Friendship

By Kate D.

Friendship is my medication.
A hug, a look;
language that is not used
or known by those who
are not in the know;
caught up in the new
jargon that this
disease offers us.

My despicable cancer
has enabled new friendships,
renewed old and erased others.
Around coffee cups we sit,
or we walk and talk about…
all sorts; sometimes
cancer, sometimes not.

I am after all, a normal person
trying to accept what
has had to become
my new normality.

Heart and Soul

by Chris Davis

No, I don't believe we'll part,
Never, ever,
Ever you'll be my lover,
My shoulder when you suffer,
My soul is yours,
And yours is mine,
Even when we have no time,
And we lay together,
In peace forever.

 

 

 
On earth it was the the time to meet,
And find our love,
Is forever deep,
Enough to greet,
The final rest,
The final breath,
The final beat,
Within our breast.

Heavy Luggage

I waited at the station with my little case on wheels,
I worried about lifting it because of the heaviness it feels,
Then the thought of you waiting patiently at another end,
I knew that I could do it and not disappoint a friend.

I waited at the airport with my iphone in my hand,
Not to take a photo because I wasn’t feeling grand,
My little case on wheels sat beside my chair,
My heart felt torn in two and I felt some despair,

Soaring through the sky I felt at peace with life,
Down below the toy town cars glinted in the strife,
Magic fairy lights all twinkled on the map of France,
As the airline staff started their aisle feeding dance.

 

 

I leave behind a piece of me each time I hug goodbye,
To my son, my two daughters, my grandchildren, how I cry,
One in London, one in Spain, one resides quite near,
But parting isn’t easy from the ones you hold so dear.

I waited on the ward for my treatment that is free,
With gratitude I wonder how they donated it for me,
We always take for granted all the things around us,
Until one day a wakeup calls us to a different bus.

Now each day is precious even though I am so tired,
I want to be an astronaut that never is retired,
I want to take my little case and visit every place,
It gives me hope to help me cope with a smile upon my face.

Watch and Wait

By David McIntosh

I’ve got Blood Cancer!
Don’t worry it’s just low risk
Only Watch and Wait

Invisible

By Kate D

“You look well” you say,
brackets, (“for someone with cancer.)
And I think,
“Do I?
Do I really?
Because I don’t feel well at all.”

Peel off my steroid mask,
The wig and the rosy drug induced glow,
And you will see pain
And sing a different tune.

If I wore a scarf on my head,
turban - style, had a plaster cast or a
walking stick,
You would know .

I haven’t.
So you don’t.
But let me reassure you,
if you could feel the pain in my joints,
shooting as a bullet does
minute by minute,
or worse,
suddenly
taking you unawares.

If you could feel
legs and arms like jelly
refusing to obey commands.

If you got stuck and
and had to phone
for help.

If you lost all your independence.
If you had all those things, then
you would know and never
say those words to anyone -
again.

How are you?

By Kate D

Do you really want to know how I am?
Are you interested in
how I’m feeling today,
yesterday and tomorrow?
Then be prepared to listen.
Not with a sideways tilt of your head
and a look of sympathy with
nodding accompaniment.
Not with “I know” or
“I knew someone who…”
“My mum/aunt/sister/ brother/
cat and dog…"

If you ask the question
It deserves investment;
Investment in time
to find out that, actually,
I’m not ok,
that life is rubbish.
That for me,
my life has been lived.
Are you prepared to find out
about my suicidal thoughts,
my pain, my anger and grief?
Or are you being polite and feeling that
you have to ask, that it’s the right thing
to say?
And the answer you want is,
“I’m fine” or “Ok”.

Today

By Kate D

Today I can
be in the sun
and absorb its warmth,
eyes shut ,
listening to everyday
sounds or
sit and read,
drink coffee;
being able to linger,
not gulp it down in haste
before the next thing
I must do.

I can bake scones,
watch the sunflowers
open their petals
to the early morning sun,
gently walk by the river and
listen to the breeze in the grasses,
the running of the water.

I can notice colours in flowers,
(in close up),
faded and bright
side by side, being
visited by bees and butterflies
who hover over the buddlia
dipping antennae into
the flowers one by one.

I can notice the patterns and shapes
of their wings,
see the shapes of the clouds and
watch as they shift
from white to grey.

I can take my time to
look at paintings in a house
nearby without rushing to be at
the next thing on my list.

I can do these things today.
Tomorrow, who knows?
But today I can.

scones

September is #BloodCancerAwarenessMonth.

MDS UK Patient Support Group, together with colleagues from Anthony Nolan, Bloodwise, CLL Support Association, CML Support, Leukaemia Care, Lymphoma Action, Myeloma UK, and Waldenstrom's Macroglobulinemia (WMUK), joined Make Blood Cancer Visible, an awareness campaign sponsored by Janssen UK.

Throughout the month, MDS UK will posting moving poems by our dear MDS UK member, Kate D, and other MDS patients, written on the theme of blood cancer. 

Free donations by shopping