my husband has mds

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Joined: 30 Sep 2010 11:39

my husband has mds

Postby hebeho27 » 30 Sep 2010 12:10

My husband has recently been diagnosed with low risk RA. It appears that his blood tests were abnormal 4 years ago, but his G.P. didn't notice this. He has no symptoms and we are waiting to see his specialist in October for a check up. We do not know the results of his chromosome tests yet, and are not sure what his blood test results are. His specialist told us that he had a median survival rate of 4 to 7 years, and then started telling us about how it could develop into A.M.L. He then told us to go home and forget about it, enjoy ourselves and go on holidays. I think we need a second opinion, my husband is 66 and very fit. I need more information but don't want to depress myself by looking on internet sites.
Posts: 249
Joined: 20 Nov 2008 14:05

Re: my husband has mds

Postby sophie » 01 Nov 2010 10:18

Dear Hebeho27,
please contact me for a referral to a centre of excellence for MDS and for an information pack on MDS.
020 7733 7558
or email me on
Sophie - Patient Liaison
For any queries:
Call 0207 733 7558

Please do not send me PM messages on this forum - I do not check it often.
This forum is purely for patient to patient communications. Thanks for your help.

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