In that uncertain time again
Posted: 26 Apr 2014 19:36
Don't really know why I am writing, guess I just need some support. Am having 4th bone marrow biopsy in 2 weeks time as bloods have dipped twice in 6 weeks. Am being seen by the wonderful Kings but to be honest always feel in total denial about this whole MDS thing. This time though I am starting to wonder how many times I can get away with getting a good result. I am 42 and teach running, I am due to run my 3rd marathon in 5 months next weekend but have felt massively fatigued recently - but why don't I tell them that when i see them at Kings "oh no I am fine, my tiredness must be down to my job and my love of running" but if I am honest this fatigue is I think different, or is it my fear over 2 worsening blood tests, am I faking it!!? I regularly go to bed for half the day now, I am always in bed before my 10 and 12 year old (around 8pm given half the chance - but again wouldn't most women be if they could). With my running I am slowing down or rather have been a lot since December but is that because I have done too much or is it my bloods. Just a whole load of confusion going on here. Get dizzy a lot anyway, I don't think due to MDS, but this has worsened in last 2 weeks, again is that stress they say the Haemaglobin levels have dropped (which is the first time they have dropped - all the others have always been poor, but that one has remained ok), as I type I feel like I am on a ship!
Oh dear I have really off loaded on this one, husband gone to work, mother has no idea, children think I am lying to them about something. Just in a bit of a quandary and am supposed to be running a marathon next weekend and for once I don't think I can do it (am going to get another blood test at local hospital on Monday to help me make the decision).
Feel a bit stupid now having written this but shall post anyway. I am outwardly the strong character to others, maybe on this I can be what I am really feeling.
Oh dear I have really off loaded on this one, husband gone to work, mother has no idea, children think I am lying to them about something. Just in a bit of a quandary and am supposed to be running a marathon next weekend and for once I don't think I can do it (am going to get another blood test at local hospital on Monday to help me make the decision).
Feel a bit stupid now having written this but shall post anyway. I am outwardly the strong character to others, maybe on this I can be what I am really feeling.