MDS Treatment: What to Expect from a Visit to a Consultant

Dr. Christopher Dalley & Dr. Timothy Chevassut – Haematologists at Brighton, Brighton and Sussex University Hospitals, and Royal Sussex Hospital NHS Trust give an account of how they discuss diagnosis and treatment with their MDS patients. Watch the video and read the transcript below. What are the typical issues when you first diagnosed a patient […]

Read full story

Second Opinions are Welcomed says Dr. Simone Green

How is a patient's treatment discussed and managed? Sophie Wintrich, Chief Executive of the MDS UK Patient Support Group, interviewed Dr. Simone Green – Haematologist at Hull and East Yorkshire Hospitals, NHS Trust. Watch the video and read the transcript below. What are the benefits of patients’ groups? What difference does it make to you […]

Read full story

Watch the videos from the UK MDS Forum Education Day 2016

The following videos come from the annual UK MDS Forum Education Day 2016, which took place in London on 11th November 2016. The day is targeted at all haematologists in the UK and Ireland who deal with MDS patients. Its aim is to provide information and updates on the most advanced scientific and clinical research […]

Read full story

A New European Network, EuroBloodNet, will ensure better care for MDS patients

Patients with rare blood disorders will benefit from networks of excellence across Europe EuroBloodNet was launched at the third conference on European Reference Networks (ERNs) yesterday in Vilnius, Lithuania European Reference Networks (ERN) is an initiative of the European Commission and consists of networks of healthcare providers and centres of excellence across Europe aimed at […]

Read full story

Personalised Treatment for MDS Patients: Not Far-Off says Dr Catherine Cargo

Where are we exactly with respect to personalised treatment for MDS patients? Sophie Wintrich, Chief Executive of MDS Patients Support Group interviewed Dr Catherine Cargo – Consultant Haematologist at St James University Hospital – Leeds. Watch the video and read the transcript below. MDS: A disease where everybody is different When we think about personalised […]

Read full story

2nd Stem Cell Transplants Funding Re-instated Thanks to Your Support!

NHS England will fund 2nd stem cell transplants for patients whose blood cancer relapses Since NHS England initially announced in December 2016 that it wouldn’t fund second transplants, more than 25,000 people joined our campaign to reverse the decision. Thanks to every single person that signed the petitions, and wrote to their MPs. We all […]

Read full story

Missed the Birmingham MDS Patients & Family Forum? Catch Up Online

The latest MDS UK Patient and Family Forum took place in Birmingham on the 4th of February. It was an invaluable opportunity for those affected by MDS to hear about the latest developments in MDS research and treatment. Those attending the forum took part in a variety of workshops and sessions delivered by experts and […]

Read full story

Quality of Life is an Important Treatment Goal in Patients with MDS

In this presentation from the 2016 “European Focus on Myeloproliferative Neoplasms and Myelodysplastic Syndromes”, Dr. Fabio Efficace discusses the importance of quality of life as a treatment goal in myelodysplastic syndromes (MDS) Dr. F. Efficace discusses importance of Quality of Life as Treatment Goal in MDS When latest genetic analysis and therapeutic strategies are incorporated into MDS […]

Read full story
Free donations by shopping