How is a patient's treatment discussed and managed?

Sophie Wintrich, Chief Executive of the MDS UK Patient Support Group, interviewed Dr. Simone Green – Haematologist at Hull and East Yorkshire Hospitals, NHS Trust. Watch the video and read the transcript below.

What are the benefits of patients’ groups? What difference does it make to you personally, in your daily consultations, to have a well-informed, empowered patient?

I think these patients tend to be more involved in their daily care. They come to the consultation with information and it makes the consultation flow much easier. They know what they want out of their management, they know what they want for their long-term care. It makes the consultation easier when you need to discuss the diagnosis, the prognosis, etc.

What are the drawbacks of having a patient that is “over-informed”?

It always good for patients to be informed. But we sometimes encounter difficulties when a patient becomes disappointed when a new drug is not available to them in their centre. With MDS there are new drugs coming out. Most of them available in clinical trial studies only. So, once a study is not available at their centre or somewhere that is easily accessible for the patient, that’s disappointing. That’s one difficulty.

One topic that comes up very often in our patients’ calls is second opinions or additional opinions. What are your views on patients who request an additional opinion? Does it offend you if a patient asks for an additional opinion when he is seen by you?

One of the reasons that I went into haematology is that we work as a team, the treatment is evidence based, and a team is managing the patients. I welcome a second opinion, it’s always good to have fresh eyes, bringing a new perspective on how to manage a patient. It involves someone else’s expertise.

What is the difference for patients between to be discussed in an MDT1 or going for a second opinion somewhere else, as you have just explained?

An MDT involves decision making within a local team or a local network in some situations. So obviously that will take into account the local guidelines, which is evidence based, but it is tailored to that local environment, it looks at the local resources available, and the local expertise as well, the clinical experience within that centre. A second opinion will be outside of that local setting, taking into account someone else’s experience and expertise, and probably it would have a perspective based on a lot more information and more resources.

1 A Multidisciplinary Team (MDT) is a group of health care workers and social care professionals who are experts in different areas with different professional backgrounds, united as a team for planning and implementing treatment programs for complex medical conditions.

"Well-informed patients tend to be more involved in their daily care. They come to the consultation with information and it makes the consultation flow much easier. They know what they want out of their management, they know what they want for their long-term care..." Dr. Simone Green

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