207 733 7558\ninfo@mdspatientsupport.org.uk\n\n\n\n\n\n\n\n\n Christine Dugmore\n01702 478244\nessexgroup@mdspatientsupport.org.uk URL:https://mdspatientsupport.org.uk/event/essex-mds-uk-local-patient-meeting-03-09-19/ LOCATION:Essex Local Group\, Broomfield Village Hall\, 158 Main Road\, Broomfield\, Chelmsford\, CM1 7AH\, United Kingdom CATEGORIES:Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2016/05/Essex-Group.jpg END:VEVENT END:VCALENDAR