MDS UK Patient & Family Forum

MDS UK Patient and Family Forum

Free Whole Day Event (lunch included) - Birmingham, UK

When:      Saturday 4th February, 2017: 10.00 am – 16.00 pm
Where:     Motorcycle Museum, Coventry Road, Bickenhill, Solihull, West Midlands B92 0EJ

This meeting was free of charge and open to MDS patients and their guests.

The day covered the following talks and sessions. Download the full agenda here

* Patient Forum Discussion: Quality of life session

Peter James, Clinical Nurse Specialist, Worcestershire Acute Hospitals NHS Trust
Sophie Wintrich
Dr Richard Murrin, Haematologist, Sandwell and Birmingham Hospital

* Specialist Q&A sessions (split groups): Stem cell transplant and Fatigue/drug treatment

Transplant: Naomi Dean, BMT coordinator , QE, Birmingham
Russell Cook, Blossom Bell, Sam Tasker – Transplant patients
Fatigue: Peter James, CNS, Worcestershire Acute Hospitals NHS Trust
Sophie Wintrich

* Research Panel: Clinical trials set-up, new trials, cytogenetics, molecular diagnostic methods

Susan Smith, Research Nurse, Kings Mill Hospital, Sutton in Ashfield,
Sophie Wintrich

* Diagnosis of MDS and treatment options, Q&A opportunity

Dr Justin Loke, Haematologist, QE, Birmingham

* MDS UK activities and regional groups:

Sophie Wintrich, CEO/Patient Liaison, MDS UK
Janet and Bev Nye (Derby Group patient members)
Claudia Richards (Oxford Group Coordinator)
Tracey Noye, Sam Tasker, Blossom Bell, Russell Cook (Patient members)