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BOURNEMOUTH MDS SUPPORT GROUP MEETINGS
PATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES
WEDNESDAY MEETINGS EVERY 4 MONTHS FOR COFFEE AND A CHAT
Come and join this growing and energetic group in this region. All local patients are welcome to attend, as are relatives and friends.
This is an opportunity to get to know one another, share experiences and increase the support network in the area.
This is also an important opportunity for newly-diagnosed patients to meet others who have been living with MDS for a while.
Thank you for making everyone welcome.
Time: 10.30 am – 1 pm - Tea and coffee will be served from 10.00
Location: The Grove Hotel, 2 Grove Road, East Cliff, Bournemouth, Dorset, BH1 3AU
Parking: If the Grove Hotel parking is full, please ask the Grove Hotel reception if you can have a permit to park at the Miramar Hotel (Opposite the Grove Hotel)
7th November Guest Speaker: - Dr Christopher Dalley, Consultant haematologist, University Hospital Southampton
10:30 - 11.20 Opportunities for participants to share experiences in dealing with MDS, concerns, advice etc
11:20 - 11.45 Coffee break
11.45 - 12.45 Presentation by Dr Dalley on molecular mutations including what they are, and how haematologists use them for diagnosis, prognosis and overall management.
12:50 - 13.00 Wrap up
Please feel free to suggest topics and themes that you would like to hear about - or speakers you have found helpful.
Please also consider giving a brief informal chat yourself about how you are dealing with MDS - what you have learnt, what has been helpful, what has been good to avoid as well. This is incredibly useful information to share with others.
Carers/relatives/friends also particularly welcome to share their experience. As an observer, you see things differently, you will contribute immensely to such a group meeting. You also have tips and advice - for patients, but also for fellow carers.
You need support too - it is sometimes not so easy. Come and share what is helping you - and what's not so helpful.
Patients in the Wessex region can also benefit from additional complementary treatments and services, provided free of charge by the Wessex Cancer Trust.
We encourage you to check their website:
www.wessexcancer.org.uk/Pages/Category/centres At all of our free Cancer Support Centres, clients are welcomed by our volunteer befrienders who are equipped to provide information, support and a listening ear.
Our team of specialist counsellors are there to help deal with the emotional impact of cancer and our complementary therapists aim to improve well-being, help with pain management and increase self-confidence.
If you have never contacted MDS UK, please contact us for a full Patient Information Pack before attending the Bournemouth Support Group.
If you can, please tell us if you are coming – this will help us to plan refreshments
If you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack, please contact our Main Office.
MDS UK Main Office
0207 733 7558
Getting to the hotel:
Arriving by Car:
On the Wessex Way (A35 or A338) when you approach the main roundabout, turn into St. Paul’s Road (Asda will be on your left). At the next roundabout turn right into Holdenhurst Road which is the B3066. At the next roundabout, which is the Lansdowne roundabout, take the third exit into Bath Road. Follow this road until the next roundabout (on your left is a petrol station) go onto the roundabout and take the second exit. Just before you take the exit you should see The Grove from the road. You are now on Grove road. The first turning on your left is our entrance to the car park.
Arriving by Coach or Train:
The main Bournemouth train and coach stations are both situated less than a mile from the Grove. Taxis are always available at the station.
Arriving by Air:
Bournemouth International Airport is 7 miles away from the Grove.