BEGIN:VCALENDAR VERSION:2.0 PRODID:-//MDS UK Patient Support Group - ECPv6.14.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:MDS UK Patient Support Group X-ORIGINAL-URL:https://mdspatientsupport.org.uk X-WR-CALDESC:Events for MDS UK Patient Support Group REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20190331T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20191027T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20200329T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20201025T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20210328T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20211031T010000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;VALUE=DATE:20211003 DTEND;VALUE=DATE:20211004 DTSTAMP:20260613T062812 CREATED:20210919T141710Z LAST-MODIFIED:20210919T142238Z UID:32165-1633219200-1633305599@mdspatientsupport.org.uk SUMMARY:Tina Deller will run the Virtual London Marathon for MDS UK DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/tina-deller-virtual-london-marathon/ LOCATION:Across the UK\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/09/Tinas-dad.jpeg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20211003 DTEND;VALUE=DATE:20211004 DTSTAMP:20260613T062812 CREATED:20210819T085450Z LAST-MODIFIED:20210913T130213Z UID:31962-1633219200-1633305599@mdspatientsupport.org.uk SUMMARY:Alastair Day and Jacqui Avola are running the London Marathon for MDS UK! DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/alastair-day-and-jacqui-avola-are-running-the-london-marathon-for-mds-uk/ LOCATION:London Marathon\, London\, SE10 8QY\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/08/London_Marathon_-_geograph.org_.uk_-_159377.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20210929 DTEND;VALUE=DATE:20211004 DTSTAMP:20260613T062812 CREATED:20211012T122041Z LAST-MODIFIED:20211012T122041Z UID:32352-1632873600-1633305599@mdspatientsupport.org.uk SUMMARY:An MDS Diagnosis won't stop Nick Hall! DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/an-mds-diagnosis-wont-stop-nick-hall/ CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/10/Nick-Hall.jpeg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210920T080000 DTEND;TZID=Europe/London:20211224T170000 DTSTAMP:20260613T062812 CREATED:20210913T132725Z LAST-MODIFIED:20211206T143913Z UID:32100-1632124800-1640365200@mdspatientsupport.org.uk SUMMARY:Get ready for the 20for20 challenge! From 20/09 to 24/12 DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/get-ready-20for20-challenge/ LOCATION:Online CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2020/08/dog-pictures-challenge.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210917T103000 DTEND;TZID=Europe/London:20210917T120000 DTSTAMP:20260613T062812 CREATED:20210916T163156Z LAST-MODIFIED:20231213T131402Z UID:32141-1631874600-1631880000@mdspatientsupport.org.uk SUMMARY:20for20 NATIONWIDE ZOOM CAFÉ - 17 September 2021 DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/20for20-nationwide-zoom-cafe-17-september-2021/ LOCATION:Online CATEGORIES:Fundraising,Patient Meetings ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/06/MDS-Zoom-Cafe-logo.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210912T083000 DTEND;TZID=Europe/London:20210912T150000 DTSTAMP:20260613T062812 CREATED:20210827T102507Z LAST-MODIFIED:20210916T160536Z UID:32001-1631435400-1631458800@mdspatientsupport.org.uk SUMMARY:Great North Run on September 12 for MDS UK! DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/great-north-run-on-september-12-for-mds-uk/ LOCATION:Great North Run\, Newcastle\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/08/great-north-run-logo.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20210911 DTEND;VALUE=DATE:20210913 DTSTAMP:20260613T062812 CREATED:20210910T165320Z LAST-MODIFIED:20210915T125929Z UID:32082-1631318400-1631491199@mdspatientsupport.org.uk SUMMARY:Peter Cresswell is taking on the Thames Path Challenge - Ultra 2021\, for MDS UK! DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/peter-cresswell-is-taking-on-the-thames-path-challenge-ultra-2021-for-mds-uk/ CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/09/Peter-Cresswell.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210827T170000 DTEND;TZID=Europe/London:20210828T170000 DTSTAMP:20260613T062812 CREATED:20210805T143827Z LAST-MODIFIED:20210815T115208Z UID:31843-1630083600-1630170000@mdspatientsupport.org.uk SUMMARY:Matt & friends 24 Hours of Overwatch\, Gaming Livestream for MDS UK DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/24-overwatch-livestream-for-charity/ LOCATION:Online CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/08/223167073_351802809807352_875598791421567315_n-1.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210820T190000 DTEND;TZID=Europe/London:20210820T220000 DTSTAMP:20260613T062812 CREATED:20211026T051636Z LAST-MODIFIED:20211026T051636Z UID:32595-1629486000-1629496800@mdspatientsupport.org.uk SUMMARY:River Hopkins Entertainment is fundraising for MDS! DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/river-hopkins-entertainment-is-fundraising-for-mds/ LOCATION:Langwith LONG Willows (STUTE)\, Langwith\, Mansfield\, NG20 9BD\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/10/river-hopkins.jpeg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20210801 DTEND;VALUE=DATE:20210802 DTSTAMP:20260613T062812 CREATED:20211026T045342Z LAST-MODIFIED:20211026T045746Z UID:32586-1627776000-1627862399@mdspatientsupport.org.uk SUMMARY:Julie's Half Marathon Challenge DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/julies-half-marathon-challenge/ LOCATION:London Marathon\, London\, SE10 8QY\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/10/Julie-with-dad.jpeg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20210731 DTEND;VALUE=DATE:20210811 DTSTAMP:20260613T062812 CREATED:20210728T064050Z LAST-MODIFIED:20210803T183306Z UID:31756-1627689600-1628639999@mdspatientsupport.org.uk SUMMARY:Nick Harpur is crossing Great Britain from South to North for MDS UK! DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/nick-harpur-is-crossing-great-britain-from-south-to-north-for-mds-uk/ LOCATION:Land’s End\, PENZANCE\, TR19\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/07/Nick-harpur-Joan.jpeg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210601T080000 DTEND;TZID=Europe/London:20210606T170000 DTSTAMP:20260613T062812 CREATED:20210603T135455Z LAST-MODIFIED:20210604T060348Z UID:31233-1622534400-1622998800@mdspatientsupport.org.uk SUMMARY:Henry and Brett 3-peaks in 5 days in support of MDS UK! DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/henry-and-brett-3-peaks-5-days/ LOCATION:Ben Nevis\, Fort William PH33 6SQ\, United Kingdom\, PH33 6SQ\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/06/20210601_111152-1.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210501T080000 DTEND;TZID=Europe/London:20210531T170000 DTSTAMP:20260613T062812 CREATED:20210421T105317Z LAST-MODIFIED:20210421T105819Z UID:30958-1619856000-1622480400@mdspatientsupport.org.uk SUMMARY:Join 5K May and do your 5K for MDS UK! DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/join-5k-may-and-do-your-5k-for-mds-uk/ CATEGORIES:Fundraising ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/04/Illustrated-participants-06.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20210501 DTEND;VALUE=DATE:20210502 DTSTAMP:20260613T062812 CREATED:20210414T163507Z LAST-MODIFIED:20210520T154129Z UID:30896-1619827200-1619913599@mdspatientsupport.org.uk SUMMARY:After harsh chemo and a stem cell transplant\, Paula walked from Crewe to Nantwich for MDS UK! DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/paula-walks-crewe-nantwich/ LOCATION:Crewe\, CW1\, United Kingdom CATEGORIES:Fundraising END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20210402 DTEND;VALUE=DATE:20210407 DTSTAMP:20260613T062813 CREATED:20210401T125703Z LAST-MODIFIED:20210401T151412Z UID:30784-1617321600-1617753599@mdspatientsupport.org.uk SUMMARY:MDS UK’s Easter Eggstravaganza DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/mds-uks-easter-eggstravaganza/ LOCATION:Online CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/04/MDS-UKs-Easter-Eggtravaganza.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210401T080000 DTEND;TZID=Europe/London:20210430T170000 DTSTAMP:20260613T062813 CREATED:20210422T140146Z LAST-MODIFIED:20210422T140418Z UID:30976-1617264000-1619802000@mdspatientsupport.org.uk SUMMARY:Hannah Russell is running 75km in memory of her dear Gaga DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/hannah-russell-is-running-75km/ CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/04/Gray-and-White-Simple-Wedding-Thank-You-Card.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210401T080000 DTEND;TZID=Europe/London:20210430T170000 DTSTAMP:20260613T062813 CREATED:20210408T170458Z LAST-MODIFIED:20210408T170733Z UID:30806-1617264000-1619802000@mdspatientsupport.org.uk SUMMARY:Patsy\, Carmel and Jacquie One Million Step Challenge in April for MDS UK DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/patsy-carmel-jacquie-one-million-step-for-mds-uk/ LOCATION:UK\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/04/Patsy.jpeg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210311T190000 DTEND;TZID=Europe/London:20210311T190000 DTSTAMP:20260613T062813 CREATED:20210217T135736Z LAST-MODIFIED:20210310T130110Z UID:30440-1615489200-1615489200@mdspatientsupport.org.uk SUMMARY:Twice a refugee\, by Ron Holder - Book Club Evening - 11/03 - 19:00pm DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/twice-a-refugee-book-club/ LOCATION:Online CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2021/01/IMG-20190915-WA0001.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20210301T080000 DTEND;TZID=Europe/London:20210401T170000 DTSTAMP:20260613T062813 CREATED:20210301T155235Z LAST-MODIFIED:20210301T155751Z UID:30509-1614585600-1617296400@mdspatientsupport.org.uk SUMMARY:Christine is selling cards to raise money for MDS UK DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/chris-cards-to-raise-money/ LOCATION:Online CATEGORIES:Fundraising ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2021/03/boat_landscape.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20201004T080000 DTEND;TZID=Europe/London:20201025T170000 DTSTAMP:20260613T062813 CREATED:20201019T064050Z LAST-MODIFIED:20201019T064347Z UID:29259-1601798400-1603645200@mdspatientsupport.org.uk SUMMARY:Support Caitlin’s “22 Days For MDS”! DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/support-caitlins-22-days-for-mds/ CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2020/10/DigmeDSC08768-scaled-e1603089621368.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200920T080000 DTEND;TZID=Europe/London:20201120T170000 DTSTAMP:20260613T062813 CREATED:20200929T065431Z LAST-MODIFIED:20201012T144403Z UID:28334-1600588800-1605891600@mdspatientsupport.org.uk SUMMARY:Support our fantastic 20 for 20 Team! DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/support-20-for-20-team/ CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2020/08/20-for-20-logo-master-ol.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20200918 DTEND;VALUE=DATE:20200919 DTSTAMP:20260613T062813 CREATED:20200303T084213Z LAST-MODIFIED:20201008T084434Z UID:21594-1600387200-1600473599@mdspatientsupport.org.uk SUMMARY:Fiona & Chris run their solo "Not Edinburgh Marathon" in support of MDS UK! DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/fiona-and-chris-solo-marathon/ CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2020/03/fiona2.jpeg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200625T200000 DTEND;TZID=Europe/London:20200625T220000 DTSTAMP:20260613T062813 CREATED:20200317T171244Z LAST-MODIFIED:20200317T171409Z UID:22005-1593115200-1593122400@mdspatientsupport.org.uk SUMMARY:Please support Rock Raises for Cancer fundraising event! DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/rock-raises-for-cancer-fundraising-event/ LOCATION:Rock Sailing & Waterski Club\, The Quay\, Rock\, Wadebridge\, PL27 6LB\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2020/03/rock-cancer2-e1584464540702.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200620T193000 DTEND;TZID=Europe/London:20200620T233000 DTSTAMP:20260613T062813 CREATED:20200303T125541Z LAST-MODIFIED:20200506T154155Z UID:21654-1592681400-1592695800@mdspatientsupport.org.uk SUMMARY:Fiona and Mamas Pirilla's "Charity Evening – Greek-Style!" has been postponed DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/fiona-mamas-pirilla-greek-charity-event/ LOCATION:The Midlands Greek and Cypriot Association\, Magnet Centre\, Park Approach\, Birmingham\, B23 7SJ\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2020/03/Fiona-Mamas-Pirilla.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20200601 DTEND;VALUE=DATE:20210701 DTSTAMP:20260613T062813 CREATED:20200108T155157Z LAST-MODIFIED:20210419T132330Z UID:20944-1590969600-1625097599@mdspatientsupport.org.uk SUMMARY:Alastair Day to keep on running for MDS UK! DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/alastair-day-2500km-run/ CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2020/01/Alastair-landscape.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200501T080000 DTEND;TZID=Europe/London:20200601T170000 DTSTAMP:20260613T062813 CREATED:20200505T105531Z LAST-MODIFIED:20200707T113735Z UID:23739-1588320000-1591030800@mdspatientsupport.org.uk SUMMARY:Ted to run 26 minutes a day for MDS UK! DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/ted-run-26-minutes-day/ CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2020/05/Ted1-scaled.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200501T080000 DTEND;TZID=Europe/London:20200531T170000 DTSTAMP:20260613T062813 CREATED:20200519T141034Z LAST-MODIFIED:20200707T114337Z UID:24843-1588320000-1590944400@mdspatientsupport.org.uk SUMMARY:Lisa Southon’s 500-mile cycle DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/lisa-southons-500-mile-cycle/ LOCATION:Across the UK\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/png:https://mdspatientsupport.org.uk/wp-content/uploads/2020/05/Lisa-bike.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200501T080000 DTEND;TZID=Europe/London:20200531T170000 DTSTAMP:20260613T062813 CREATED:20200429T165830Z LAST-MODIFIED:20200707T115832Z UID:23479-1588320000-1590944400@mdspatientsupport.org.uk SUMMARY:Paul cycled 500 miles for MDS UK\, in one-hour periods DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/cycle-500-miles-for-mds-uk/ LOCATION:Across the UK\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2019/06/cycling-655565_1280.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20200427T080000 DTEND;TZID=Europe/London:20200428T170000 DTSTAMP:20260613T062813 CREATED:20200430T152715Z LAST-MODIFIED:20200501T084519Z UID:23562-1587974400-1588093200@mdspatientsupport.org.uk SUMMARY:Noel and Zac cycled 26 miles for MDS UK! DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/noel-zac-cycled-26-miles/ LOCATION:Paddington\, London\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2020/04/Noel-Zac-river-thames.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20191105T080000 DTEND;TZID=Europe/London:20191231T170000 DTSTAMP:20260613T062813 CREATED:20191115T092009Z LAST-MODIFIED:20191115T092927Z UID:20736-1572940800-1577811600@mdspatientsupport.org.uk SUMMARY:Rebecca Bennet Art Exhibition and Card Sale in aid of MDS UK DESCRIPTION:We have just found out that Peter is taking on a 100 km walk  in aid of MDS UK\, because - in his words - we've "really helped a friend out". \nThe Thames Path Challenge - Ultra is not for the faint-hearted! Participants run\, jog or walk all the way along the Thames Path from Putney to Henley in under 24 hours. Peter is making this incredible effort as part of his lose weight / gain fitness journey over Covid times\, and has already lost an amazing 60 lbs as he prepares for this challenge. \nThis is what Peter has told us:- \nMy friend & former work colleague Emma has been given a lot of help by the MDS UK Patient Support Group over the past few years. The way she’s borne up and remained positive through many years of illness has been incredibly inspiring\, going right back to when I covered her work during her first bone marrow transplant. Since then she’s been an incredible inspiration\, blogging about her successes and setbacks\, and she has put in a massive effort to stay fit and active.  \nMore recently\, during Covid 19\, I made a fairly major lifestyle change as I’d managed to let my weight push over 27 stone / 173kg. Since lockdown 1 in March 2020 I’ve been eating healthily and putting in a lot of miles of walking and running\, and have managed to lose over 9 1/2 stone / 60kg. As part of motivating myself for this effort I signed up to walk the 100km (62 mile) Thames Path Challenge in 1 day. I deliberately paid my own entry fee\, always intending to choose a charity ahead of the event to fundraise for.  \nRecently Emma discovered that MDS UK still had several places going for the Great North Run\, and posted on Facebook talking about how the charity have been incredibly supportive of her\, and encouraging her friends to consider taking up places - and she’s even scheduled her chemotherapy schedule around running it herself! I’m not (yet) fit enough for a half marathon (I’m hoping to get there in 2022)\, and the GNR starts a few hours after I’m due to finish the Thames Path Challenge so I wasn’t able to take a spot. However\, her words inspired me to look into MDS UK and the work they do\, and ultimately choose them to fundraise for. \nI’m really proud that I’ve been able to use my own transformation to give publicity to such a great small charity\, and amazed that I’ve been able to inspire my friends to respond so positively and generously.  \nWe are so grateful to Peter for making MDS UK his chosen charity because we have been able to offer support to Emma through her on-going treatment for MDS. \n\n\n\n \n \n\n\n \n \n \n Please Donate on Peter Cresswell's JustGiving Page \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n\n You can also make a significant difference to our small charity. MDS UK does not get London Marathon places – and relies on runners with ballot places. Please enter the ballot for next year and consider running for MDS UK.  \nAll the money we get goes to assist patients and families with information\, support and advice. \n\nAn hour on the helpline to newly diagnosed patients makes such a difference in most situations.\nOur information meetings are the next step – to help patients cope with making more sense of the medical journey they are on.\nOur local meetings help with the ongoing emotional support that is often needed.\n\nAll of this requires time and funds. Please enter the ballot and run for us! Every single runner will be absolutely worshipped! \nWith your help – we can help. \nMany thanks from the MDS UK Team \n\n \n \n Latest News \n \n \n \n \n\n\n \n \n \n \n \n \n \n \n \n \n\n MDS World Awareness Day October 25th – 2025 \n \n \n \n \n \n \n \n \n \n \n\n Blood transfusions explained : by Kelly Nwankiti\, Lead Nurse at King’s College Hospital \n \n \n \n \n \n \n \n \n \n \n\n Free NHS App for blood transfusion patients \n \n \n \n \n \n \n \n \n \n \n\n ‘Coping with an MDS Diagnosis’ – Presentation by Senior Psychotherapist Surabhi Chaturvedi \n \n \n \n \n \n \n \n \n \n \n\n New PyramIDH clinical trial for MDS with IDH1-mutation now recruiting in the UK \n \n \n \n \n \n \n \n \n \n \n\n Understanding stem cell therapy for MDS \n \n \n \n \n \n \n \n \n \n \n\n Thanks to our fundraisers\, a new MDS Quality of Life study is possible \n \n \n \n \n \n \n \n \n \n \n\n Update: Could Vitamin B5 help alleviate anaemia in MDS patients? \n \n \n \n \n \n \n \n \n \n \n\n Transforming MDS Care: New Patient Portal in Development – Dr Luke Carter-Brzezinski \n \n \n \n \n \n \n \n \n \n \n\n Joe Thomas is swimming the English Channel for MDS UK URL:https://mdspatientsupport.org.uk/event/rebecca-bennet-art-exhibition/ LOCATION:Rydehall Tea Shop\, Rydal Hall\, Ambleside\, Cumbria\, LA22 9LX\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://mdspatientsupport.org.uk/wp-content/uploads/2019/11/RBennettcards.jpg END:VEVENT END:VCALENDAR