LLR grant for Familial MDS/AML

Leukaemia and Lymphoma Grant for research into Familial MDS MDS is not considered a hereditary disease – but there is a very small percentage of cases where 2 or 3 members of the same family are affected. This is why Leukaemia & Lymphoma Research have granted the Barts Cancer Institute £1.4 Mio pounds for research […]

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TED talk on MDS/AML research – by expert Dr A Raza

TED talk on MDS/AML research by expert Dr Azra Raza. Published on 15 Jan 2015 Cancer research relies heavily on testing drugs in mice — yet it’s clear that for effective treatment, we need to be testing in humans. In an informative talk, oncologist Azra Raza walks us through the challenges of personalized cancer research […]

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Haematology conference updates – Part 1

Further updates on clinical and research news from the two main haematology conferences in Europe and the USA. Part 1 – Europe – from the EHA conference Part 2 – International – from the ASH conference (report in preparation) Report provided by Dr Wendy Ingram Consultant Haematologist, University Hospital of Wales, Cardiff Report from the […]

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2015 opportunities to support MDS UK

ULTRA Challenge series in 2015 Walk it, Jog it or Run it – choose your distance!  It’s Your Challenge – Your Way! If you’re looking for a challenge in 2015 you might be tempted to join any of the following 2015 events and help raise funds for our charity. Several people have already signed up – […]

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Call to Action Report

MDS – Call to Action Report MDS World Awareness Day is taking place on Saturday 25th October, where patients and patient groups come together to raise awareness of MDS and help to improve the standard of treatment for these patients. To coincide with this important date and together with blood cancer charity Leukaemia CARE, MDS […]

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MDS World Awareness Day – 25th October

                                    MDS World Awareness Day – Preparations for 2015 We are preparing for MDS Day 2015.  Do contact us if you’d like to participate in any events around the country to mark this international awareness day for Myelodysplastic Syndromes. See below for MDS day 2014 – in the UK and in other countries. MDS World […]

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Consultation on proposed changes to Cancer Drug Fund

NHS England launches consultation on proposed changes to Cancer Drug Fund Standard Operating Procedures   Patients and individuals are encouraged to comment and respond to this important consultation. The deadline is the midnight on Friday 31st October. MDS patients have benefited enormously from the CDF to date, without which many patients would not have had access […]

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Cancer Drug Fund News

28/08/14 – NHS England have announced the allocation of further funds for the Cancer Drug Fund (CDF) This is good news for cancer patients, whilst we are waiting to see how NICE will finally alter their appraisal system, following the recent consultation on Value Based Assessments (VBA). However – the CDF is only a temporary […]

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NICE gives preliminary approval for lenalidomide

NICE – Lenalidomide appraisal 20/08/14 – NICE has now finally issued their FDA (Final Draft Guidance) for the use of lenalidomide (Revlimid) for del 5q MDS patients. NICE is now recommending the use of this drug within the NHS. This comes as a very welcome decision, after almost 18 months, requiring 5 meetings and the […]

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