MDS UK tribute to Professor Rodney Taylor (1942-2017)

It is with immense sadness that we announce the death of our past Chairman, Professor Rodney Taylor on 3rd May 2017, after his MDS progressed to AML. MDS UK Patient Support Group Chairman Rodney was diagnosed with MDS in 2006 and was invited to become Deputy Chairman when our little patient group was still in […]

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What is CAR T cell therapy? Learn about how this immunotherapy works

CAR T cell therapy aims to boost the immune system to attack tumor cells Cell therapies, sometimes called “living therapies,” are an especially promising and rapidly growing area of cancer research. One approach that’s been pioneered by Memorial Sloan Kettering researchers, led by investigator Michel Sadelain, is called CAR T cell immunotherapy. This type of […]

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MDS Treatment: What to Expect from a Visit to a Consultant

Dr. Christopher Dalley & Dr. Timothy Chevassut – Haematologists at Brighton and Sussex University Hospitals Trust and Royal Sussex Hospital NHS Trust – give an account of how they discuss diagnosis and treatment with their MDS patients. Watch the video and read the transcript below. What are the typical issues when you first diagnose a […]

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Second Opinions are Welcomed says Dr. Simone Green

How is a patient's treatment discussed and managed? Sophie Wintrich, Chief Executive of the MDS UK Patient Support Group, interviewed Dr. Simone Green – Haematologist at Hull and East Yorkshire Hospitals, NHS Trust. Watch the video and read the transcript below. What are the benefits of patients’ groups? What difference does it make to you […]

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Watch the videos from the UK MDS Forum Education Day 2016

The following videos come from the annual UK MDS Forum Education Day 2016, which took place in London on 11th November 2016. The day is targeted at all haematologists in the UK and Ireland who deal with MDS patients. Its aim is to provide information and updates on the most advanced scientific and clinical research […]

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A New European Network, EuroBloodNet, will ensure better care for MDS patients

Patients with rare blood disorders will benefit from networks of excellence across Europe EuroBloodNet was launched at the third conference on European Reference Networks (ERNs) yesterday in Vilnius, Lithuania European Reference Networks (ERN) is an initiative of the European Commission and consists of networks of healthcare providers and centres of excellence across Europe aimed at […]

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Personalised Treatment for MDS Patients: Not Far-Off says Dr Catherine Cargo

Where are we exactly with respect to personalised treatment for MDS patients? Sophie Wintrich, Chief Executive of MDS Patients Support Group interviewed Dr Catherine Cargo – Consultant Haematologist at St James University Hospital – Leeds. Watch the video and read the transcript below. MDS: A disease where everybody is different When we think about personalised […]

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2nd Stem Cell Transplants Funding Re-instated Thanks to Your Support!

NHS England will fund 2nd stem cell transplants for patients whose blood cancer relapses Since NHS England initially announced in December 2016 that it wouldn’t fund second transplants, more than 25,000 people joined our campaign to reverse the decision. Thanks to every single person that signed the petitions, and wrote to their MPs. We all […]

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