More Good News: The Cabbage Patch 10 Mile Race

We have 20 running places at the Cabbage Patch 10 Mile Race! MDS UK is delighted to announce that we have secured 20 running places in this year’s Cabbage Patch 10 mile race thanks to our wonderful supporter and Patron, Caitlin Limmer. We have a place for you The race takes place on 14th October […]

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Cycle the Prudential Ride London for MDS UK!

Great News: We have spaces available to participate in this year’s Prudential Ride London! MDS UK is delighted to announce that we have spaces available to participate in this year’s Prudential Ride London, on Sunday 29th July 2018. This is one of the legacies of the 2012 London Olympic Games and will give us an […]

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Volunteer With Us

Could you help us to help you? We are looking for enthusiastic new volunteers to help with various aspects of our expanding patient services. Anything from Admin to Zen meditation, anywhere from Land’s End to John O’Groats. Volunteer with us Interested? Please send us details of any skills you think you can bring, your contact […]

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Vidaza / Azacitidine: Learn all about this drug

Are Vidaza and Azacitidine the same drug? Why does it have two names? Vidaza and Azacitidine are the same drug Azacitidine is the official generic and non-proprietary name given to the drug active ingredient while Vidaza is its trade name. The drug is widely available in the UK for the treatment of MDS since its […]

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Jan Buchanan

It is with huge sadness that we announce the passing of Jan Buchanan. Jan had very recently stepped down from the committee of MDS UK Patient Support Group. Regrettably, shortly after, and just before Christmas, she suffered a brain haemorrhage from which she did not recover. An inspired fundraiser, always positive and engaging Jan was […]

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Living with MDS: Top Tips to Improve Your Quality of Life

LIVING WITH MDS Having MDS will have impact on your daily life. Each person will cope in their own unique way. Not everything in this gallery will apply to you, but there might be feelings that you are familiar with. It is hard to directly “change an emotion”, while thoughts and behaviours are more easily […]

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MDS UK Patient Support Group Newsletter – December 2017

Our seventh edition of the MDS UK Newsletter is now out! Read all about: MDS UK new Patron Caitlin Limmer AKA “The Force of the Limmer” and “Force of the Limmer”, the Race Director of Twickenham’s famous Cabbage Patch 10 Race and The Turks Head 10k. A campaign that was worth it: NHS England will fund […]

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MDS World Awareness Day 25th October – Flash Mob and more!

AMAZING FLASH MOB IN TWICKENHAM TO RAISE AWARENESS OF MDS To celebrate MDS World Awareness Day a cheerful bunch from the Bearcat Running Club  stormed the Cabbage Patch Pub in Twickenham and started dancing to the tune of Gloria Gaynor “I am what I am”!! WATCH THE VIDEO: Such was the impact that people were reported […]

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Have you ever visited an MDS Specialist Centre?

Watch Prof Bowen Video on MDS Centres of Excellence In the third in a series, Prof. David Bowen – Consultant Haematologist at St James University Hospital, Leeds – talks with Sophie Wintrich about what seeking an MDS specialist opinion can do for a patient and how MDS Centres of Excellence work together with local hospitals. […]

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