If you have MDS, or someone in your family has MDS, you're in the right place for expert advice

On first diagnosis, I was distraught but the contact with MDS UK and other patients has given me a really positive outlook.

MDS UK support group are the only people that have explained anything to me

I have felt far less "alone" with my MDS since accessing the support group…

These are real testimonials from our members and they are the reason why MDS UK Patient Support Group exists.

We are a small charity born in 2008 to raise awareness of MDS, offer support and information to patients and families and campaign to increase the quality of life and make treatments available to those affected by Myelodysplastic Syndromes.

How do we do it?

Testimonial: "To know that there is a support network to help my mum gives me great strength"

Join MDS UK Patient Support Group!

It is free and open to all, so why not join us?

To join please call us 020 7733 7558 or email us and give us your full address.

We will post you an information pack and add you to our list of active members.

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