Local UK Groups
Here you will find contact details, updates, photos of all our Local and Regional groups in the UK.
We hope to create many more such patient led groups throughout the country.
Please help and get in touch if you feel you could contribute a bit of time to your Local MDS Support Group:
Tel: 020 7733 7558
We need volunteers willing to help maintain existing groups as well as those willing to set up new groups in their local areas.
For further details of what's involved in creating a new MDS Patient Support Group - please follow the link to download our detailed guidelines:
Patient Support Group Guidelines
For further details of what's involved in creating a new MDS Patient Support Group - please follow the link below to read our detailed guidelines:
Led by Derby nurse Sarah Dawson and patient and carers Bev and Janet Nye. We encourage other clinicians and nurses to attend this group – and to spread the news about this additional support opportunity. Aims to meet every 3-4 months. Location: Derbyshire/Nottingham MDS UK Patient Support Group, Macmillan Information Room, Royal Derby Hospital, Uttoxeter New […]Read full post
Set-up after our well attended full day Manchester Forum with Dr Mike Dennis. The local group is led by patient Peter Threader and 3 further patients and carers Due to schedule meetings every 3-4 months between 4pm and 7pm Location: Manchester MDS UK Patient Support Group, The Hough End Centre, GMP Sports and Social Club, Mauldeth Road West, Chorlton-Cum-Hardy, Manchester, […]Read full post
This group meets every 3 months on Friday mornings between 10.30 am and 12.30 pm. Led by Advanced Nurse Practitioner Kirsty Crozier (on Maternity Leave until July 2017) and assisted by patients Claudia Richards and Gwyneth Brown-Lowe. Location: Maggie’s Oxford Centre, Churchill Hospital, Old Road, Oxford, OX3 7LE Contact: For more information and dates of meetings, please check our […]Read full post
Bringing all the conditions together, a new general haematology group at Royal Devon & Exeter Hospital was set up by Rachel Stewart. All MDS patients treated at the Royal Devon & Exeter Hospital are invited to come to the meetings which take place on the first Thursday of every month between 4:30 pm and 6 pm. Read MoreRead full post
Several volunteers run this regional group – and have set themselves up as a committee. All members are MDS patients. Activities alternate between presentations and general get together opportunities. This group also gets involved in raising MDS awareness regionally. Read MoreRead full post
A regional group started meeting at the BSUH in Brighton on 6th February 2013. This group is co-led by two patients – Lynn Hale and Alison Parker – as well as nurses and haematologists at the hospital. Meetings every 3-4 months – regular times and days to be determined. Read MoreRead full post
An official MDS Ireland group was formed during 2013/2014 and is led by Sinead Mahon, whose Mum Brenda has MDS. MDS UK is offering advice, guidance and financial support to this emerging group. Dr Helen Enright of the Centre of Excellence in Dublin also supports the group. Read MoreRead full post
This regional group started on 14th March 2014 thanks to the help of our member Frank Richard Stoodley and his wife Barbara. Unfortunately the meetings are currently on hold, as we are looking for a new venue and a few volunteers who are happy to help meet and greet new patients. Read MoreRead full post
The first meeting of this group took place on 12th November 2014 and was a great success, thanks to the support of Dr Sally Killick and fantastic contributions from all the attendees. Meetings will be scheduled on Wednesdays between 10.30 am – 1 pm every 4 months. Read MoreRead full post
Yorkshire/Leeds area: several patients interested in meeting regularly. Meeting place required is being organised. Cardiff/Bristol/Weston-Super-Mare area: we need more patient interest to establish a regular local group. As well as a meeting place. Midlands: strong interest from many patients – not been able to hold a forum in the area in 2012 – due to […]Read full post