Understanding Myelodysplastic Syndromes - Patient Handbook

This booklet has been written to help you understand more about MDS, its symptoms, causes and treatment. Packed with MDS information material for you to learn more and help you manage the disease.

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Myelodysplastic Syndromes: Presentations

Click on the icon to download the presentations and handouts

MDS - Diagnosis, Treatment and Research, Dr Austin Kulasekararaj

General MDS, Dr Chris Dalley

High Risk MDS and hypomethylating agents, Dr Kavita Raj

Genes and Genomes and MDS, part 1 - Nicholas Lea

Genes and Genomes and MDS, part 2 - Nicholas Lea

Understanding MDS and Introduction to Blood Transfusion, by Dr Dora Foukaneli

SLIDES - Coping with Anxiety, Anne Crook

HANDOUT - Coping with Anxiety, Anne Crook

Myelodysplastic Syndromes, Part 1, Dr Austin Kulasekararaj

Myelodysplastic Syndromes, Part 2, Dr Austin Kulasekararaj

MDS Patient Forum, Sophie Wintrich

MDS National Survey, Monika Janosik

Stem Cell Transplant: Information Booklets

7 Steps handbook about Bone Marrow Transplant

This book was written to provide information about the typical experience of a patient receiving a stem cell transplant.

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The Seven Steps - The Next Steps

For a small group of patients, the long-term and late effects of the transplant can have a very serious impact on their general health and wellbeing. As a result good quality of life can be difficult to achieve. This book, The Next Steps hopes to address some of these in more detail to help you understand more about the transplant journey.

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Information about MDS UK Patient Support Group

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MDS UK Patient leaflet

Hospital staff can order stocks via our main office on 0207 733 7558
Or online on our Contact us page

MDS UK Patient Poster

A4 Poster for display in hospital waiting rooms

Feel free to print and use – or request a laminated copy via our office

MDS Factsheets

Printable material to help you understand specific aspects on Myelodysplastic Syndromes and manage the disease

Nutrition Information and advice & neutropenic diets

Factsheet for Myelodysplastic Syndrome (MDS) Patients

 

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Fatigue Factsheet: Effects &self-management tips

Fatigue factsheet for Myelodysplastic Syndrome (MDS) Patients

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