Support for those affected by Myelodysplastic Syndrome (MDS), a rare blood cancer

We provide:

• national & regional meetings with specialist speakers
• a website & printed information material
• a monthly eNewsletter and printed newsletter
• campaigning for access to treatment
• a networking service for MDS patients to share experiences & support
• cooperation with all UK MDS clinical experts
• PPI work for clinical trials and any other materials destined to MDS patients
• patient feedback options for clinicians, researchers and industry working in MDS
• Funding for a PhD project dedicated to MDS research
• A voice of MDS patients at international project levels

People:

• 7 Trustee(s)
• 19 Volunteer(s)
• No Employees have total benefits over £60,000

Fundraising:

• MDS UK raises funds from the public.
• We do not work with a commercial participator.