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09 Mar 2016

MDS, AA, AML – London Local Patient Meeting at KCH

When is this event:

Date: 09/03/2016
3:30 pm




Weston Education Centre
London, SE5 9RJ United Kingdom + Google Map

MDS, AA, AML – London Local Patient Meeting at KCH

(2 minute walk from previous meeting location).

Patients and families are invited to attend the Myelodysplastic Syndromes & Aplastic Anaemia & Acute Myeloid Leukaemia local support group meetings for the London area at King’s College Hospital London.
Meetings are held after KCH clinic days – for MDS, AA and AML to make it easier for people to attend.
You do not need to be a King’s patient to attend – any patients with a diagnosis of AA, MDS or AML are welcome.

PDF 2016 Meeting dates to download:  2016 MDS_AA Support Grp meetings London

Time:    3.30 pm – 6.30 pm
Where:  Postgraduate Conference Centre, Ground Floor, Weston Education Centre, Cutcombe Road, London SE5 9RJ. (On the right hand side when you face the main Hambledon Wing entrance, opposite main car park, next to the new Wohl Institute).

Please do start thinking about topics and talks for 2017 – we’d want to hear from you – tell us about your questions and queries.
Please feel free to volunteer to give a talk yourself about your experience – this is SO HELPFUL to others who are newly diagnosed.

Wednesday, 9th March 3.30-6.30         

New treatments/trials and Q&A with Dr Austin Kulasekararaj

Nutrition Talk by Joanna Injore, Lead Macmillan Haemato-Oncology Dietitian at KCH

Group discussion


Next 2 meetings for 2016:

Monday, 27th June 3.30-6.30  

Role of carers and services offered, Southwark Carers talk

Carer – personal experience talk

Group discussion


Monday, 21st November 3.30-6.30  

Specialist nurses Q&A – Post treatment effects

Fatigue & Exercise diaries, feedback from users & physiotherapist

Group discussion

Attending the meetings

MDS and AA haematologists from King’s College Hospital (whenever possible) – many thanks for your time and participation !
-Professor Judith Marsh
-Professor Ghulam Mufti
-Dr Austin Kulasekararaj

Clinical specialist nurses for MDS and AA attending each meeting – many thanks for giving up your time !
Nana Benson-Quarm, CNS Aplastic Anaemia
Geke Ong, CNS MDS
Janet Hayden, CNS MDS

If you can – please let us know you are coming by calling Nana on 0203 299 7663 or Sophie on 0207 733 7558
But feel free to just turn up on the day – you will be very welcome

We hope to see you there!

Free donations by shopping