In the first video of this series, Prof. David Bowen – Consultant Haematologist at St James University Hospital, Leeds talks to Sophie Wintrich, Chief Executive of the MDS UK Patient Support Group, about how important it is to be a well-informed patient. Watch the video and read the excerpts below.

What are the typical issues when you first diagnose a patient with MDS?

What difference does it make to you personally - in your daily consultations – to have a well-informed or empowered patient? Benefits/drawbacks?

"If the patient has some idea about what MDS is and they come with a set of questions from their own readings, that is a useful framework to find the details that are specific to them.
I usually use the MDS Patients Support Booklet... I mark the booklet and the sections that are relevant to them..." Prof. David Bowen

How important is it to have a treatment plan for MDS? Why?

How do you address and explore quality of life issues with patients and their families?

Where are we at in terms of more personalised treatment for MDS?

Should we start to insist that all MDS patients must have a genetic mutation test to establish what treatments may work out best for them?

What would be the research benefit of collecting tissue samples from all MDS patients? How can patients ensure this happens?

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