- This event has passed.
Patients and families are invited to attend the Myelodysplastic Syndromes & Aplastic Anaemia local support group meeting at King’s College Hospital London.
This is a greater London specific meeting. In 2013 there will be 3 such meetings – held on KCH MDS clinic days – to make it easier for people to attend.
Monday 25th March 2013, 3pm to 6pm
Monday 15th July 2013, 3pm to 6pm
Monday 11th November 2013, 3pm to 6pm
WHERE: Dinwoodie Rooms 1&2, Ground Floor, Cicely Saunders Institute, Bessemer Road, London SE5 9PJ
Attending the meetings
MDS and AA haematologists from King’s College Hospital (whenever possible)
Professor Judith Marsh
Professor Ghulam Mufti
Dr Austin Kulasekararaj
Clinical specialist nurses for MDS and AA
Nana Benson-Quarm, CNS Aplastic Anaemia
Geke Ong, CNS MDS
Janet Hayden, CNS MDS
Anna Martin, CE, Aplastic Anaemia Trust
Bryony Dettmar, Patient Support, Aplastic Anaemia Trust
Rodney Taylor, Chairman, MDS UK Patient Support Group
Sophie Wintrich, CE, MDS UK Patient Support Group, AA Registry Manager
AGENDA: There will be split discussion groups for MDS and AA patients.
Part 1 – 3pm – Welcome, introductions, tea/coffee
Anna Martin, Rodney Taylor, Nana Benson-Quarm, Bryony Dettmar, Sophie Wintrich
Brief introduction round from all patients/family members present
Part 2 – 3.45pm Informal group presentations by physicians or nurses
Room 1 Prof G Mufti or Dr Austin or Geke Ong and Janet Hayden – MDS group
Room 2 Prof J Marsh or Nana Benson Quarm– Aplastic Anaemia group
4.15pm Question and Answer opportunity
4.45pm Tea/coffee mingling/chat opportunity with everyone
5.30pm Combined AA-MDS group – general discussion and future events
18:00 Close of meeting
If you can – please let us know you are coming by calling Nana on 0203 299 7663 or Sophie on 0207 733 7558
But feel free to just turn up on the day – you will be very welcome
We hope to see you there!