Iron in MDS website

Please post any useful / relevant links here for possible inclusion on the main website

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sophie
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Iron in MDS website

Postby sophie » 27 Nov 2009 13:04

Please see link to a website dedicated to explaining iron issues in relation to blood transfusions in MDS
www.theironfiles.co.uk
Sophie - Patient Liaison
For any queries:
Call 0207 733 7558
Email mds-uk@mds-foundation.org

Please do not send me PM messages on this forum - I do not check it often.
This forum is purely for patient to patient communications. Thanks for your help.
Nigel

Re: Iron in MDS website

Postby Nigel » 28 Nov 2009 07:57

There is also some good material on MDS generally there.
I did not see a mention of 'venesection'; I had iron overload due to transfusions prior to transplant - post transplant I had blood removed again (venesection) to correct the problem a year or more after the transplant.

The venesection is a simple procedure where they take a unit of blood every few weeks - seemed only fair they should take it back, but they swore it wasn't re-used:-"




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