Being diagnosed with myelodysplastic syndrome (MDS) can be a shock, particularly when you may never have heard of it.
It has been written to help you understand more about MDS. It describes what they are, how they are diagnosed and treated and also the expected outcome (prognosis). It also provides information on coping with the emotional impact of an MDS diagnosis.
Whilst the covers are different, the content is the same.
All 3 organisations will work together to ensure this booklet is available in all hospitals.
At MDS UK, we felt there was an urgent need to revise and replace the existing information material.
We also wanted to ensure that as many patients as possible would benefit from this in-depth booklet, and hence asked those two great organisations to join us in this project. It is highly necessary and beneficial to all patient groups to work together whenever possible, and save valuable funds that way.
We sincerely thank:
- our colleagues – Leukaemia Care and Bloodwise
- the contributing authors for the different chapters – Dr Sally Killick, Dr Dominic Culligan, Philip Alexander, nurses Janet Hayden and Geke Ong
- our peer reviewer – Prof David Bowen
- the patient reviewers Chris Dugmore and Claudia Richards
If you wish to obtain a copy of the booklet please click here or contact us by email or telephone:
firstname.lastname@example.org or 020 7337558
A stock of booklets will also be available at all of our local group meetings.
Once you've read it, please let us know your thoughts by filling in this short survey