Sharon Berger Transplant Update

Sharon Berger, who celebrated her 65th birthday only a few weeks ago, has received devastating news when a routine blood test showed that, after three years, her leukemia has returned. Sharon needs now a new stem cell donor. A suitable donor will most likely be someone with Ashkenazi Jewish heritage, so Anthony Nolan is calling for donors from this community: […]

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Print out the New MDS Patient Handbook

Being diagnosed with myelodysplastic syndrome (MDS) can be a shock, particularly when you may never have heard of it. MDS UK has now produced a brand new MDS patient booklet, created in cooperation with our colleagues from Leukaemia Care and Bloodwise. It has been written to help you understand more about MDS. It describes what they […]

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MDS patients and carers attend parliamentary reception for Cancer52

On 20th April a group of seven MDS (Myelodysplastic Syndromes, a rare blood cancer) patients and carers went to Westminster and attended a parliamentary reception organised by Cancer52, a coalition of more than 80 charities representing rare and less common cancers. The reception was hosted and addressed by Chairman of the All-Party Parliamentary Group on […]

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Nurses’ Day – 12 May 2016 – Kes Grant’s Thank You

Nurses Day Nurses’ Day takes place on 12th of May each year, on the anniversary of Florence Nightingale’s birth. It’s a chance to celebrate the remarkable difference nursing staff around the world make every day. It’s also a time for patients to thank nursing staff for their dedication and care. This year we’ve taken the […]

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Apply to review Cancer Research UK research centres

Cancer Research UK are recruiting a patient panel to review their research centres and you can apply to be a member. Cancer Research UK funds 18 experimental cancer medicine centres and gives support to 15 more research centres across the UK. These centres are essential to beating cancer sooner. All of these centres will apply […]

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Understanding Mutations to Treat MDS

The most dramatic development in MDS research over the past few years has been the identification of the gene mutations that cause MDS. These mutations are not inherited, but are acquired in blood stem cells during the lifespan of a person. Benjamin Ebert is researching these mutations. A major focus of his research is to […]

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Take Part In This Survey And Help To Create Better Tools For Patients

Thanks to the latest improvements in cancer treatment many more cancer patients are now able to live with their condition. As a chronic illness, cancer requires long-term watch, maintenance and treatment and patients and their families need to manage their own care. The iManageCancer project is creating intelligent, fun new ways to allow patients to […]

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Other emerging local groups

Yorkshire/Leeds area: several patients interested in meeting regularly.  Meeting place required is being organised. Cardiff/Bristol/Weston-Super-Mare area: we need more patient interest to establish a regular local group. As well as a meeting place. Midlands: strong interest from many patients – not been able to hold a forum in the area in 2012 – due to […]

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Evie McClean Starts an Exciting New YouTube Channel

Evie does You Tube – and she is a real pro!!! Go Evie! Have a look at her first video clip. Evie is a member of the MDS UK Patient Support Group. Here is Evie’s video clip with 10 facts about her. We hope she will do a great clip for MDS UK to talk about […]

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