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27/01/2023 Patient meeting about Low-risk MDS and the Repair MDS trials (with Professor Manoj Raghavan)
Come to a Patient Support meeting on Low-risk MDS and Repair MDS trials (led by Professor Manoj Raghavan)
Date: Friday 27th January
Time: 12 noon to 2 pm
Where: Online, Zoom Call
This meeting will cover topics aimed at Low-Risk MDS; in particular, the standard treatments available, the trials for this type of MDS, as well as the new clinical trial Repair MDS, using re-purposed drugs. The meeting would also be of interest to 'watch & wait' or pre-MDS patients.
The team of specialists involved in Repair MDS will be presenting the information, led by Professor Manoj Raghavan, Consultant haematologist, University Hospital Birmingham. This meeting will be recorded and available on the website later.
Please register in advance for this meeting by clicking on the red button below. After registering, you'll receive a confirmation email with information about how to join the meeting.
Subtitles on Zoom for the hard of hearing
We are aware that if you have a hearing impairment, you may have avoided registering for our Zoom meetings because you were worried you wouldn’t be able to hear what people were saying.
With the latest Zoom updates, MDS UK is now able to offer live subtitles at all our Zoom online meetings. It isn't perfect, as all of you used to using subtitles will know, because it depends on the clarity of each speaker! But it will help you to follow the conversations and join in the discussion.
If you would like to use this service, please make sure you request it in the questions and comments when you register for the Zoom meeting. Our office staff will then be able to set it up in advance and guide you through the process on the day of the meeting. It’s quite straightforward to set up and we hope it will enable more of you to join us.
Getting used to Zoom
It doesn't seem likely we'll be able to resume face-to-face meetings for a while yet, so we're continuing our virtual meetings on Zoom (as we know how important patient to patient contact is for everyone.) Even when face-to face meetings resume, we aim to maintain some virtual meetings as well, as these have attracted new members who had not come to face-to-face meetings previously.
Many patients have already embraced Zoom (or something similar) in order to stay in touch with family members during the lockdown. If you haven't, please contact us. If you are a first time user of video call – please don’t worry as we will sort out any technical issues at the start of each meeting.
If you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack, please contact our Main Office.
MDS UK Main Office
0207 733 7558