Essex Regional Group - Meetings

A place to advertise your regional meetings, get togethers, formal or informal - so that others can find you - and you can post updates.

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sophie
Posts: 249
Joined: 20 Nov 2008 14:05
Contact:

Essex Regional Group - Meetings

Postby sophie » 24 May 2011 19:04

We have many people in the Essex area - and a great contact person - Chris.

Please use this page to organise informal or more formal meetings and to update others who might be interested in joining you.

I suggest you post a location where you might meet ?
Or the date of the next meeting?

MDS UK - Sophie
Sophie - Patient Liaison
For any queries:
Call 0207 733 7558
Email mds-uk@mds-foundation.org

Please do not send me PM messages on this forum - I do not check it often.
This forum is purely for patient to patient communications. Thanks for your help.
chris
Posts: 577
Joined: 01 Dec 2009 21:52
Location: Essex
Contact:

Re: Essex area

Postby chris » 25 May 2011 14:56

Hi to all in Essex

I am more than happy to organise a meeting - after all there are so few of us that it's quite an event to meet somebody else with MDS and even then they may not have the same type of MDS!!! I realise that sometimes travelling is difficult if people are tired because of their MDS or have worries about infections. I think a good way forward would be to reply either on the public forum by clicking on Post reply or, if you prefer not to post on the public forum, reply to me only by clicking on PM (post message).

Please say:

Where you are from (nearest big town)
What time of the day you would prefer to meet
How soon you would like a meeting
Any topics you would like us to discuss
Whether you would like an MDS specialist to come and speak to us
Any special considerations you have for attending the meeting (access facilities for wheelchairs, downstair room etc etc)
Anything else I have not thought of!

It would be lovely to hear from you

Best wishes

Chris
Chris. (F) Age 67 (2017). MDS diagnosed in 2008. Sub-type CMML-1 but with anomalies! Normal-ish red cells, low white cells and platelets, slightly raised monocytes. Enlarged spleen. No current treatment - active monitoring 3-
monthly.SE Essex
chris
Posts: 577
Joined: 01 Dec 2009 21:52
Location: Essex
Contact:

Re: Essex Regional Group - Meetings

Postby chris » 19 Oct 2012 13:13

Just to let all know that we had our first Essex Regional Group meeting on 18th October in Chelmsford. There were 9 of us there, 5 MDS patients and 4 of their supporters. It was good to be able to share our experiences of MDS and we are planning another meeting in December, details of which will go on the website as soon as it is booked.

If anybody from Essex reads this post and wants to come along, please contact me or Sophie.

Best wishes

Chris
Chris. (F) Age 67 (2017). MDS diagnosed in 2008. Sub-type CMML-1 but with anomalies! Normal-ish red cells, low white cells and platelets, slightly raised monocytes. Enlarged spleen. No current treatment - active monitoring 3-
monthly.SE Essex
chris
Posts: 577
Joined: 01 Dec 2009 21:52
Location: Essex
Contact:

Re: Essex Regional Group - Meetings

Postby chris » 13 Nov 2012 16:16

To all MDS Patients in Essex

Just to let you know that the next meeting of the Essex Regional Group will take place on Thursay, 6th December in Chelmsford. We hope to have a speaker on MDS and latest treatments.

Please contact myself or Sophie if you would like to come along.

Best wishes

Chris
Chris. (F) Age 67 (2017). MDS diagnosed in 2008. Sub-type CMML-1 but with anomalies! Normal-ish red cells, low white cells and platelets, slightly raised monocytes. Enlarged spleen. No current treatment - active monitoring 3-
monthly.SE Essex
sophie
Posts: 249
Joined: 20 Nov 2008 14:05
Contact:

Re: Essex Regional Group - Meetings

Postby sophie » 11 Jan 2013 18:01

Next group meeting will be 17th January 2013 for the local Essex group.
Please check our website for all details.
There will be a presentation by Dr Kotoucek.
Hope many of you can attend.
Thank you
Sophie - Patient Liaison
For any queries:
Call 0207 733 7558
Email mds-uk@mds-foundation.org

Please do not send me PM messages on this forum - I do not check it often.
This forum is purely for patient to patient communications. Thanks for your help.
chris
Posts: 577
Joined: 01 Dec 2009 21:52
Location: Essex
Contact:

Re: Essex Regional Group - Meetings

Postby chris » 03 Feb 2013 22:41

Hi All

Next meeting of the Essex group will take place in Chelmsford on Thursday, 7th March. Please see website for details coming soon. Speaker will be Transfusion practitioner from Colchester hospital,Sue Turner, talking about blood transfusions.

Best wishes

Chris Dugmore
Chris. (F) Age 67 (2017). MDS diagnosed in 2008. Sub-type CMML-1 but with anomalies! Normal-ish red cells, low white cells and platelets, slightly raised monocytes. Enlarged spleen. No current treatment - active monitoring 3-
monthly.SE Essex
sophie
Posts: 249
Joined: 20 Nov 2008 14:05
Contact:

Re: Essex Regional Group - Meetings

Postby sophie » 05 Apr 2013 13:05

Next meeting scheduled
When: 10am – 1pm, Thursday 16th May 2013
Where: Seminar Room 1, Central Baptist Church, Chelmsford, CM1 1LN

To attend - please contact Chris Dugmore or the main MDS UK office – full contact details and how to get there can be found on our main Events webpage:
http://www.mdspatientsupport.org.uk/event/4018/

Message from Chris:
I am pleased to invite you to the next meeting of the MDS Patient Support Group (Essex). This will be at the same venue, Central Baptist Church, on Thursday, 16 May 2013 from 10-1. As well as our usual session, updating each other on how our MDS is affecting us, we plan this time to talk about our experiences with obtaining travel insurance so please bring along any difficult /successful experiences, as well as details of any particular companies who you have found helpful.

IMPORTANT: I would be grateful if you would confirm your attendance as soon as possible but by by 13th May (Monday) at the latest as I do need to let the venue know about the refreshments.
The event is free to MDS patients and their families as it will be funded by MDS UK Patient Support.

How to contact Chris: http://www.mdspatientsupport.org.uk/event/4018/

We were also successful in raising £576 from the Waitrose Community Matters Scheme which will help to fund our future meetings in Essex.
Sophie - Patient Liaison
For any queries:
Call 0207 733 7558
Email mds-uk@mds-foundation.org

Please do not send me PM messages on this forum - I do not check it often.
This forum is purely for patient to patient communications. Thanks for your help.
chris
Posts: 577
Joined: 01 Dec 2009 21:52
Location: Essex
Contact:

Re: Essex Regional Group - Meetings

Postby chris » 21 Oct 2015 15:44

Hi to all from Essex or surrounding area

Next meeting is scheduled for:

When: 10am – 12 am, Tuesday, 17th November 2015
Where: Seminar Room 1, Central Baptist Church, Chelmsford, CM1 1LN

General discussion and support meeting. Tea/ coffee and biscuits. Open to MDS patients and their family members.

Please register with MDS UK Patient Support group before attending but the meeting is free to all.

Please contact me if you wish to attend.

Kind regards

Chris Dugmore
Chris. (F) Age 67 (2017). MDS diagnosed in 2008. Sub-type CMML-1 but with anomalies! Normal-ish red cells, low white cells and platelets, slightly raised monocytes. Enlarged spleen. No current treatment - active monitoring 3-
monthly.SE Essex

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