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02 Oct 2015

Annual National London Patient Meeting – 2/10/15

When is this event:

Date: 02/10/2015
10:00 am




Lancaster Terrace London Hotel
Lancaster London Hotel, Lancaster Terrace
London, W2 2TY United Kingdom
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This is our annual information meeting for MDS patients, family members and friends.

Please do tell your local haematologist and nurses about this event
– and encourage them to tell their patients about it.


When: Friday 2nd October 2015, 10.00 am to 16.30 pm

Sandwich lunch will be served.

WhereBeech Suite, Lancaster London Hotel, Lancaster Terrace, London W2 2TY

Dr Dominic Culligan from Aberdeen Royal Infirmary in Scotland will deliver a general presentation on MDS, update us on new treatments and answer your questions.
He will also give a detailed update on current and future Clinical Trials in MDS.

Clinical nurse specialists Janet Hayden and Geke Ong from King’s College Hospital, Shahnaz Hama from Nottingham University Hospital and Phyllis Paterson from Addenbrooke’s, Cambridge will facilitate our Quality of Life discussion.

Provisional Agenda (times and order of the day may change slightly):

Download agenda in PDF: London Forum Agenda 2Oct2015

10.00 – 10.30am    Welcome and registration process
Book your questions opportunity
* Tea/Coffee *

10.30 – 11.00 Introduction to MDS UK activities
Sophie Wintrich, Chief Executive, MDS UK
Rodney Taylor, Chairman, MDS UK
Monika Janosik, Project Worker, MDS UK
Q&A; Mindfulness; Survey update

11.00 – 12.10 Diagnosis, Treatment and Clinical Trials update
Dr Dominic Culligan, Haematologist
Aberdeen Royal Infirmary, Aberdeen
Incl 15 min Q&A

12.10- 12.25 Nurses update on MDS news and Quality Of Life studies around the globe from the recent MDS Symposium May 2015

12.25        * Lunch *

13.10 – 14.30 Q&A/Patient Forum Discussion – Quality of Life Session
Janet Hayden, CNS – Geke Ong, CNS – Phyllis Paterson, CNS

* Tea break and split into groups (15min) *

14.45 – 16.00
Group 1 – Stem Cell Transplant
Janet Hayden, CNS; Shahnaz Hama, CNS; Russell Cook, Patient


Group 2 – Fatigue & Supportive Care
Geke Ong, CNS; Phyllis Paterson, CNS; Kes Grant, Patient

16.00 – 16.30      Regional groups update & Mindfulness exercise


This meeting is free of charge and open to MDS patients and their guests.

Patients and their families will have the opportunity to share experiences and participate in the informal discussion regarding their quality-of-life issues living with MDS.

For more information or to reserve a space, please contact the main office:

Tel: 020 7733 7558
Email admin1@mdspatientsupport.org.uk

Feel free to send us your questions ahead of time – this will help us plan our talks.

Please specify any dietary preferences:
Neutropenic diet
Gluten free

Free donations by shopping