MDS & AA – Local Patient Group Meeting – London – King’s College Hospital

Patients and families are invited to attend the Myelodysplastic Syndromes & Aplastic Anaemia local support group meeting at King’s College Hospital London.

This is a greater London specific meeting.   In 2013 there will be 3 such meetings – held on KCH MDS clinic days – to make it easier for people to attend.

WHEN:
Monday 25th March 2013, 3pm to 6pm
Monday 15th July 2013, 3pm to 6pm
Monday 11th November 2013, 3pm to 6pm

WHERE: Dinwoodie Rooms 1&2, Ground Floor, Cicely Saunders Institute, Bessemer Road, London SE5 9PJ

Attending the meetings

MDS and AA haematologists from King’s College Hospital (whenever possible)

Professor Judith Marsh
Professor Ghulam Mufti
Dr Austin Kulasekararaj

Clinical specialist nurses for MDS and AA

Nana Benson-Quarm, CNS Aplastic Anaemia
Geke Ong, CNS MDS
Janet Hayden, CNS MDS

Also present

Anna Martin, CE, Aplastic Anaemia Trust

Bryony Dettmar, Patient Support, Aplastic Anaemia Trust

Rodney Taylor, Chairman, MDS UK Patient Support Group

Sophie Wintrich, CE, MDS UK Patient Support Group, AA Registry Manager

AGENDA: There will be split discussion groups for MDS and AA patients.

Part 1 – 3pm – Welcome, introductions, tea/coffee

Anna Martin, Rodney Taylor,  Nana Benson-Quarm, Bryony Dettmar,  Sophie Wintrich

Brief introduction round from all patients/family members present

Part 2 – 3.45pm Informal group presentations by physicians 

Room 1 Prof G Mufti or Dr Austin  – MDS group – incl Geke, Janet
Room 2 Prof J Marsh – Aplastic Anaemia group – incl Nana

4.15pm Question and Answer opportunity

4.45pm Tea/coffee mingling/chat opportunity with everyone

5.30pm Combined AA-MDS group – general discussion and future events

18:00 Close of meeting

If you can – please let us know you are coming by calling Nana on 0203 299 7663 or Sophie on 0207 733 7558
But feel free to just turn up on the day – you will be very welcome

We hope to see you there!