Evie McClean is an incredibly talented young person who started a YouTube Channel in March 2016, telling the world about her life and her favorite things.

Evie is a member of the MDS UK Patient Support Group and in her lively video clips she illustrates how wonderfully she and her family have learned to live with MDS.

In the video clip above Evie explains her illness and the treatment she has received. On November 4th 2015, Evie received a bone marrow transplant from a US donor. For those people who don’t know a lot about MDS, Evie’s amazing videos will provide a better understanding of this complex condition and what can be done to help patients and their families.

If you have a story to tell and you’d like to share it with us, whether you are a patient, family member or friend, please email us at mds-uk@mds-foundation.org

Evie and her friends visit Marsden Hospital

Evie goes to Marsden Hospital to get her blood tests done

Evie teaches parents what not to do

Read MDS patients & carers experiences

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