- This event has passed.
Friday 28th September, 2012
10.00 am to 4.00 pm – Lunch will also be served.
This FREE event was held at: Royal Lancaster Hotel, Lancaster Terrace, London W2 2TY
This meeting is free of charge and open to MDS patients and their guests. Patients and their families will have the opportunity to participate in this informal discussion regarding their quality-of-life issues living with MDS.
Pictures from this event
Agenda
All slide are available on our Information Materials page
MDS UK Patient and Family Forum
Beech Suite, Royal Lancaster Hotel
Lancaster Terrace
London W2 2TY
Friday 28th September, 2012
10.00 – 10.30am Welcome and registration process
* Tea/Coffee *
10.30 – 11.00 Introduction to MDS UK and today’s presentations
Rodney Taylor, Chairman, MDS UK Patient Support Group
11.00 – 11.15 Update on local groups and new website
Sophie Wintrich, Patient Liaison, MDS UK Patient Support Group
11.15 -13.00 Patient Forum Discussion – Quality of Life Session Geke Ong, Clinical Nurse Specialist
King’s College Hospital, London
Sophie Wintrich, MDS UK
13.00 – 14.00 Lunch
13.45 – 14.00 Optional IT and message forum tuition – 15 min
Alice Murphy, Project Worker, MDS UK
14.00 – 15.00 MDS – Diagnosis, Treatment and Research update
Austin Kulasekararaj, Consultant Haematologist
King’s College Hospital, London
15.00 – 15.15 Questions and Answers – Presentation 1
Austin Kulasekararaj & Geke Ong
15.15 – 15.45 Benefits and Welfare advice for MDS patients
Speaker: Macmillan Welfare Benefits Adviser
15.45 – 16.00 Questions and Answers – Presentation 2
Click here for a printable version of the Agenda.
For more information and reserve a space, please call or email
The main office at 020 7733 7558
Or email swintrich@mds-foundation.org
