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X-WR-CALDESC:Events for MDS UK Patient Support Group
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DTSTART;TZID=Europe/London:20210625T103000
DTEND;TZID=Europe/London:20210625T123000
DTSTAMP:20260422T155518
CREATED:20210525T114705Z
LAST-MODIFIED:20210607T100454Z
UID:31162-1624617000-1624624200@mdspatientsupport.org.uk
SUMMARY:NATIONWIDE MDS ZOOM CAFÉ – 25/06/2021
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/nationwide-mds-zoom-cafe-25-06-2021/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/06/MDS-Zoom-Cafe-logo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210622T110000
DTEND;TZID=Europe/London:20210622T130000
DTSTAMP:20260422T155518
CREATED:20210621T145508Z
LAST-MODIFIED:20210621T145811Z
UID:31337-1624359600-1624366800@mdspatientsupport.org.uk
SUMMARY:Scotland Patient Meeting – Online – 22/06/21
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/scotland-patient-meeting-online-22-06-21/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/05/Patient-meetings-e1662291966447.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210611T103000
DTEND;TZID=Europe/London:20210611T123000
DTSTAMP:20260422T155518
CREATED:20210527T114207Z
LAST-MODIFIED:20210527T114207Z
UID:31192-1623407400-1623414600@mdspatientsupport.org.uk
SUMMARY:Oxford & Anglia Local Patient Meeting - Online - 11/06/21
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/oxford-anglia-local-patient-meeting-online-11-06-21/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/05/Patient-meetings-e1662291966447.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210608T103000
DTEND;TZID=Europe/London:20210608T123000
DTSTAMP:20260422T155518
CREATED:20210304T121005Z
LAST-MODIFIED:20210304T121005Z
UID:30543-1623148200-1623155400@mdspatientsupport.org.uk
SUMMARY:Ireland and Northern Ireland Regional Patient Meeting – Online – 08/06/21
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/ireland-and-northern-ireland-regional-patient-meeting-online-08-06-21/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210607T130000
DTEND;TZID=Europe/London:20210607T150000
DTSTAMP:20260422T155518
CREATED:20210525T114211Z
LAST-MODIFIED:20210607T095645Z
UID:31159-1623070800-1623078000@mdspatientsupport.org.uk
SUMMARY:NATIONWIDE MDS ZOOM CAFÉ – 07/06/2021
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/nationwide-mds-zoom-cafe-07-06-2021/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/06/MDS-Zoom-Cafe-logo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210528T130000
DTEND;TZID=Europe/London:20210528T150000
DTSTAMP:20260422T155518
CREATED:20210524T153601Z
LAST-MODIFIED:20210524T153601Z
UID:31153-1622206800-1622214000@mdspatientsupport.org.uk
SUMMARY:NATIONWIDE MDS ZOOM CAFÉ – 28/05/2021
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/nationwide-mds-zoom-cafe-28-05-2021/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/01/Xmas_MDS_ZOOM_CAFE2020-e1670856202551.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210514T110000
DTEND;TZID=Europe/London:20210514T123000
DTSTAMP:20260422T155518
CREATED:20210427T130617Z
LAST-MODIFIED:20210427T131926Z
UID:31026-1620990000-1620995400@mdspatientsupport.org.uk
SUMMARY:Essex\, Kent and Anglia Region Patient Meeting – Online – 14/05/21
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/essex-and-anglia-region-local-patient-meeting-online-14-05-21/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210325T150000
DTEND;TZID=Europe/London:20210325T170000
DTSTAMP:20260422T155518
CREATED:20210304T120421Z
LAST-MODIFIED:20210318T223413Z
UID:30540-1616684400-1616691600@mdspatientsupport.org.uk
SUMMARY:Nationwide Patient Meeting – Online – 25/03/21
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/nationwide-patient-meeting-online-25-03-21/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210324T160000
DTEND;TZID=Europe/London:20210324T180000
DTSTAMP:20260422T155518
CREATED:20210317T100139Z
LAST-MODIFIED:20210317T100233Z
UID:30672-1616601600-1616608800@mdspatientsupport.org.uk
SUMMARY:Cornwall\, Devon & Exeter MDS Patient Meeting – Online – 24/03/21 (open Nationwide)
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/cornwal-devon-exeter-meeting-24-03/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210320T160000
DTEND;TZID=Europe/London:20210320T173000
DTSTAMP:20260422T155518
CREATED:20210225T094301Z
LAST-MODIFIED:20210225T094301Z
UID:30487-1616256000-1616261400@mdspatientsupport.org.uk
SUMMARY:MDS & COVID-19 Vaccines - Online Webinar - 20 March 2021
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/mds-covid-online-webinar-20-03/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/02/mds-foundation-logo.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210319T150000
DTEND;TZID=Europe/London:20210319T170000
DTSTAMP:20260422T155518
CREATED:20210128T132443Z
LAST-MODIFIED:20210318T222353Z
UID:30317-1616166000-1616173200@mdspatientsupport.org.uk
SUMMARY:Nationwide MDS Patient Support Meeting 19/03/2021
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/nationwide-mds-patient-support-meeting-19-03-2021/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210315T140000
DTEND;TZID=Europe/London:20210315T163000
DTSTAMP:20260422T155518
CREATED:20210225T104132Z
LAST-MODIFIED:20210225T104132Z
UID:30493-1615816800-1615825800@mdspatientsupport.org.uk
SUMMARY:MDS Research: What are your priorities? Take part in an online event
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/mds-research-what-are-your-priorities-take-part-in-an-online-event/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/02/Priority-Setting-MDS-flyer.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210308T103000
DTEND;TZID=Europe/London:20210308T123000
DTSTAMP:20260422T155518
CREATED:20210120T125806Z
LAST-MODIFIED:20210217T090425Z
UID:30270-1615199400-1615206600@mdspatientsupport.org.uk
SUMMARY:Scotland Patient Meeting – Online – 08/03/21
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/scotland-patient-meeting-online-08-03-21/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210305T103000
DTEND;TZID=Europe/London:20210305T123000
DTSTAMP:20260422T155518
CREATED:20210120T154302Z
LAST-MODIFIED:20210223T123518Z
UID:30279-1614940200-1614947400@mdspatientsupport.org.uk
SUMMARY:Oxford Region & Nationwide MDS Support Group Meeting – 05/03/2021
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/oxford-anglia-region-mds-support-group-meeting-05-03-2021/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210223T110000
DTEND;TZID=Europe/London:20210223T130000
DTSTAMP:20260422T155518
CREATED:20210217T084856Z
LAST-MODIFIED:20210217T085442Z
UID:30424-1614078000-1614085200@mdspatientsupport.org.uk
SUMMARY:Wales Patient Meeting – Online – 23/02/21
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/wales-patient-meeting-online-23-02-21/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210211T130000
DTEND;TZID=Europe/London:20210211T140000
DTSTAMP:20260422T155518
CREATED:20210203T165308Z
LAST-MODIFIED:20210203T165308Z
UID:30366-1613048400-1613052000@mdspatientsupport.org.uk
SUMMARY:What does Brexit mean for cancer research? Online event 11/02/2021
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/what-does-brexit-mean-for-cancer-research-online-event-11-02-2021/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/02/Brexit-and-Cancer-Research.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210210T100000
DTEND;TZID=Europe/London:20210210T120000
DTSTAMP:20260422T155518
CREATED:20210114T062228Z
LAST-MODIFIED:20210114T062229Z
UID:30206-1612951200-1612958400@mdspatientsupport.org.uk
SUMMARY:Southampton & Isle Of Wight Regional Patient Meeting – Online – 10/02/21
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/southampton-isle-of-wight-regional-patient-meeting-online-10-02-21/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20210125T110000
DTEND;TZID=Europe/London:20210125T130000
DTSTAMP:20260422T155518
CREATED:20210120T121853Z
LAST-MODIFIED:20210120T121853Z
UID:30260-1611572400-1611579600@mdspatientsupport.org.uk
SUMMARY:NATIONWIDE MDS ZOOM CAFÉ - 25/01/2021
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/nationwide-mds-zoom-cafe-25-01-2021/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/01/Xmas_MDS_ZOOM_CAFE2020-e1670856202551.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20201216T160000
DTEND;TZID=Europe/London:20201216T180000
DTSTAMP:20260422T155518
CREATED:20201202T094258Z
LAST-MODIFIED:20201214T102019Z
UID:29884-1608134400-1608141600@mdspatientsupport.org.uk
SUMMARY:MDS XMAS Zoom Cafe – Online – 16/12/2020
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/mds-xmas-zoom-cafe-online-16-12-2020/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Staff-lockdown.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20201209T183000
DTEND;TZID=Europe/London:20201209T200000
DTSTAMP:20260422T155518
CREATED:20201202T093028Z
LAST-MODIFIED:20201202T093029Z
UID:29880-1607538600-1607544000@mdspatientsupport.org.uk
SUMMARY:Midlands and Yorkshire Virtual Christmas Chat & Quiz – Online – 9/12/2020
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/midlands-and-yorkshire-virtual-christmas-chat-quiz-online-9-12-2020/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20201209T103000
DTEND;TZID=Europe/London:20201209T123000
DTSTAMP:20260422T155518
CREATED:20201202T091451Z
LAST-MODIFIED:20201202T091909Z
UID:29872-1607509800-1607517000@mdspatientsupport.org.uk
SUMMARY:Ireland and Northern Ireland Regional Patient Meeting – Online – 09/12/20
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/ireland-and-northern-ireland-regional-patient-meeting-online-09-12-20/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20201204T170000
DTEND;TZID=Europe/London:20201204T200000
DTSTAMP:20260422T155518
CREATED:20201129T160409Z
LAST-MODIFIED:20201129T160638Z
UID:29836-1607101200-1607112000@mdspatientsupport.org.uk
SUMMARY:For Clinicians: The MDS Foundation's Annual Symposium - Online
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/for-clinicians-the-mds-foundations-annual-symposium-online/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2020/11/MDS-management-online.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20201127T103000
DTEND;TZID=Europe/London:20201127T123000
DTSTAMP:20260422T155518
CREATED:20201112T110929Z
LAST-MODIFIED:20201112T111115Z
UID:29536-1606473000-1606480200@mdspatientsupport.org.uk
SUMMARY:Oxford and Anglia MDS UK Local Patient Meeting – Online – 27/11/20
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/oxford-and-anglia-mds-uk-local-patient-meeting-online-27-11-20/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20201120T110000
DTEND;TZID=Europe/London:20201120T123000
DTSTAMP:20260422T155518
CREATED:20201119T132034Z
LAST-MODIFIED:20201120T154630Z
UID:29665-1605870000-1605875400@mdspatientsupport.org.uk
SUMMARY:MDS Zoom Café - Friday 20th November
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/mds-zoom-cafe-friday-20th-november/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Staff-lockdown.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20201119T103000
DTEND;TZID=Europe/London:20201119T123000
DTSTAMP:20260422T155518
CREATED:20201112T170355Z
LAST-MODIFIED:20201118T131258Z
UID:29543-1605781800-1605789000@mdspatientsupport.org.uk
SUMMARY:South Coast of England - Regional Support Group Meeting - 19/11/2020
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/south-coast-of-england-regional-support-group-meeting/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20201020T133000
DTEND;TZID=Europe/London:20201020T153000
DTSTAMP:20260422T155518
CREATED:20201012T121356Z
LAST-MODIFIED:20201012T123014Z
UID:29167-1603200600-1603207800@mdspatientsupport.org.uk
SUMMARY:Midlands/Yorkshire MDS Patient Group Meeting - Online - 20/10/2020
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/midlands-yorkshire-patient-meeting-online-20-10-2020/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20201015T150000
DTEND;TZID=Europe/London:20201015T170000
DTSTAMP:20260422T155518
CREATED:20200924T115448Z
LAST-MODIFIED:20200924T115808Z
UID:28229-1602774000-1602781200@mdspatientsupport.org.uk
SUMMARY:Cornwall\, Devon & Exeter MDS Patient Meeting – Online – 15/10/20
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/cornwall-devon-exeter-mds-patient-meeting-online-15-10-20/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20200918T103000
DTEND;TZID=Europe/London:20200918T123000
DTSTAMP:20260422T155518
CREATED:20200915T131920Z
LAST-MODIFIED:20231116T144207Z
UID:27997-1600425000-1600432200@mdspatientsupport.org.uk
SUMMARY:Oxford MDS UK Local Patient Meeting – Online – 18/09/20
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/oxford-mds-uk-local-patient-meeting-online-18-09-20/
LOCATION:Online
CATEGORIES:Patient Meetings
ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/07/Screen-Shot-2020-07-28-at-16.33.00.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20200806T150000
DTEND;TZID=Europe/London:20200806T170000
DTSTAMP:20260422T155518
CREATED:20200720T153354Z
LAST-MODIFIED:20230504T125534Z
UID:26752-1596726000-1596733200@mdspatientsupport.org.uk
SUMMARY:Transfusions and apps Iron Chelation: Nationwide MDS Support Meeting - Online
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/transfusions-ironchelation-apps-meeting/
LOCATION:Online
CATEGORIES:Patient Meetings
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20200804T103000
DTEND;TZID=Europe/London:20200804T120000
DTSTAMP:20260422T155518
CREATED:20200721T100134Z
LAST-MODIFIED:20230504T125545Z
UID:26877-1596537000-1596542400@mdspatientsupport.org.uk
SUMMARY:MDS\, COVID-19 & Shielding: South Coast Regional Meeting - Online
DESCRIPTION:The Oxford Blood Group is offering an enriching two-part online event to take place on March this year. \nThe event is a ‘research priority setting’ workshop and will bring together people with experience of MDS\, to discuss what should be the top priorities for MDS research. \nThere is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question \nThe consequences of this are potentially serious. Research is used to drive treatments and policy making\, but if it neglects to address patients’ concerns\, then the policy making will neglect these issues too. \n\n\n			\n		\n			\n			Please contact Dr Catriona Gilmour for more information		\n			\n	\n\n\n	HOW DOES IT WORK?\nThe participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions\, to be shared with clinical colleagues and MDS experts. \nThis is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part! \nYou should attend both meetings\, as the whole process will be split between the two dates. It will be run by professional facilitators\, and will be social and fun as well as meaningful. \n\nMarch 15\, 2021 2:00 PM to 4:30 PM\nMarch 22\, 2021 2:00 PM to 4:30 PM\n\nIf you'd like to join the events\, or need further information\, please contact Dr Catriona Gilmour Hamilton\, Haematology Quality Manager: Patient Experience and Engagement\, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
URL:https://mdspatientsupport.org.uk/event/mds-covid-19-shielding-support-group-meeting/
LOCATION:Online
CATEGORIES:Patient Meetings
END:VEVENT
END:VCALENDAR