The Oxford Blood Group is offering an enriching two-part online event to take place on March this year.
The event is a ‘research priority setting’ workshop and will bring together people with experience of MDS, to discuss what should be the top priorities for MDS research.
There is plenty of evidence to reveal that the people who make decisions about medical research do not always understand what matters most to the people who live with the condition in question
The consequences of this are potentially serious. Research is used to drive treatments and policy making, but if it neglects to address patients’ concerns, then the policy making will neglect these issues too.
HOW DOES IT WORK?
The participants involved will reflect on their own experience: what questions matter most? What do you think research has neglected? What questions need answers? The responses and thoughts will be then translated into a series of research questions, to be shared with clinical colleagues and MDS experts.
This is an exercise with real potential to make the patient voice heard in medical research and we strongly recommend you to take part!
You should attend both meetings, as the whole process will be split between the two dates. It will be run by professional facilitators, and will be social and fun as well as meaningful.
March 15, 2021 2:00 PM to 4:30 PM
March 22, 2021 2:00 PM to 4:30 PM
If you'd like to join the events, or need further information, please contact Dr Catriona Gilmour Hamilton, Haematology Quality Manager: Patient Experience and Engagement, Oxford Blood Group PPI Co-ordinator at OxfordBloodGroup@ouh.nhs.uk. Places are limited.
