Annual National London Patient Meeting – 3/10/14

This is our annual information meeting for MDS patients, family members and friends.
Please do tell your local haematologist and nurses about this event – and encourage them to send their patients to attend.

When: Friday 3th October 2014
10.00 am to 4.00 pm – Lunch will also be served.

Where: Beech Suite
Royal Lancaster Hotel, Lancaster Terrace, London W2 2TY

This meeting is free of charge and open to MDS patients and their guests. Patients and their families will have the opportunity to participate in this informal discussion regarding their quality-of-life issues living with MDS.

All presentation slides are available below as well as on our Information Materials page.

• AGENDA – MDS Forum, London, 3rd Oct 2014
• SLIDES – Coping with Anxiety, Anne Crook, The Christie NHS Foundation Trust
  
• HANDOUT – Coping with Anxiety, Anne Crook, The Christie NHS Foundation Trust
  
• SLIDES –  Myelodysplastic Syndromes, Part 1, Dr Austin Kulasekararaj, King’s College Hospital NHS Foundation Trust
• SLIDES – Myelodysplastic Syndromes, Part 2, Dr Austin Kulasekararaj, King’s College Hospital NHS Foundation Trust
  
• SLIDES – MDS Patient Forum, Sophie Wintrich, MDS UK
  
• SLIDES – MDS National Survey, Monika Janosik, MDS UK

For more information and to reserve a space, please call or email
The main office at 020 7733 7558
Or email projectworker@mdspatientsupport.org.uk

Final Agenda (please note – we changed the order of the presentations)

10.00 – 10.30am    Welcome and registration process
* Tea/Coffee *

10.30 – 10.40    Introduction to MDS UK
Sophie Wintrich, Chief Executive, MDS UK Patient Support Group

10.40 – 11.15    Coping with Anxiety
Anne Crook, Counsellor/Cognitive Behavioural Therapist
The Christie, Manchester

11.15 -12.15     Q&A/Patient Forum Discussion – Quality of Life Session
Anne Crook
Janet Hayden, Clinical Nurse Specialist
King’s College Hospital, London

12.15        Lunch

13.00 – 14.30    Diagnosis, Treatment and Research update
Austin Kulasekararaj, Consultant Haematologist,
King’s College Hospital, London – Incl Q&A session

14.45 – 15.30    MDS UK Campaigns and Access to treatment, Activities
Survey update
Sophie Wintrich, MDS UK
Monika Janosik, MDS UK

15.30 – 16.00     MDS UK Regional Groups
Members involved in a local group

16.00Close of meeting