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05 Mar 2014

MDS, AA, AML Local patient meetings 2014 – London

When is this event:

Date: 05/03/2014
5:00 pm




MDS Local Bessemer Road
Bessemer Road
London, SE5 9PJ United Kingdom
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Patients and families are invited to attend the Myelodysplastic Syndromes & Aplastic Anaemia local support group meetings for the London area at King’s College Hospital London.

Please note we have extended this group to AML patients and relatives as well!

This is a greater London specific meeting.
As with last year – there will be 3 such meetings in 2014 – held KCH clinic days – for MDS and AA to make it easier for people to attend.

Wednesday 5th March 2014, 5pm to 7.30pm
Monday 2th June 2014, 3pm to 6pm
Monday 27th October 2014, 3pm to 6pm

5th March – Macmillan Centre, Cicely Saunders Institute, Bessemer Road, London SE5 9PJ

June and October meeting – Dinwoodie Rooms 1&2, Ground Floor, Cicely Saunders Institute, Bessemer Road, London SE5 9PJ

Special Speakers

5th March:
– Emma Paine, Patient – will talk about her bone marrow transplant experience
– Joyce Turner, Patient – will talk about how she has been coping to date with her Aplastic Anaemia illness – from diagnosis to now.

2nd June – Philip Alexander, Counsellor @ KCH – will talk about relaxation techniques and how to overcome feelings of anxiety

Attending the meetings

MDS and AA haematologists from King’s College Hospital (whenever possible)

Professor Judith Marsh
Professor Ghulam Mufti
Dr Austin Kulasekararaj

Clinical specialist nurses for MDS and AA

Nana Benson-Quarm, CNS Aplastic Anaemia
Geke Ong, CNS MDS
Janet Hayden, CNS MDS

Also present

Anna Martin, CE, Aplastic Anaemia Trust

Bryony Dettmar, Patient Support, Aplastic Anaemia Trust

Rodney Taylor, Chairman, MDS UK Patient Support Group

Sophie Wintrich, CE, MDS UK Patient Support Group, AA Registry Manager

Usual Agenda:

Presentation followed by tea/coffee.
Question and Answer session
Discussion session for all attendees – get to know each other

If you can – please let us know you are coming by calling Nana on 0203 299 76630203 299 7663 or Sophie on 0207 733 75580207 733 7558
But feel free to just turn up on the day – you will be very welcome

We hope to see you there!

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