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07 Mar 2015

Tilly’s wonderful donations for MDS and cancer

When is this event::

Date: 07/03/2015
Time:
6:00 pm

Organizer

MDS UK

Tilly had a target of £150 – but raised a SUPERB £858.76 !
Thank you Tilly, and also everyone who supported you in your project.

Update, video and photos of Tilly 08/03/15

We now have the photos and video clip of Tilly’s haircut moment.  8 year old daughter of MDS patient Gavin Hepburn Tilly has been growing her hair for some time – but has now decided to have it cut off to help the Princess Trust charity – and to raise funds for MDS UK.

This is how you donate hair to make wigs for patients undergoing cancer treatment.  Thank you Tilly – on behalf of all children with cancer – and our patients with MDS.  You are an amazing young lady!

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Step 1 – the hair washing

 

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Step 2 – drying

 

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Step 3 – the plaits to be cut off and donated

 

 

 

Tilly Hepburn’s hair donation for cancer and MDS UK from mds patient support on Vimeo.

 

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Finally – the beautiful Tilly – with the fantastic new hairstyle!

 

photo 1 Tilly with her Dad Gavin Hepburn – a lovely team

 

 

 

Tilly hepburnTilly Hepburn’s fundraising page

We have an amazing new fundraising event – from the 8 year old daughter of MDS patient Gavin Hepburn.  Tilly has been growing her hair for some time – but has now decided to have it cut off to help the Princess Trust charity – and to raise funds for MDS UK.

We let Tilly introduce her very generous event – on the 7th March.  Thank you SO MUCH Tilly!!!

Fundraiser: Tilly Hepburn

My page: http://uk.virginmoneygiving.com/TillyHepburn

Hi, thanks for visiting my page.

I’m doing this for a very special reason.My dad has got the disease of MDS.

My dad had a bone marrow transplant in 2013 and had other medicines. He had stem cells given to him by a stranger , which I think was very kind .

I’m very proud I am raising money for this charity, but also proud that my hair will be used to make a wig for a child who has cancer .

My challenge will take place on the 7th March at Cocos hairdresser in Maindenbower . My hairdresser Martine is doing it for me .

Thank you for visiting my page and spending your time looking

Tilly xxx

 

The Hepburn Family is pretty extraordinary – with sister Olivia, 10 year old, who wrote an letter to the newspaper, about her Dad’s disease.
We have now asked her to also record a few clips about MDS, explaining the disease from her perspective – and highlighting the need for stem cell donors.

HepburnfamilyDetails here – via the East Grinstead Online site:
http://bluebelldigital.co.uk/eastgrinsteadonline/please-help-daddy-says-olivia/
http://bluebelldigital.co.uk/eastgrinsteadonline/olivia-film-charity-videos/

“WE’VE had a very special letter this week from ten-year-old Olivia Hepburn (above left) telling us about her dad Gavin who is currently in hospital being treated for Myelodysplastic Syndrome (MSD), a rare blood disorder which stops the body producing the right amount and quality of  blood cells.

People with MDS suffer from chronic tiredness and weakness due to the low levels of haemoglobin, which is debilitating and often requires regular blood transfusions which are time-consuming and restrictive.

Their platelet numbers, which prevent bleeding and bruising, can often be very low, and if they injure themselves, sustained blood loss may be excessive.

Gavin, who lives in Stephenson Drive, was diagnosed with MDS in 2012, and thanks to the Antony Nolan Trust received a bone marrow transplant at King’s College hospital in 2013.

He recovered very quickly, said Olivia’s mum Lisa, but after the family’s holiday this year was unwell again and it was discovered that the two per cent of his own bone marrow that he still has was driving his blood count down again.

As a result Gavin is back in hospital at the moment receiving chemotherapy, and then hopes to have another transplant to kill off the last of his rogue cells.

daniel-holahBut while her dad is in hospital, Olivia is determined to raise cash for the charity which has helped her and the rest of her family  – which includes her eight-year-old sister Tilly and brother Ellis who is five – over the past two years.

So she wrote and asked if we let our readers know that her uncle, Daniel Holah (right and below) has agreed to run his sixth London Marathon for the MDS charity.

The disease is so rare, and the charity so small, that it has no allocated spaces, and relies on individuals who have won a place in the ballot to nominate them as the recipients for their sponsor money – and this year Daniel is the only runner raising money for them, said Lisa.

To support the charity – and Olivia’s efforts to help her dad – see Daniel’s page at:  http://uk.virginmoneygiving.com/DanielHolah
End of article 1

Article 2

“TWO weeks ago we published a very special letter from ten-year-old Olivia Hepburn (above left) telling us about her dad Gavin who was in hospital being treated for Myelodysplastic Syndrome (MSD), a rare blood disorder which stops the body producing the right amount and quality of blood cells.

Olivia was determined to do all she could to raise cash for the charity which has helped her and the rest of her family  – which includes her mum Lisa,  her eight-year-old sister Tilly and brother Ellis who is five – over the past two years.

So she wrote and asked if we let our readers know that her uncle, Daniel Holah had agreed to run his sixth London Marathon for the MDS charity.

MDS is so rare and the charity so small that they receive no allotted spaces but rely on individuals to choose to support them – and this year Daniel is their only runner.

As a result of her letter to us, Olivia has raised huge awareness about MDS – and the charity has now asked her to record three video messages for their website, which will explain the disease to people from a young person’s point of view.

Meanwhile her little sister Tilly has set her own fundraising goal, said Lisa.

“She has been growing her hair for many months and has decided that she wants to donate it to The Princess Trust,  a charity that makes wigs for children with cancer.

“I’m doing this for a very special reason,” said Tilly. “My dad had a bone marrow transplant in 2013 and had other medicines. He had stem cells given to him by a stranger, which I think was very kind.

“I’m very proud I am raising money for this charity, but also proud that my hair will be used to make a wig for a child who has cancer.”

And just one day after putting up her page on Virgin Money Giving, Tilly has already exceeded her target, said Lisa.

“As you can imagine we are exceptionally proud of both girls, especially as Gavin is going through a very hard time with the treatment.

“Thank you so much for highlighting our cause.”

Tilly’s fundraising page is at: http://uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserPage.action?userUrl=TillyHepburn&faId=541349&isTeam=false

And to sponsor Daniel in the Marathon go to:  http://uk.virginmoneygiving.com/DanielHolah
End of article 2

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