The RIGHT treatment for the right patient at the right time – a crucial EU initiative

More than 70 participants representing medical specialists and nurses caring for MDS patients, MDS patient advocates, medical researchers and data managers, healthcare authorities, regulators, HTA experts and industry representatives gathered for the first MDS-RIGHT multi-stakeholder meeting on the 3 May 2017 in Valencia, Spain – in conjunction with the biannual MDS 2017 International Symposium.  This […]

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Azacitidine treatment at home – more cost-efficient in Spain

A new project was trialled for more than two years by nurses from home-care units in Spain: ‘Azacitidine administration at home’. Now it has been rolled out to include most of the hospitals in Spain administering Azacitidine. It was initially undertaken by nurses, not necessarily haematology nurses, who would visit patients at home usually by taxi […]

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Get the latest on MDS Treatment from the MDS Foundation Symposium

Janet Hayden, Myeloid Clinical Nurse Specialist, from Kings College NHS Foundation Trust, London (Adapted by MDS UK Patient Support Group) brings the latest in MDS Treatment from the Annual MDS Symposium in Valencia. Some patients are suitable for home treatment after stem-cell transplant Many interesting projects were presented during the nursing sessions, of which three […]

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MDS UK tribute to Professor Rodney Taylor (1942-2017)

It is with immense sadness that we announce the death of our past Chairman, Professor Rodney Taylor on 3rd May 2017, after his MDS progressed to AML. MDS UK Patient Support Group Chairman Rodney was diagnosed with MDS in 2006 and was invited to become Deputy Chairman when our little patient group was still in […]

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What is CAR T cell therapy? Learn about how this immunotherapy works

CAR T cell therapy aims to boost the immune system to attack tumor cells Cell therapies, sometimes called “living therapies,” are an especially promising and rapidly growing area of cancer research. One approach that’s been pioneered by Memorial Sloan Kettering researchers, led by investigator Michel Sadelain, is called CAR T cell immunotherapy. This type of […]

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MDS Treatment: What to Expect from a Visit to a Consultant

Dr. Christopher Dalley & Dr. Timothy Chevassut – Haematologists at Brighton and Sussex University Hospitals Trust and Royal Sussex Hospital NHS Trust – give an account of how they discuss diagnosis and treatment with their MDS patients. Watch the video and read the transcript below. What are the typical issues when you first diagnose a […]

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Second Opinions are Welcomed says Dr. Simone Green

How is a patient's treatment discussed and managed? Sophie Wintrich, Chief Executive of the MDS UK Patient Support Group, interviewed Dr. Simone Green – Haematologist at Hull and East Yorkshire Hospitals, NHS Trust. Watch the video and read the transcript below. What are the benefits of patients’ groups? What difference does it make to you […]

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