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Azacytidine - new patients
Posted: 18 Dec 2014 11:00
by milnepet
1st attempt so checking to see if my contact successful
Re: Azacytidine - new patients
Posted: 24 Dec 2014 22:20
by Glynjo
Hi ...... Was there something you wanted to know??
Glyn
Re: Azacytidine - new patients
Posted: 04 Jan 2015 13:32
by Mamgumo
Hi,
My husband has high risk MDS and is due to start course of Azacitidine . Is there anyone who is/has benn on this recently and can say how it went. We are very new to this and still reeling from the diagnosis so would like as much info as possible please, anything would help..
Pat.
Re: Azacytidine - new patients
Posted: 30 Jan 2015 16:53
by Glynjo
Hi, I have had one course so far and starting 2nd next week - was there something you wanted to know?
Re: Azacytidine - new patients
Posted: 06 Apr 2015 17:34
by Goldtooth
I was diagnosed RAEB2 at the end of November, I am still reeling too.
I feel physically fit but my emotional state is like a roller coaster.
I start my fourth cycle on 7/4 and have not had any adverse reactions so far except fatigue when the cycle ends.
The hospital have arranged for me to see a counsellor this week and I hope she can help me to cope with the dread and panic I often experience about my future.
If your husband is going through the same as I am please ask if he can have counselling.
It's a real shock get this diagnosis, but expert help is there if you need it.
Best wishes and good luck to you both.
Anthony
Ps if there is any other information you need please don't hesitate to ask me.