Oxford Regional Group - Meetings

A place to advertise your regional meetings, get togethers, formal or informal - so that others can find you - and you can post updates.

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sophie
Posts: 249
Joined: 20 Nov 2008 14:05
Contact:

Oxford Regional Group - Meetings

Postby sophie » 24 May 2011 19:09

We have many people in Oxford - who recently met up at the Churchill Hospital.
Over 20 people met up on the 16th May 2011.

Please use this page to organise informal or more formal meetings and to update others who might be interested in joining you.

We need someone from the Oxford group to update this folder and post the date of the next meeting.
Please also post feedback about the first meeting.
Thank you

MDS UK - Sophie
Sophie - Patient Liaison
For any queries:
Call 0207 733 7558
Email mds-uk@mds-foundation.org

Please do not send me PM messages on this forum - I do not check it often.
This forum is purely for patient to patient communications. Thanks for your help.
liannejones

Re: Oxford area

Postby liannejones » 07 Jun 2011 15:54

Next Oxford MDS Support Group:
Date: Tuesday 6th September
Time: 4pm
Location: Oxford Cancer and Haematology Centre, Meeting Room 1, Level 2, Churchill Hospital.

Guest speakers: Dr Vyas and a representative from the Maggie's Centre.

This will include question and answer time.

All patients in the Oxford and Thames Valley area welcome to attend, as well as relatives and friends.
This is an opportunity to get to know one another, share experiences and increase the support network in the area.

For registration - or if you require more information, please do not hesitate to contact me on 01865 572023, Lianne Jones (at Oxford Cancer Centre).
liannejones

Oxford MDS Support Group, 27th January 2012.

Postby liannejones » 23 Jan 2012 16:30

Next Oxford MDS Support Group:
Date: Friday 27th January 2012
Time: 3pm (please note that the meeting room is not available until 1445pm).
Location: Oxford Cancer and Haematology Centre, Meeting Room 1, Level 2, Churchill Hospital.

Guest speakers: Prof Vyas who will take questions and answers.
Tanya Navarro, Occupational Therapist from kings College Hospital, London, who will be talking about the management of fatigue.

All patients in the Oxford and Thames Valley area welcome to attend, as well as relatives and friends.
This is an opportunity to get to know one another, share experiences and increase the support network in the area.

For registration - or if you require more information, please do not hesitate to contact me on 01865 572023, Lianne Jones (at Oxford Cancer Centre).

Sorry Lianne - had to move the message into the right sub-folder. If you prefer to have more space - with a dedicated folder - just let me know - I will create one for you. Same goes for all regional groups.
liannejones

Oxford MDS Support Group

Postby liannejones » 06 Aug 2012 14:47

Next Oxford MDS Support Group:
Date: Friday 17th August
Time: 4pm
Location: Oxford Cancer and Haematology Centre, Meeting Room 1, Level 2, Churchill Hospital.

Guest speakers: Prof Vyas and Dr Sternberg
This will include question and answer time.

All patients in the Oxford and Thames Valley area welcome to attend, as well as relatives and friends.
This is an opportunity to get to know one another, share experiences and increase the support network in the area.

For registration - or if you require more information, please do not hesitate to contact me on 01865 572023, Lianne Jones (at Oxford Cancer Centre).
ClaudiaRichards
Posts: 13
Joined: 20 Sep 2012 19:11
Contact:

Oxford MDS Support Group Meeting

Postby ClaudiaRichards » 23 Oct 2012 17:01

Date: Friday 23rd November
Time: 4.00 pm (room available from 3.30 pm)

Location: Oxford Cancer and Haematology Centre, Meeting Room 1, Level 2, Churchill Hospital.
Guest speaker: Prof Vyas

All patients in the Oxford and Thames Valley area welcome to attend, as well as relatives and friends. This is an opportunity to get to know one another, share experiences and increase the support network in the area.

For registration - or if you require more information - please do not hesitate to contact Lianne Jones (at Oxford Cancer Centre) on 01865 572023.

Gwyneth Brown-Lowe and I are two MDS patients who attend meetings of the Oxford Patient Support Group. We have offered to help Lianne with the co-ordination of the Group and its meetings. We also feel some people may value the opportunity to have contact with other members of the Group between meetings.

If you are interested, please email me on claudia.richards@fsmail.net with your full name, contact telephone number, preferred email address and the name of the hospital at which you (or your family member) are being treated. These details will be circulated to members of the Group who have opted for direct contact with others. If you would be willing to act as a point of contact at your local hospital (for instance, taking in posters/leaflets, being a contact for any MDS patients who have not previously come to the Support Group meetings), please also mention this in your email.

Gwyneth and I also welcome any suggestions for future meeting topics/speakers and for any other type of event (Coffee Morning, Fundraiser etc.) which you feel the Group should consider.
sophie
Posts: 249
Joined: 20 Nov 2008 14:05
Contact:

Re: Oxford Regional Group - Meetings

Postby sophie » 01 Feb 2013 15:51

Dear Oxford team - Lianne, Claudia and Gwyneth,
wonderful progress - thank you for your cooperation and efforts to increase the awareness about this regional MDS group.

As ever - keep posting your new meetings on the forum - on this page.
I have created a new folder for general Oxford chats - if people want to keep in touch that way.

The main London office will always be there for support and advice - general or specific.
Claudia and Gwyneth will be there to coordinate the group and organise meetings - but not to act as patient liaison.
Please all remember they are both patients themselves and need some rest in between meetings.
Any support needed in between meetings - please always call the main office.
For clinical advice - always call your clinical nurse specialist - they are the best placed people to help you.

Thank you all - and we wish you a successful and helpful next meeting.
Sophie - Patient Liaison
For any queries:
Call 0207 733 7558
Email mds-uk@mds-foundation.org

Please do not send me PM messages on this forum - I do not check it often.
This forum is purely for patient to patient communications. Thanks for your help.
ClaudiaRichards
Posts: 13
Joined: 20 Sep 2012 19:11
Contact:

Re: Oxford Regional Group - Meetings

Postby ClaudiaRichards » 09 Feb 2013 11:32

Next Meeting Date: Friday 15th March 2013
Time: 3.00 pm

Location: Oxford Cancer and Haematology Centre, Meeting Room 1, Level 2, Churchill Hospital.
Guest speaker: Dr Alex Sternberg

This meeting will commence with refreshments and an informal patient-to-patient session. As requested by current members of the group, Dr Sternberg will then join us to present and discuss some anonymous bone marrow slides in order to help us understand the main differences between normal and dysplastic blood cells.

All patients in the Oxford and Thames Valley area welcome to attend, as are relatives and friends. This is an opportunity to get to know one another, share experiences and increase the support network in the area, particularly for newly-diagnosed patients.

For registration - or if you require more information - please do not hesitate to contact Lianne Jones (at Oxford Cancer Centre) on 01865 572023.
ClaudiaRichards
Posts: 13
Joined: 20 Sep 2012 19:11
Contact:

Oxford Regional Group - Summer Meeting

Postby ClaudiaRichards » 05 Jul 2013 11:35

Next Meeting Date: Friday 19th July 2013
Time: 2.30 pm
Location: Oxford Cancer and Haematology Centre, Meeting Room 1, Level 2, Churchill Hospital.
Guest speaker: Helen Palmer from the Maggie's Centre

This meeting will commence, as last time, with refreshments and an informal patient-to-patient session. Helen Palmer, a clinical psychologist based at the Maggie's Centre, will then join us to talk about the services offered by the Centre and to discuss with us how we go about dealing with the impact of living with MDS.

All patients in the Oxford and Thames Valley area welcome to attend, as are relatives and friends. This is an opportunity to get to know one another, share experiences and increase the support network in the area, particularly for newly-diagnosed patients.

For registration - or if you require more information - please do not hesitate to contact Kirsty Crozier, Advanced Nurse Practitioner, on 01865 235287.
ClaudiaRichards
Posts: 13
Joined: 20 Sep 2012 19:11
Contact:

Oxford Regional Group - Autumn Meeting 2013

Postby ClaudiaRichards » 02 Oct 2013 17:11

Date: Friday 18th October 2013
Time: 2.30 pm - 4.30 pm
Location: Oxford Cancer and Haematology Centre, Meeting Room 1, Level 2, Churchill Hospital.
Guest speaker: Dr Alex Sternberg

This meeting will commence with refreshments and an informal patient-to-patient session. Dr Alex Sternberg will be joining us to answer any treatment-related or quality of life questions raised by the group. In addition, there will be some feedback from patients attending the Annual London MDS Information Meeting on Friday 4th October.

All patients in the Oxford and Thames Valley area are welcome to attend, as are relatives and friends. This is an opportunity to get to know one another, share experiences and increase the support network in the area, particularly for newly-diagnosed patients.

For registration - or if you require more information - please do not hesitate to contact Kirsty Crozier, Advanced Nurse Practitioner, on 01865 235287.
Claudia R
Posts: 5
Joined: 30 Sep 2011 18:49
Contact:

Oxford Regional Group - Spring 2014 Meeting

Postby Claudia R » 15 Apr 2014 11:49

Date: Friday 9th May 2014
Time: 2.00 pm - 4.00 pm
Location: The Maggie's Centre, Churchill Hospital
(see https://www.maggiescentres.org/our-cent ... d/find-us/ for directions)

This being the first meeting of 2014, we will have a general catch-up session with Kirsty in attendance, so please come prepared with any queries, experiences, good news etc since we last saw each other in 2013!

All patients in the Oxford and Thames Valley area are welcome to attend, as are relatives and friends. This is an opportunity to get to know one another, share experiences and increase the support network in the area, particularly for newly-diagnosed patients.

For registration - or if you require more information - please do not hesitate to contact Kirsty Crozier, Advanced Nurse Practitioner, on 01865 235287.

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