Living with MDS: Top Tips to Improve Your Quality of Life

LIVING WITH MDS Having MDS will have impact on your daily life. Each person will cope in their own unique way. Not everything in this gallery will apply to you, but there might be feelings that you are familiar with. It is hard to directly “change an emotion”, while thoughts and behaviours are more easily […]

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MDS UK Patient Support Group Newsletter – December 2017

Our seventh edition of the MDS UK Newsletter is now out! Read all about: MDS UK new Patron Caitlin Limmer AKA “The Force of the Limmer” and “Force of the Limmer”, the Race Director of Twickenham’s famous Cabbage Patch 10 Race and The Turks Head 10k. A campaign that was worth it: NHS England will fund […]

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MDS World Awareness Day 25th October – Flash Mob and more!

AMAZING FLASH MOB IN TWICKENHAM TO RAISE AWARENESS OF MDS To celebrate MDS World Awareness Day a cheerful bunch from the Bearcat Running Club  stormed the Cabbage Patch Pub in Twickenham and started dancing to the tune of Gloria Gaynor “I am what I am”!! WATCH THE VIDEO: Such was the impact that people were reported […]

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Have you ever visited an MDS Specialist Centre?

Watch Prof Bowen Video on MDS Centres of Excellence In the third in a series, Prof. David Bowen – Consultant Haematologist at St James University Hospital, Leeds – talks with Sophie Wintrich about what seeking an MDS specialist opinion can do for a patient and how MDS Centres of Excellence work together with local hospitals. […]

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What is CAR-T cell therapy? Learn how this immunotherapy works in blood cancer

Car-t cell therapy aims to boost the immune system to attack tumor cells Cell therapies, sometimes called “living therapies”, are an especially promising and rapidly growing area of cancer research. One approach that’s been pioneered by Memorial Sloan Kettering researchers, led by investigator Michel Sadelain, is called CAR-T cell immunotherapy. This type of targeted immunotherapy […]

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Prof Bowen explains how new treatments for MDS are developed and the importance of clinical trials

Watch Prof Bowen Video on MDS Clinical Trials In the second video of this series, Professor David Bowen, Consultant Haematologist at St James University Hospital, Leeds, explains why clinical trials are key in the development of new treatments for MDS.   Prof Bowen is an honorary professor of Myeloid Leukemia Studies and Consultant Hematologist at St. James’s Institute of […]

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The MDS cheer team was at the Cabbage Patch on October 15!

Cabbage Patch 10 is nearly upon us! We are getting together for the Cabbage Patch 10 mile run on the 15th October to support our runners and shout out about MDS in the run-up to MDS World Awareness Day. Join us on the 15th of October to raise awareness and fundraise for MDS. Or why […]

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Help improve the blood transfusion experience for MDS patients

How can blood transfusions be improved? Depending on blood transfusion has a negative impact on the quality of life of MDS patients, but it is unavoidable for many patients. That is the reason why a group of Canadian and United Kingdom haematologists are looking into running a series of studies to improve the red blood […]

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When is the right time to give a blood transfusion?

When is a blood transfusion considered? How low should the cell count be? When the blood lacks enough healthy red blood cells or haemoglobin, anemia symptoms develop, typically fatigue, shortness of breath, weight loss, paler than normal skin, etc and a blood transfusion is considered. There is no set haemoglobin level at which a blood […]

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