Myelodysplastic Syndromes (MDS) Videos

Learn more about how to live with MDS by watching patients describing their experience of coping with the condition, and talking about transfusions and treatments.

You can also watch interviews with members of the clinical staff at the MDS Centre of Excellence King’s College Hospital in London. Prof. Ghulam Mufti, Haematology Consultant, and Janet Hayden, Myeloid Clinical Nurse Specialist explain what is MDS, its causes and treatment and how to deal with MDS symptoms.

Russell’s Stem Cell transplant

Russell’s Stem Cell transplant

Russell Cook, Myelodysplastic Syndrome patient tells us about the stem cell transplant experience that saved his life. He is unusual, as he received three transplants – two from an unrelated donor – which failed – followed by a stem cell donation from his son 15 year old son Luke – which finally worked. Read More

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Evie McClean Amazing YouTube Video Clips

Evie McClean Amazing YouTube Video Clips

Evie McClean is an incredibly talented young person that started a YouTube Channel in March 2016, telling the world about her life and her favorite things. Evie is a member of MDS UK Patients Support and in her lively video clips she illustrates how wonderfully she and her family have learned to live with MDS. Read […]

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25th October – MDS World Awareness Day Video

25th October – MDS World Awareness Day Video

Life Beyond Limits – Full HD Spanish English subtitles from GEPAC on Vimeo. This video was made to mark the first MDS World Awareness Day – on 25th October – and to illustrate the Life Beyond Limits campaign run in several countries already. This campaign highlights the fact that all MDS patients deserve to have […]

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MDS causes, progression, diagnosis & treatment

MDS causes, progression, diagnosis & treatment

In this video Prof Mufti gives a detailed explanation of MDS, discusses causes, progression, diagnosis and treatment of MDS.  He also talks about the challenge of managing MDS and how awareness of the condition has improved – but more still needs to be done. Professor Ghulam Mufti – Head of the department of Haematology at King’s […]

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Patricia’s experience

Patricia’s experience

Patricia talks about her diagnosis of MDS and the changes she experienced, as well as blood transfusions and what it feels like to live with MDS. Read More

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Ramsey’s experience

Ramsey’s experience

Ramsey discusses his personal MDS story, symptoms, how he manages his condition, and how important it is to highlight the effects of MDS on patient’s quality of life. Read More

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MDS symptoms and how to manage them

MDS symptoms and how to manage them

Janet Hayden talks about newly diagnosed MDS patients, symptoms of MDS, difficulty in managing the condition, drug treatments, and challenges faced by clinical staff – as well as awareness of MDS. Janet Hayden is a Myeloid CNS and works with Professor Ghulam Mufti at King’s.  She specialises in Myeloid conditions.  King’s is privileged to have […]

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