Support, Information, Awareness & Campaigns for those affected by MDS

Upcoming Events

  1. Dolores & Jo climb Kilimanjaro for MDS UK!!

    24/01/2018 - 31/01/2018
  2. Oxford MDS UK Local Patient Meeting – 26/02/18

    26/02/2018 @ 2:00 pm - 4:00 pm

Take part and join the conversation:

Facebook Posts

Another #MDSTopTip on Day 15! We’d like to hear from you and find out how you ‘pace’ yourself. Fatigue affects patients differently but how do you plan around it? What do you do? And what plans have you and your haematology team got in place over the holiday period? ... See MoreSee Less

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On day 14 what #MDSTopTip could you offer to boost morale? How about reading up on some of our MDS success stories? Or offering up your own? At Christmas it can be very hard to remain positive so please tell us what you do!!! ... See MoreSee Less

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Dealing with MDS can take its toll. Today’s #MDSTopTip is about your mental health - what have people done to get themselves out of a rut? What do you find uplifting? Who inspires you and why? ... See MoreSee Less

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Have a look at the MDS website for a wealth of #MDSTopTip ‘s . Don’t be afraid to ask questions. We have a private MDS Community where you will be supported by others who understand - just contact us ... See MoreSee Less

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Bone Marrow Donation: All it takes to join the register is a bit of spit or a swab
Everything you need to know about MDS in our Patient Handbook
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Learn more about MDS with Our MDS Patient Handbook

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Support for the Group

The MDS UK Patient Support Group is affiliated with the UK MDS Forum, the foremost UK specialists organisation focused upon MDS, providing information and advice on the status and progress with MDS research and treatment in the UK, as well as the MDS Foundation, Inc, based in the USA. The MDS UK Patient Support Group is also supported by major pharmaceutical companies and other organisations.

The MDS UK Patient Support Group is a founding member of the MDS Alliance, the international umbrella group for all national MDS support groups. The MDS Alliance is dedicated to sharing and improving MDS information and awareness between patients, globally.MDS UK Patient Support Group is a registered charity. Reg Charity No: 1145214

Prefer to speak on the phone? Call our helpline for an initial chat 02077337558

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