Cramp in hands and feet and occluded retinal vein

Please post here your experiences of MDS as a patient, carer, family or friend

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Sussexmalc
Posts: 3
Joined: 25 Sep 2015 18:32
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Cramp in hands and feet and occluded retinal vein

Postby Sussexmalc » 12 Feb 2017 20:43

I was diagnosed with rcmd about 19 months ago. I have experienced considerable cramp in my hands and sometimes feet...Anyone else experienced this please?

I have also recently suffered an occluded retinal vein...Again anyone else?

Thank you all.!
Goldtooth
Posts: 33
Joined: 01 Apr 2015 10:15
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Re: Cramp in hands and feet and occluded retinal vein

Postby Goldtooth » 19 Feb 2017 08:38

I get cramp all down the side of my right leg when I first get up in the morning or if I've been sitting down too long, feels like a dead leg people used to give one at school.
I relieve it by getting on my exercise bike for 15 minutes.
I first thought it was sciatica or even DVT, I phoned the out of hours chemo clinic nurse about the symptoms I was experiencing. She reassured me, she had a consultant with her and I heard him say try and walk it off.
I have RAEB2 diagnosed November 2014, on Azacitidine 5 days in every 28. The worst part of having MDS is over reacting to any sudden ache or pain, I know I do.
Exercise works for me.
Best wishes
Anthony

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