New optional Regional Group Meetings,

in association with our colleagues from Leukaemia Care

Starting this year, MDS UK and Leukaemia Care decided to offer their respective patients the option to attend each other’s patient group meetings – as both organisations offer great help to MDS patients.

For those who don’t know them: “Leukaemia CARE is a national blood cancer support charity. We provide vital advice and information to anyone affected by a diagnosis of blood cancer” http://www.leukaemiacare.org.uk/

Our organisations are mutually beneficial and complementary – and as Leukaemia Care offers more groups in the North of the UK, MDS UK has many groups set up in the south.

Important – please note:  The Leukaemia Care groups are open to all types of malignant haematology/blood cancer patients – not just MDS – so please don’t be surprised to meet patients with other types of blood disorders.
Many blood cancer patients will have several issues and symptoms in common – and you will therefore benefit from talking to one another.
Typical issues will be: blood transfusions, fatigue, iron chelation, emotional burden and unpredictability of the disease, weakened immune system and infections, bone marrow transplants and many more probably.

So here are some regional groups offered by our colleagues:

http://www.leukaemiacare.org.uk/

GLASGOW Haematology Support Group

  • Location: Maggie’s Centre, Gartnavel Hospital (Next to Beatson Centre), Great Western Road, Lanarkshire, Scotland, G12 0YN
  • Time: TBC

This support group meets every eight weeks on a Wednesday evening in the lovely surroundings of the Maggies Centre in the Grounds of Gartnavel Hospital. The group has now been running for over two years and has had speakers ranging from complimentary therapists through to haematological consultants.
If you would like further information or if you would like to attend, please contact Nadine Bloomfield, Scottish Development Officer on 07500 068 06507500 068 065.

2014 meeting dates:
Wednesday 23rd April
Wednesday 25th June
Wednesday 27th August
Wednesday 29th October


WEST MIDLANDS – Russells Hall Haematology Support Group

  • Location: The White House, 10 Ednam Road, Dudley, West Midlands, DY1 1JX
  • Time: 6.30pm – 8.30pm

This group has been meeting since 2010. They meet every six weeks at the Whitehouse Cancer Centre, Dudley. To date there are 18 regular members to the group. Activities range from medical professional speakers to social activity.
If you would like further information or if you would like to attend, please contact Leukaemia CARE on freephone 08088 010 44408088 010 444.

2014 meeting dates:
Wednesday 26th February: Tea & Social Evening
Wednesday 23rd April: Cancer Self Management with Belinda Simmonds
Wednesday 25th June
Wednesday 10th September
Wednesday 22nd October
Wednesday 10th December


SOUTH YORKSHIRE –
Royal Hallamshire Hospital Haematology Support Group

  • Location: Cancer Support Centre, 23 Northumberland Road, Sheffield, South Yorkshire, Yorkshire and the Humber, S10 2TX
  • Time: 6.30pm – 8.30pm

The group launched in February 2010 and has 30 members. It’s a positive and supportive group who have set up their own Facebook page for members and anyone who needs support outside of group meetings and as a way of staying in touch. Meetings are both informal and social. The group offers friendship and support, a space to talk through your feelings, or just have a coffee and a laugh with people who  know what you are going through. If you would like further information or if you would like to attend, please contact Leukaemia CARE on freephone 08088 010 44408088 010 444.

2014 meeting dates:
Wednesday 26th February: Tea & chat social with fun quiz and prizes
Wednesday 26th March
Wednesday 23rd April: Presention from Delphine Sayres “The Role of Complementary Therapies”
Wednesday 28th May
Wednesday 25th June
Wednesday 23rd July
Wednesday 27th August
Wednesday 24th September
Wednesday 22nd October
Wednesday 19th November
Wednesday 17th December


YORK Haematology Support Group

  • Location: Huntington Working Mens Club, North Moor Lane, Huntington, Yorkshire and the Humber, YO32 9QS
  • Time: 7.00pm – 9.00pm

If you would like further information or if you would like to attend, please contact Carol Miller on 01904 33070501904 330705 or contact Leukaemia CARE on freephone 08088 010 44408088 010 444.

2014 Meeting Dates:
Thursday 6th March: Guest Speaker Barbara Machin from Macmillan Specialist Dietician
Thursday 3rd April: Guest Speaker John Dodds from Samaritans
Thursday 1st May: Guest Speaker Dr Sheila O’Connor from Blood labs
Thursday 5th June: Guest Speaker Andy Wilson from Cancer Research UK
Thursday 3rd July: Guest Speaker Denise Wishart from Benefits Adviser City of York Council
Thursday 7th August: Summer break
Thursday 4th September: Guest Speaker Catriona Tait from Leukaemia & Lymphoma Research
Thursday 2nd October: Guest Speaker Nickey Bate from Leukaemia CARE
Thursday 6th November: Guest Speaker Dr Martin Howard, Consultant Haematologist will host a Q&A
Thursday 4th December: A talk by Eve Roman, Professor of Epidemiology

 

NORTH WEST – Blackpool and Fylde Haematology Support Group

  • Location: Macmillan Windmill Unit, Area 8, Blackpool Victoria Hospital, Whinney Heys Road, Blackpool, North West, FY3 8NR
  • Time: 7.00pm – 9.00pm

Blackpool is one of our newest support groups and is facilitated by a patient, Jez. If you would like further information or if you would like to attend, please contact Jez on 07950635249 or Lesley on 07890847796. Alternatively contact the Leukaemia CARE Team on freephone 08088 01008088 010 44408088 010 444.

2014 meeting dates:
Wednesday 19th February
Wednesday 19th March
Wednesday 16th April
Wednesday 21st May
Wednesday 18th June
Wednesday 16th July
Wednesday 20th August
Wednesday 17th September
Wednesday 15th October
Wednesday 19th November
Wednesday 17th December
 MANCHESTER – Greater Manchester Haematology Support Group

  • Location: The Willow Bank Hotel, 340 Wilmslow Road, Fallowfield, Manchester, North West, M14 6AF
  • Time: 7.00pm – 9.00pm

This group continues to go from strength to strength and is facilitated by volunteers.
If you would like further information or would like to attend, please contact Leukaemia CARE on freephone 08088 010 44408088 010 444.

2014 meeting dates:
Wednesday 19th February
Wednesday 19th March
Wednesday 16th April
Wednesday 21st May
Wednesday 18th June
Wednesday 16th July
Wednesday 17th September
Wednesday 15th October
Wednesday 19th November
Wednesday 17th December

Royal Liverpool Haematology Support Group

  • Location: Sefton Park Community Centre, 3 Croxteth Drive, Liverpool, Merseyside, North West, L17 3AG
  • Time: 6.00pm – 8.00pm

The Royal Liverpool Haematology Support Group is our largest and longest running group. Not only do they support each other through the diagnosis and treatment journey, they also enjoy social events together on a regular basis.
If you would like further information or would like to attend, please contact Linda Boyne on 0151 706 22790151 706 2279 or contact Leukaemia CARE on freephone 08088 010 44408088 010 444.

2014 meeting dates:
Tuesday 11th February
Tuesday 11th March
Tuesday 8th April
Tuesday 13th May
Tuesday 10th June
Tuesday 8th July
Tuesday 12th August
Tuesday 9th September
Tuesday 14th October
Tuesday 11th November
Tuesday9th December

The Lanarkshire Haematology Support Group

  • Location: Holiday Inn Express, Palace Grounds, Hamilton, Mid Lothian, North West, ML3 7BD
  • Time: 7.00pm – 9.00pm

This support group meets every six weeks at the Holiday Inn Express in the Palace Grounds, Hamilton. This vibrant group have recently been involved with laughter therapy and a speaker from Lymphoma and Leukaemia Research. If you would like further information or if you would like to attend, please contact Nadine Bloomfield, Scottish Development Officer on freephone 07500 06807500 068 065.

2014 meeting dates:
Thursday 27th February
Thursday 10th April
Thursday 22nd May
Thursday 3rd July
Thursday 14th August
Thursday 25th September
Thursday 6th November
Thursday 11th December
The Lyndale Haematology Support Group

  • Location: ‘Lyndale’ Knowsley Cancer Support, 40 Huyton Lane, Huyton, Liverpool, North West, L36 7XG
  • Time: 11.30am – 1.30pm

The Lyndale Knowsley Cancer Support Centre is a drop-in centre providing social and group activities, benefits advice, complementary therapies, emotional and practical support, days out and short five day holidays. Leukaemia CARE set up the Lyndale support group in April 2011.  If you would like further information or if you would like to attend, please contact Leukaemia CARE on freephone 08088 010 44408088 010 444.

2014 meeting dates:
Friday 4th April
Friday 2nd May
Friday 6th June
Friday 4th July
Friday 1st August
Friday 5th September
Friday 3rd October
Friday 7th November
Friday 5th December

SOUTH WEST – Bristol Adult Transplanters Support Group

  • Location: Penny Brohn Cancer Centre, Chapel Pill Lane, Bristol, South West, BS20 0HH
  • Time: 6.00pm – 8.00pm

Set up in 2008 as support for patients who had been through the difficult journey of either a bone marrow transplant or stem cell transplant. Facilitators for the group are Lucy Henderson, BMT co-ordinator and Professor Marks of Bristol Oncology centre. They meet four times a year. If you would like further information or if you would like to attend, please contact Lucy Henderson BMT Nurse Specialist, BMT Unit on 0117 342 81420117 342 8142 or contact Leukaemia CARE on freephone 08088 01008088 010 44408088 010 444.

2014 meeting dates:
Tuesday 25th March
REQUEST from MDS UK – If you do attend one of the groups above, please do let us know about your experience, so we can share it with others.

MDS UK has been working closely with Leukaemia Care for several years on drug appraisals and other campaigning and lobbying objectives – so our aims are very similar.

Free donations by shopping