- This event has passed.
3/10/13 – Update for attendees – and potential new attendees – we had a handful of cancellations – so please feel free to come along on the day – even if you have not reserved a space. You will be very welcome.
Updated Agenda 2/9/13
This is our annual information meeting for MDS patients and family members – as well as friends.
Please do tell your local haematologist and nurses about this event – and encourage them to send their patients to attend.
When: Friday 4th October 2013
10.00 am to 4.00 pm – Lunch will also be served.
Where: Beech Suite
Royal Lancaster Hotel, Lancaster Terrace, London W2 2TY
This meeting is free of charge and open to MDS patients and their guests. Patients and their families will have the opportunity to participate in this informal discussion regarding their quality-of-life issues living with MDS.
All presentation slides will be available on our Information Materials page – after the event.
Last year’s slides are already available.
For more information and to reserve a space, please call or email
The main office at 020 7733 7558
Or email firstname.lastname@example.org
10.00 – 10.30amWelcome and registration process – Tea/Coffee
10.30 – 10.45 Introduction on MDS UK, activities and regional groups
Sophie Wintrich, Chief Executive, MDS UK Patient Support Group
10.45 – 11.05 MDS UK Campaigns and Access to treatment
Sophie Wintrich, MDS UK
11.05 -13.00 Patient Forum Discussion – Quality of Life session
Geke Ong,Janet Hayden, Clinical Nurse Specialists
King’s College Hospital, London
13.00 – 14.00Lunch
13.45 – 14.00 Optional MDS message forum tuition – 15 minutes
David Jacobs, MDS UK member
14.00 – 15.00 MDS – Diagnosis, Treatment and Research update
Austin Kulasekararaj, Consultant Haematologist King’s College Hospital, London
15.00 – 15.25 Questions and Answers – an opportunity to ask the King’s team all types of clinical questions
Austin Kulasekararaj & Geke Ong & Janet Hayden
15.30 – 15.55 Optional Q&A on BMT – Bone Marrow Transplants
15.55 – 16.00 Close of meeting