My name is Ian Wells and I was diagnosed with MDS in October 2013. I am RCMD , neutropenic and until I started using EPO was blood transfusion dependant. Initially I had transfusions every 3/4 weeks but in June this year I was put on a trial of EPO. Fortunately this is now working and it looks like I will only have to have a transfusion every 8 weeks which really is good news. I inject once a week and have been feeling really good since it has kicked in. Is anyone out there in a similar position as it would be good to swap notes.
Look forward to hearing from you
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