Personalised Treatment for MDS Patients: Not Far-Off says Dr Catherine Cargo

Where are we exactly with respect to personalised treatment for MDS patients? Sophie Wintrich, Chief Executive of MDS Patients Support Group interviewed Dr Catherine Cargo – Consultant Haematologist at St James University Hospital – Leeds. Watch the video and read the transcript below. MDS: A disease where everybody is different When we think about personalised […]

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2nd Stem Cell Transplants Funding Re-instated Thanks to Your Support!

NHS England will fund 2nd stem cell transplants for patients whose blood cancer relapses Since NHS England initially announced in December 2016 that it wouldn’t fund second transplants, more than 25,000 people joined our campaign to reverse the decision. Thanks to every single person that signed the petitions, and wrote to their MPs. We all […]

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Missed the Birmingham MDS Patients & Family Forum? Catch Up Online

The latest MDS UK Patient and Family Forum took place in Birmingham on the 4th of February. It was an invaluable opportunity for those affected by MDS to hear about the latest developments in MDS research and treatment. Those attending the forum took part in a variety of workshops and sessions delivered by experts and […]

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Quality of Life is an Important Treatment Goal in Patients with MDS

In this presentation from the 2016 “European Focus on Myeloproliferative Neoplasms and Myelodysplastic Syndromes”, Dr. Fabio Efficace discusses the importance of quality of life as a treatment goal in myelodysplastic syndromes (MDS) Dr. F. Efficace discusses importance of Quality of Life as Treatment Goal in MDS When latest genetic analysis and therapeutic strategies are incorporated into MDS […]

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Researchers find new way to target blood stem cell cancers

Researchers designed an antibody that recognises and destroys CD99-covered leukemia cells while sparing normal blood stem cells This is a microscopic image of a leukemia cancer stem cell (Credit: Montreh Tavakkoli) with normal DNA coloured in blue. CD99, those green-coloured spots, is a protein-sugar molecule, which occurs more frequently than normal on stem cells responsible […]

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How to involve patients in their own care

Support patients to manage their condition better Evidence tells us that when patients are actively involved in their own care, treatment and support can improve outcomes and experience for patients. How to get involved Everyone involved in care should advocate for the experience, voice and presence of patients, carers and the public to make a real […]

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The European MDS Registry: learning about the ‘real’ MDS patients

Research FOR Patients For an informed and empowered opinion and an improved consultation Have you made your clinical paper accessible yet? What is a clinical Registry? In order to develop new drugs to treat MDS, clinical trials are mandatory, typically testing the new drug against the treatment that is considered to be the standard at […]

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Clinical data on new medicines is now open to patients and researchers

Researchers and patients can access thousands of pages submitted by pharmaceutical companies As of the 20th of October, the European Medicines Agency (EMA) gives open access to clinical reports for new medicines authorised in the European Union. For every new medicine, citizens, including researchers and academics, will be able to directly access thousands of pages […]

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