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22 Mar 2019

MDS UK Patient and Family Forum – Friday 22nd March 2019

When is this event::

Date: March 22
Time:
10:00 am - 4:40 pm

Venue

Crown Hotel Harrogate
Crown Place
Harrogate, North Yorkshire HG1 2RZ United Kingdom
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MDS UK Patient and Family Forum

Free Whole Day Event (lunch included) - Harrogate, UK

When:      Friday 22nd March, 2019 10.00 am – 16.40 pm
Where:     Crown Hotel Harrogate, Crown Place, Harrogate North Yorkshire, HG1 2RZ

This meeting is free of charge and open to MDS patients and their guests. Lunch will be served.

The day includes presentations by MDS experts, guest speakers and patients on topics of clinical trials, new therapy options, including opportunities to ask questions and meet fellow patients, in our Quality-of-life session – Living with MDS.

WOULD YOU LIKE TO PRINT THE AGENDA? CLICK HERE FOR A PRINTABLE VERSION

*** 10.00am Registration opens - Tea/Coffee - Book your questions opportunity ***

  • 10.20 Welcome and introductions, S. Wintrich, MDS UK - 5min Patient Speaker: “Making sense of information after diagnosis” - 5min
  • 10.30 What is MDS & current treatment options – with 10min Q&A
    Prof David Bowen, Consultant Haematologist, St. James's Institute of Oncology, Leeds
  • 11.10 New advances in MDS and emerging treatment options – 25min
    Dr Catherine Cargo, Consultant in Clinical Haematology, St. James's Institute of Oncology, Leeds
  • 11.35 Research, trials and projects in MDS 45min + 10min Q&A
    Dr Simone Green, Consultant Haematologist, Hull and East Yorkshire Hospitals
    Patient input for design & revision of clinical trial documentation – Patient Claudia Richards
    EU MDS Project, Catherine Langton, Myeloid Research Nurse, St. James's Institute of Oncology, Leeds

    *** Approx 12.30 – 13.30 Lunch ***

  • 13.30 Patient Forum Discussion – Living with MDS Session - 90min CNS, Leeds; S. Wintrich, MDS UK
    Patient speakers – “Coming to terms with MDS”

    *** 15.00 -15.15 Grab a tea/coffee/biscuit - mini break ***

  • 15.15 Specialist sessions (45min split workshop groups):
    BMT - YES: What you need to know and can expect regarding a stem cell transplantDr Anjum Khan, St. James's Institute of Oncology, Leeds; Patient Speaker
    OR
    BMT - NOT for me: Options for those who cannot undergo a transplant, or opted against one
    Prof David Bowen, Consultant Haematologist, St. James's Institute of Oncology, Leeds; Patient Speaker
  • 16.00 MDS UK activities & Next steps for the region - 40min MDS local groups, S Wintrich, Regional Coordinators, Patient and carers Creation of a Yorkshire Local Group
  • 16.40 – End of sessions

Please help us improve by filling out the feedback form in your packs!

For help, information, patient packs, or to become a MDS UK member: Tel 020 7733 7558 or admin1@mdspatientsupport.org.uk

Harrogate Forum 22nd March 2019 - Final
Free donations by shopping