Statutory Accounts

We are a Charitable Incorporated Organisation (CIO), this means we have the legal capacity to employ paid staff, deliver charitable services under contractual agreements, and enter into commercial contracts.

See more details at the Charity Commission Website

Activities – how the charity spends its money:

Support for those affected by Myelodysplastic Syndrome (MDS), a rare blood cancer

We provide:

  • national & regional meetings with specialist speakers
  • a website & printed information material
  • a monthly eNewsletter and printed newsletter
  • campaigning for access to treatment
  • a networking service for MDS patients to share experiences & support
  • cooperation with all UK MDS clinical experts
  • PPI work for clinical trials and any other materials destined to MDS patients
  • patient feedback options for clinicians, researchers and industry working in MDS
  • Funding for a PhD project dedicated to MDS research
  • A voice of MDS patients at international project levels


Graphic to accompany people data

  • 7 Trustee(s)
  • 19 Volunteer(s)
  • No Employees have total benefits over £60,000


  • MDS UK raises funds from the public.
  • We do not work with a commercial participator.

Annual General Meeting Report 2020

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Accounts and TAR 2020

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Accounts and TAR 2019

Accounts and TAR 2018

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Accounts and TAR 2017

Accounts and TAR 2016

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