Can Azacitidine be administered at home? The Spanish experience

A new project was trialled for more than two years by nurses from home-care units in Spain: ‘Azacitidine administration at home’. Now it has been rolled out to include most of the hospitals in Spain administering Azacitidine. It was initially undertaken by nurses, not necessarily haematology nurses, who would visit patients at home usually by taxi […]

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Get the latest on MDS Treatment from the MDS Foundation Symposium

Janet Hayden, Myeloid Clinical Nurse Specialist, from Kings College NHS Foundation Trust, London (Adapted by MDS UK Patient Support Group) brings the latest in MDS Treatment from the Annual MDS Symposium in Valencia. Some patients are suitable for home treatment after stem-cell transplant Many interesting projects were presented during the nursing sessions, of which three […]

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MDS UK tribute to Professor Rodney Taylor (1942-2017)

It is with immense sadness that we announce the death of our past Chairman, Professor Rodney Taylor on 3rd May 2017, after his MDS progressed to AML. MDS UK Patient Support Group Chairman Rodney was diagnosed with MDS in 2006 and was invited to become Deputy Chairman when our little patient group was still in […]

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MDS Treatment: What to Expect from a Visit to a Consultant

Dr. Christopher Dalley & Dr. Timothy Chevassut – Haematologists at Brighton and Sussex University Hospitals Trust and Royal Sussex Hospital NHS Trust – give an account of how they discuss diagnosis and treatment with their MDS patients. Watch the video and read the transcript below. What are the typical issues when you first diagnose a […]

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Second Opinions are Welcomed says Dr. Simone Green

How is a patient's treatment discussed and managed? Sophie Wintrich, Chief Executive of the MDS UK Patient Support Group, interviewed Dr. Simone Green – Haematologist at Hull and East Yorkshire Hospitals, NHS Trust. Watch the video and read the transcript below. What are the benefits of patients’ groups? What difference does it make to you […]

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Watch the videos from the UK MDS Forum Education Day 2016

The following videos come from the annual UK MDS Forum Education Day 2016, which took place in London on 11th November 2016. The day is targeted at all haematologists in the UK and Ireland who deal with MDS patients. Its aim is to provide information and updates on the most advanced scientific and clinical research […]

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A New European Network, EuroBloodNet, will ensure better care for MDS patients

Patients with rare blood disorders will benefit from networks of excellence across Europe EuroBloodNet was launched at the third conference on European Reference Networks (ERNs) yesterday in Vilnius, Lithuania European Reference Networks (ERN) is an initiative of the European Commission and consists of networks of healthcare providers and centres of excellence across Europe aimed at […]

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