Bournemouth MDS UK Local Patient Meeting – 12/03/19

BOURNEMOUTH MDS SUPPORT GROUP MEETINGS

PATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES

MEETINGS EVERY 4 MONTHS FOR COFFEE AND A CHAT

“Please note: The 12^th March meeting is exceptionally changed to a Tuesday – rather than the standard Wednesday.

Subsequent meetings in 2019 will be held on a Wednesday – as per usual.”

Come and join this growing and energetic group in this region. All local patients are welcome to attend, as are relatives and friends.
This is an opportunity to get to know one another, share experiences and increase the support network in the area.

This is also an important opportunity for newly-diagnosed patients to meet others who have been living with MDS for a while.
Thank you for making everyone welcome.

Time:              10.30 am – 1 pm - Tea and coffee will be served from 10.00
Location:       The Grove Hotel, 2 Grove Road, East Cliff, Bournemouth, Dorset, BH1 3AU
Parking:         If the Grove Hotel parking is full, please ask the Grove Hotel reception if you can have a permit to park at the Miramar Hotel (Opposite the Grove Hotel)

Agenda:

Agenda 12^th March

• 10.00am arrival for start at 10.30am Coffee/Tea
• 10.30 - 11.20 Discussion – Patients and carers share their experience in dealing with the disease
• 11.20 - 11.45 Coffee/Tea
• 11.45 - 12.45 Presentation by Guy Rouquette, Member of the Bournemouth MDS Support Organisation Committee on “MDS and Quality of Life: assessment and coping suggestions”
• 12.45 - 13.00 wrap up

Please feel free to suggest topics and themes that you would like to hear about - or speakers you have found helpful.
Please also consider giving a brief informal chat yourself about how you are dealing with MDS - what you have learnt, what has been helpful, what has been good to avoid as well.  This is incredibly useful information to share with others.

Carers/relatives/friends also particularly welcome to share their experience.  As an observer, you see things differently, you will contribute immensely to such a group meeting. You also have tips and advice - for patients, but also for fellow carers.
You need support too - it is sometimes not so easy.  Come and share what is helping you - and what's not so helpful.