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Patients and families are invited to attend the Myelodysplastic Syndromes & Aplastic Anaemia local support group meeting at King’s College Hospital London.
This is a greater London specific meeting. We hope to hold these local meetings every 3-4 months – if enough patients are interested in participating.
WHEN: Thursday 19 July 2012, 3pm to 6pm
WHERE: Dinwoodie Rooms 1&2, Ground Floor, Cicely Saunders Institute, Bessemer Road, London SE5 9PJ
Attending the meeting:
Professor Ghulam Mufti, Haematologist, King’s College Hospital
Professor Judith Marsh, Haematologist, King’s College Hospital
Nana Benson-Quarm, CNS Aplastic Anaemia, King’s College Hospital
Anna Martin, CE, Aplastic Anaemia Trust
Bryony Dettmar, Patient Support, Aplastic Anaemia Trust
Rodney Taylor, Chairman, MDS UK Patient Support Group
Sophie Wintrich, CE, MDS UK Patient Support Group, AA Registry Manager
AGENDA: There will be split discussion groups for MDS and AA patients.
15:00 Welcome, introduction of talks, participants and speakers.
Anna Martin, Rodney Taylor, Nana Benson-Quarm, Bryony Dettmar, Sophie Wintrich
Speakers: Professor Mufti, Professor Marsh
Brief introduction round from all patients/family members present
15:30 Informal group presentations by physicians
Room 1 Prof G Mufti – MDS group – incl Rodney Taylor, Sophie Wintrich
Room 2 Prof J Marsh – Aplastic Anaemia group – incl Nana Benson-Quarm, Bryony Dettmar
16:00 Question and Answer Session – Group discussions
16:20 Tea/coffee mingling/chat opportunity
17:00 Combined AA-MDS group – general discussion and future events
Future meetings for AA/MDS – theme or special presentation? Nana BQ/Bryony D
Update on other local groups – Cambridge/Oxford/Exeter – Sophie W/Bryony D
Events coming up in/around London – Anna M/Sophie W
Fundraising updates/suggestions – Anna M/Sophie W.
Time for filling out Feedback forms
18:00 Close of meeting
Please click here to download the full meeting agenda and event details.
Please let us know you are coming by calling Nana on 0203 299 7663 or Sophie on 0207 733 7558
We hope to see you there!
